Do opioids help with your chronic pain? - Successfully?

Posted by creyn51 @creyn51, Jan 5 11:25am

I used Opioids Post Surgery after my surgeries failed - successfully for 3 months. CRPS had set in both feet. Immediately after prescribing my third prescription for Opioids, my Surgeon pronounced me cured and discontinued any further care. December of 2016 was the last time I received a narcotic for my Pain. Just when I needed them the Most, I was Banned from any further Successful Pain Medication as Every New Pain Clinic told me that Opioids do Not Work for CRPS.
At a time when they are needed the most I have been Red Flagged as a Criminal Medicine Seeker and heard every excuse that Opioids do Not Work,and, are Not acceptable for long term use of over 3-6 months. Not even a Trial. I am unable to use NSAIDS. Gabapentin and Lyrica do not work and had too many side effects,
My research showed that Opioids should be used immediately if Nothing Else Works as TIME IS OF THE ESSENCE in treating CRPS. DO Opioids work on Your Pain? Do No Harm _ Do Nothing...

Interested in more discussions like this? Go to the Chronic Pain Support Group.

I have used Opioids for 25 years for pain no one can fix. Had a lot of joint replacements -- ALL wildly successful! But the degenerative disc disease and arthritis in my coccyx no one can fix. Ergo pain. Sometimes more pain than other times. I have watched over 25 years the mismanagement of opioids and the tragic price those of us without addiction problems have to face. I continue to fight them. I don't take more than a half 10/325 2 to 4 times a day. on a regular basis for years and years and years! I show no side effects. I'd rather take the opioid with tylenol than anything else. I've been given other opioids and the like and they make me feel edgy or itchy or nauseous. The nerve meds make me feel terrible. The NSAIDS - put me in the hospital and THOSE I had withdrawals from! Crazy, eh? (thanks USMC!) So I was finally put on the Opioid in 2001. I take a report to any doctor who might give me a hard time. I do not change doctors because of the problems. I will die (naturally) before I leave my provider because I am so freaked out about this. I believe the protocol is with the CDC. Everyone shuts their mouth when I bring in the LONG TERM SAFETY and prescription on the matter. Good luck. It sucks to be in pain! regards, Lori
https://www.cdc.gov/overdose-prevention/hcp/clinical-care/initiating-opioid-therapy.html#:~:text=Upon%20initiating%20opioid%20use%20for%20subacute%20and%20chronic%20pain%2C%20clinicians%20should%3A&text=Evaluate%20patients%20and%20establish%20or,specific%20selection%20of%20opioid%20therapy.&text=Work%20with%20patients%20to%20establish%20treatment%20goals%20for%20pain%20and%20function.

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Lori, you are amazing and thanks for the Link from the CDC Initiating Opioid Therapy. We all live life one step at a time and when each step brings pain into your life it makes each breath that we take a reminder of our mortality. Thank you for your comments, for telling the truth and for being a Real Pain Warrior. God Bless You. Craig

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Yes I think they work in the long term. I've been on them for 26 years. I also have a pain pump and spinal stimulator.

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I am so very sorry you are going through this awful trouble! Drs. are to treat the pain and if surgeries fail which many do, they are encouraged to use medication management. You could try calling and set up a appt. with a psychologist or someone who treats depression and anxiety and ask them if they could find you a doctor who would give you what you need.
I have been on opioid therapy since 1998 and currently on Methadone 10 mg 3'x a day and have been on this same dose for the 8 yrs. I've been taking them. And they are a god-send.!! Before that it was oxycontin which had too many ups and downs. Methadone is smoother and doesn't cause that. I wouldn't be moving at all if not for them.
Additionally, I am on a antidepressant, antianxiety and anti-inflammatory as needed. Don't give up. The drs, owe you this!! You will need to advocate for yourself.

