Do any group members have Intractable Pain IP and/or anyone have a Medtronic pain pump

Posted by PinkPain51 @pinkpain51, May 12, 2017

I was diagnosed with Fibromyalgia at the age of 37 and also had severe bone pain. About 2 years ago at the age of 51 the pain got so bad that I was having a hard time coping with getting out of bed or sitting in a chair for more than 5 minutes due to stabbing pain in my upper right back and increasing bone pain. I found out that I had 5 discs that were severely damaged. I was fused and the surgeon said I had Osteoporosis in my thoracic spine and the bones were crumbling. The fusion didn’t take and I deal with pain levels I never thought a human could live with. I tried commiting suicide about a year ago and shock therapy gave me back a will to live. I currently take opiods to be able to do basic self car, pt, and go for walks as far as I can. My quality life is very poor but I need to be here for my loved ones. I am considering a pain pump from Medtronic and wondering if anyone has had one put in and if it has worked. I am also interested in anyone’s experience with this type of unrelenting severe pain and how they deal with it. So far I eat a anti-inflamatory diet, take forteo shots for Osteoporosis, do PT, and move as much as I can. I also see a therapist weekly.I have tried Marijuana, accupunture, lyrica, Cymbalta, Biofeedback, DBT, and many other treatments, to numberous to mention here. The opiods help but I do not like the side effects or the stigma.

@kanaazpereira

Hello @pinkpain51,

Welcome to Connect; I’m so sorry that you are experiencing such pain, but so glad that you’ve joined this group. And thank you for sharing your history, responding to posts in other discussions, and thinking of others, even though you are in pain.

I’m tagging Connect Mentors, @dawn_giacabazi, @sandytoes14, @johnbishop who are familiar with chronic pain, and I’m certain they will join in with some suggestions to help you.
@mikee @gailb @jenapower @virtuous69 @tompet @contentandwell @briansr @mojoearle @sharonmay7 @medic7054 @salena54 @19lin @jimhd would you be able to share your experiences and insights as well?

@pinkpain51, I would sincerely encourage you to view this information about Mayo Clinic’s Pain Rehabilitation Center (PRC), which has been in operation since 1974, and has helped thousands of people with chronic pain.
I hope @medic7054, who has experienced the benefits of the PRC will return with more information.

@peggyj4411 @philio66 @pamperthyself have discussed the Medtronic pain pump, and I wonder what their thoughts are about the device?

@pinkpain51, I applaud you for finding your will to live life fully despite your struggles; we have to advocate for our health, and sometimes have to rely on prescription opioids to provide relief. I realize your worry, especially with the current opioid epidemic; what is your doctor’s opinion?

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Thank you so much19lin, you understand. Assisted suicide should be an option when there is no relief in sight. So far I have been able to get help when it has been at its worst. Having a psychology degree gives me some insight to what is happening to me psychologically. I know that suicide ruines the lives of the loved ones you leave behind so I try and try to find new ways of coping . Unfortunately when you lose your job, become disabled, and spend every last penny on treatments many alternative treatments are not feasable. I would love to have massage therapy but that is 75 dollars per massage and that cuts into my food budget which also needs to be of the highest quality I can afford. If you get sick in this country you can lose everything including quality care. Medicare dose not cover alternative therapies and I have exhausted my resources on trying such things as accupunture, chinese medicine, homeopathy, chiropractic etc. I try to have courage but some days I am so tired of struggling that I just want this to end. I am a social person and miss interactions with people but my illness often prevents me from keeping plans or if I do being embarassed about my emotional behavior because I am hurting so much. I hope and pray for some breakthroughs for those who suffer. I think we are stigmatized because it is hard for people to understand that some acute pain never lessens and becomes a way of life. I am going ahead with the pump and will keep you posted on how it works for me. My doctor has had good results for many of his patients and I hope I am one of those and can get on with the regular complaints of daily living. I know one thing. If I can get some relief I would like to become some kind of advocate for those who suffer in silence. Thank you for taking the time to respond. I really appreciate it and distraction helps. God bless you and again thank you for your input.
Sincerely,
Kristine

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@kanaazpereira

Hello @pinkpain51,

Welcome to Connect; I’m so sorry that you are experiencing such pain, but so glad that you’ve joined this group. And thank you for sharing your history, responding to posts in other discussions, and thinking of others, even though you are in pain.

I’m tagging Connect Mentors, @dawn_giacabazi, @sandytoes14, @johnbishop who are familiar with chronic pain, and I’m certain they will join in with some suggestions to help you.
@mikee @gailb @jenapower @virtuous69 @tompet @contentandwell @briansr @mojoearle @sharonmay7 @medic7054 @salena54 @19lin @jimhd would you be able to share your experiences and insights as well?

@pinkpain51, I would sincerely encourage you to view this information about Mayo Clinic’s Pain Rehabilitation Center (PRC), which has been in operation since 1974, and has helped thousands of people with chronic pain.
I hope @medic7054, who has experienced the benefits of the PRC will return with more information.

@peggyj4411 @philio66 @pamperthyself have discussed the Medtronic pain pump, and I wonder what their thoughts are about the device?

@pinkpain51, I applaud you for finding your will to live life fully despite your struggles; we have to advocate for our health, and sometimes have to rely on prescription opioids to provide relief. I realize your worry, especially with the current opioid epidemic; what is your doctor’s opinion?

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I’ve

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@kanaazpereira

Hello @pinkpain51,

Welcome to Connect; I’m so sorry that you are experiencing such pain, but so glad that you’ve joined this group. And thank you for sharing your history, responding to posts in other discussions, and thinking of others, even though you are in pain.

I’m tagging Connect Mentors, @dawn_giacabazi, @sandytoes14, @johnbishop who are familiar with chronic pain, and I’m certain they will join in with some suggestions to help you.
@mikee @gailb @jenapower @virtuous69 @tompet @contentandwell @briansr @mojoearle @sharonmay7 @medic7054 @salena54 @19lin @jimhd would you be able to share your experiences and insights as well?

@pinkpain51, I would sincerely encourage you to view this information about Mayo Clinic’s Pain Rehabilitation Center (PRC), which has been in operation since 1974, and has helped thousands of people with chronic pain.
I hope @medic7054, who has experienced the benefits of the PRC will return with more information.

@peggyj4411 @philio66 @pamperthyself have discussed the Medtronic pain pump, and I wonder what their thoughts are about the device?

@pinkpain51, I applaud you for finding your will to live life fully despite your struggles; we have to advocate for our health, and sometimes have to rely on prescription opioids to provide relief. I realize your worry, especially with the current opioid epidemic; what is your doctor’s opinion?

Jump to this post

Thank you JK for responding. I get migraines originating from my spine and they are very painful. 3 or 4 days of agony is alot and I am so glad you have found some relief. I do Imitrex injections and Relpax which I currently can’t afford. You are so kind to understand. I feel so alone in this so it is nice when others respond with their experiences. It takes my mind of myself for a moment. I wish you good health and happiness.
Sincerely,
Kristine

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@contentandwell

@jimhd, we all have things to bear. I know I too often feel bad that others are dealing with so much more than I am, but I try to not feel guilty. I do try to focus on the good and positive and I thank God multiple times a day that I am still here.

Your trip sounds wonderful. We would love to see the Grand Canyon but I cannot deal with that long a drive, particularly not with my husband driving. He wants to drive, I tell him I will fly and meet him there.

By the way, I am NH! What part does your daughter live in, I am in Bedford, which borders Manchester.
JK

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@contentedandwell

Our daughter lives in Salem, and until a few months ago, worked at the Moore Center in Manchester. She resigned to have a baby, and in July, will move to California, much closer to us. Her husband is in the Coast Guard, and will be transferred from Boston to Alameda. Small world. It would be a long drive from NH to the Grand Canyon.

Jim

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@kanaazpereira

Hello @pinkpain51,

Welcome to Connect; I’m so sorry that you are experiencing such pain, but so glad that you’ve joined this group. And thank you for sharing your history, responding to posts in other discussions, and thinking of others, even though you are in pain.

I’m tagging Connect Mentors, @dawn_giacabazi, @sandytoes14, @johnbishop who are familiar with chronic pain, and I’m certain they will join in with some suggestions to help you.
@mikee @gailb @jenapower @virtuous69 @tompet @contentandwell @briansr @mojoearle @sharonmay7 @medic7054 @salena54 @19lin @jimhd would you be able to share your experiences and insights as well?

@pinkpain51, I would sincerely encourage you to view this information about Mayo Clinic’s Pain Rehabilitation Center (PRC), which has been in operation since 1974, and has helped thousands of people with chronic pain.
I hope @medic7054, who has experienced the benefits of the PRC will return with more information.

@peggyj4411 @philio66 @pamperthyself have discussed the Medtronic pain pump, and I wonder what their thoughts are about the device?