With sincere thoughts
Janet

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@janisum

I am so very sorry you are going through this awful trouble! Drs. are to treat the pain and if surgeries fail which many do, they are encouraged to use medication management. You could try calling and set up a appt. with a psychologist or someone who treats depression and anxiety and ask them if they could find you a doctor who would give you what you need.
I have been on opioid therapy since 1998 and currently on Methadone 10 mg 3'x a day and have been on this same dose for the 8 yrs. I've been taking them. And they are a god-send.!! Before that it was oxycontin which had too many ups and downs. Methadone is smoother and doesn't cause that. I wouldn't be moving at all if not for them.
Additionally, I am on a antidepressant, antianxiety and anti-inflammatory as needed. Don't give up. The drs, owe you this!! You will need to advocate for yourself.

With sincere thoughts
Janet

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Thank you for your comments on my post. I have had the services of a great Psychologist for the past 7 years. LiveHealth.com has been a god send for me as I have utilized this site to attend their web video appointments Every Week with a Great Psychologist, LCSW Sylvia Bowen, who gives me a "Check up From the Neck up" every week. My Medicare pays for this service and I don't know what I'd have done without this valuable service. I am currently on 60mg of Cymbalta for my antidepressant and 1mg of valium to help my Insomnia. 10mg of Lisinopril as my Blood Pressure medication and Tylenol for Pain. The Tylenol is like pissing on the raging Fires in California as it does nothing to diminish the fire of CRPS Type 2 in my feet. 8 years and from day one, not one Doctor or Pain Clinic will trial me on an Opioid as they would rather keep their jobs/License. I will not give up because All I Need to gain some Quality Of Life and rejoin the Human Race is a contract with a good Pain Clinic to prescribe me an Opioid at the Proper Dosage and then to monitor me as my LCSW helps me Learn to Live again. Thank you again Janet for your Post and God Bless You.

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@loriesco

I have used Opioids for 25 years for pain no one can fix. Had a lot of joint replacements -- ALL wildly successful! But the degenerative disc disease and arthritis in my coccyx no one can fix. Ergo pain. Sometimes more pain than other times. I have watched over 25 years the mismanagement of opioids and the tragic price those of us without addiction problems have to face. I continue to fight them. I don't take more than a half 10/325 2 to 4 times a day. on a regular basis for years and years and years! I show no side effects. I'd rather take the opioid with tylenol than anything else. I've been given other opioids and the like and they make me feel edgy or itchy or nauseous. The nerve meds make me feel terrible. The NSAIDS - put me in the hospital and THOSE I had withdrawals from! Crazy, eh? (thanks USMC!) So I was finally put on the Opioid in 2001. I take a report to any doctor who might give me a hard time. I do not change doctors because of the problems. I will die (naturally) before I leave my provider because I am so freaked out about this. I believe the protocol is with the CDC. Everyone shuts their mouth when I bring in the LONG TERM SAFETY and prescription on the matter. Good luck. It sucks to be in pain! regards, Lori
https://www.cdc.gov/overdose-prevention/hcp/clinical-care/initiating-opioid-therapy.html#:~:text=Upon%20initiating%20opioid%20use%20for%20subacute%20and%20chronic%20pain%2C%20clinicians%20should%3A&text=Evaluate%20patients%20and%20establish%20or,specific%20selection%20of%20opioid%20therapy.&text=Work%20with%20patients%20to%20establish%20treatment%20goals%20for%20pain%20and%20function.

Jump to this post

I'm also trying to find the doctor that will prescribe me Oxycodone after their cutting me off at the surgeons office. I was just thinking of trying to find a state in this country that is more lenient. I would love to ask you your doctor's name but of course you probably can't share that with me publicly I would travel anywhere at this point to be out of pain. That is if I could get oxycodone. I've only been taking 2.5 mg at night only not even throughout the day and they're still giving me a hard time about getting more I tell them I don't sleep they just don't seem to really consider that to be a problem. Well if you can give me your doctor's name and where you live I suppose there might be a way to do that confidentially I don't know I'm a little embarrassed to asking but I'm lying here trying to sleep with my legs throbbing and I don't think it's going to happen.

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