@pinkpain51, I applaud you for finding your will to live life fully despite your struggles; we have to advocate for our health, and sometimes have to rely on prescription opioids to provide relief. I realize your worry, especially with the current opioid epidemic; what is your doctor’s opinion?

Jump to this post

@pinkpain51 Kristine I wish you improved health and happiness too. As I said before, the thought of unrelenting pain is horrible so I can totally empathize with you. When my daughter gets her migraines now she often calls me because just talking sometimes helps and she knows that since I have been there too that I totally do understand. I just feel guilty that she inherited those genes from me.
JK

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@jimhd we lived in Salem before moving to Bedford. I am happy for you that your daughter will be moving closer to “home”. I sure wish my son in Hermosa Beach would come back but he is enamored with the weather in CA. I suspect at some point he will move away from there though due to the high cost of real estate.
Yes, the drive to Grand Canyon would be very long, much longer than I want to do! We are joining our son in Hawaii in the fall and I had hoped to go through Arizona so we could see Grand Canyon but it turns out that larger airports are four hours from Grand Canyon so it is not feasible for two days. The flights to Hawaii will leave me totally spent though. I plan to have a free day when we arrive so I can just rest up for the rest of the vacation.
JK

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@kanaazpereira

Hello @pinkpain51,

Welcome to Connect; I’m so sorry that you are experiencing such pain, but so glad that you’ve joined this group. And thank you for sharing your history, responding to posts in other discussions, and thinking of others, even though you are in pain.

I’m tagging Connect Mentors, @dawn_giacabazi, @sandytoes14, @johnbishop who are familiar with chronic pain, and I’m certain they will join in with some suggestions to help you.
@mikee @gailb @jenapower @virtuous69 @tompet @contentandwell @briansr @mojoearle @sharonmay7 @medic7054 @salena54 @19lin @jimhd would you be able to share your experiences and insights as well?

@pinkpain51, I would sincerely encourage you to view this information about Mayo Clinic’s Pain Rehabilitation Center (PRC), which has been in operation since 1974, and has helped thousands of people with chronic pain.
I hope @medic7054, who has experienced the benefits of the PRC will return with more information.

@peggyj4411 @philio66 @pamperthyself have discussed the Medtronic pain pump, and I wonder what their thoughts are about the device?

@pinkpain51, I applaud you for finding your will to live life fully despite your struggles; we have to advocate for our health, and sometimes have to rely on prescription opioids to provide relief. I realize your worry, especially with the current opioid epidemic; what is your doctor’s opinion?

Jump to this post

@contentandwell

JK,

I suppose you used the word “guilt” somewhat figuratively, but when I read it, I was reminded of what a therapist told me: Jim, you’re carrying around way too much guilt, and most of it is undeserved.

Being made aware of that, I’ve worked on knowing the difference between deserved and undeserved.

Jim

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@johnbishop

Hello @pinkpain51 – Thank you for sharing your story. I know it must be a daily struggle for you with the pain. I’m hoping the others that have been tagged will be able to share their experience with a pain pump. Last month I went to a neuropathy support group meeting that had a doctor speaking on medical cannabis and chronic pain. We had one Minnesota Neuropathy Association member that has used it for chronic pain with good results. If it’s available where you live it might be worth looking into. There are only 2 labs in Minnesota authorized to grow the plant and extract the oil to use for chronic pain. The doctor giving the presentation helped put Minnesota’s legislature create a plan to make it available to patients with chronic pain. Here is a link to their website – https://leaflinelabs.com/our-medicine/

Hoping for some answers for you. Stay strong and keep asking questions to find a solution that works for you.

John

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I am so glad you were able to take such an amazing trip. I dream of being able to do such things. Positive thoughts help more than negative but sometimes our bodies demand attention. I love the outdoors and hope you get to have a good summer. I planted flowers the other day and had some hummingbirds come to my feeder finally. Hummingbirds inspire me. They are so small but so determined to gaurd their syrup source that they will dive bomb any size bird. They are fearless and I can learn from that. Thank you for sharing:)

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@kanaazpereira

Hello @pinkpain51,

Welcome to Connect; I’m so sorry that you are experiencing such pain, but so glad that you’ve joined this group. And thank you for sharing your history, responding to posts in other discussions, and thinking of others, even though you are in pain.

I’m tagging Connect Mentors, @dawn_giacabazi, @sandytoes14, @johnbishop who are familiar with chronic pain, and I’m certain they will join in with some suggestions to help you.
@mikee @gailb @jenapower @virtuous69 @tompet @contentandwell @briansr @mojoearle @sharonmay7 @medic7054 @salena54 @19lin @jimhd would you be able to share your experiences and insights as well?

@pinkpain51, I would sincerely encourage you to view this information about Mayo Clinic’s Pain Rehabilitation Center (PRC), which has been in operation since 1974, and has helped thousands of people with chronic pain.
I hope @medic7054, who has experienced the benefits of the PRC will return with more information.

@peggyj4411 @philio66 @pamperthyself have discussed the Medtronic pain pump, and I wonder what their thoughts are about the device?

@pinkpain51, I applaud you for finding your will to live life fully despite your struggles; we have to advocate for our health, and sometimes have to rely on prescription opioids to provide relief. I realize your worry, especially with the current opioid epidemic; what is your doctor’s opinion?

Jump to this post

@jimhd, no, not figuratively, but I like the way you have expressed it, it is definitely undeserved. I really do try to be a good person. It’s funny, once a couple of years ago I said to my daughter (33 at the time), kidding, that I thought my doctor thought I was a nicer person than I am. Her eyes got like saucers and she said to me you are a good person, how could you think that? From her that made me feel good.

I did not cause the tragedy that took someone’s life. I did of course benefit from it and sometimes I just feel so bad that there is a family out there grieving when I am celebrating, all due to the same cause.
Thank you for your words of wisdom, I will keep them in mind.
JK

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@kanaazpereira

Hello @pinkpain51,

Welcome to Connect; I’m so sorry that you are experiencing such pain, but so glad that you’ve joined this group. And thank you for sharing your history, responding to posts in other discussions, and thinking of others, even though you are in pain.

I’m tagging Connect Mentors, @dawn_giacabazi, @sandytoes14, @johnbishop who are familiar with chronic pain, and I’m certain they will join in with some suggestions to help you.
@mikee @gailb @jenapower @virtuous69 @tompet @contentandwell @briansr @mojoearle @sharonmay7 @medic7054 @salena54 @19lin @jimhd would you be able to share your experiences and insights as well?

@pinkpain51, I would sincerely encourage you to view this information about Mayo Clinic’s Pain Rehabilitation Center (PRC), which has been in operation since 1974, and has helped thousands of people with chronic pain.
I hope @medic7054, who has experienced the benefits of the PRC will return with more information.

@peggyj4411 @philio66 @pamperthyself have discussed the Medtronic pain pump, and I wonder what their thoughts are about the device?

@pinkpain51, I applaud you for finding your will to live life fully despite your struggles; we have to advocate for our health, and sometimes have to rely on prescription opioids to provide relief. I realize your worry, especially with the current opioid epidemic; what is your doctor’s opinion?

Jump to this post

@contentandwell

JK, I’m certain that the donor’s family’s grief was – the only word that comes to mind is – assuaged, knowing that they were able to give a gift to you that was a blessing and a lifesaver.

Jim

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@kanaazpereira

Hello @pinkpain51,

Welcome to Connect; I’m so sorry that you are experiencing such pain, but so glad that you’ve joined this group. And thank you for sharing your history, responding to posts in other discussions, and thinking of others, even though you are in pain.

I’m tagging Connect Mentors, @dawn_giacabazi, @sandytoes14, @johnbishop who are familiar with chronic pain, and I’m certain they will join in with some suggestions to help you.
@mikee @gailb @jenapower @virtuous69 @tompet @contentandwell @briansr @mojoearle @sharonmay7 @medic7054 @salena54 @19lin @jimhd would you be able to share your experiences and insights as well?

@pinkpain51, I would sincerely encourage you to view this information about Mayo Clinic’s Pain Rehabilitation Center (PRC), which has been in operation since 1974, and has helped thousands of people with chronic pain.
I hope @medic7054, who has experienced the benefits of the PRC will return with more information.

@peggyj4411 @philio66 @pamperthyself have discussed the Medtronic pain pump, and I wonder what their thoughts are about the device?

@pinkpain51, I applaud you for finding your will to live life fully despite your struggles; we have to advocate for our health, and sometimes have to rely on prescription opioids to provide relief. I realize your worry, especially with the current opioid epidemic; what is your doctor’s opinion?

Jump to this post

@jimhd, I have heard that, and also that it helps knowing that a part of their loved one lives on. I told my son and daughter that, both of whom are so grateful that I am alive, and asked that as a mother’s day gift to me they sign up as organ donors, realizing how much it meant to them, that they could “pay it forward”. My son has responded and is about to do that. My daughter has not commented, but then that is typical of her. She could have already done it and not mentioned it.
JK

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