Diplacusis: Anyone else have this?

Posted by cus @cus, Sep 1, 2020

Anyone else has it?
cus

Interested in more discussions like this? Go to the Hearing Loss group.

Please share more information with us so we know what this condition is. Thank you.

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No but I have osteitis pubis and I cannot withstand the pain that goes with it. I have been suffering with this now for about two months and have been in a wheelchair because the pain and stiffness will not allow me to walk. I cannot sleep with the pain and that will surely do me in. The heavy duty pain meds do not help at all with the pain. I wonder if there is an infection with this? At age 83 I think this is it but again, the will to live is very strong.

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Hey, cus. For those who haven't come across this, diplacusis is the perception of a single pitch as two different pitches. It is disconcerting (literally!), to say the least. I had diplacusis for about 6 months back in 2006. I had sudden sensorineural hearing loss and balance issues that started a few months earlier. I was a professional singer, so along with the hearing loss, tinnitus, etc., it wreaked havoc with my life. For me, it played out that my right ear was hearing things normally, but my left ear was like an octave and a half higher. I remember being on a call where I switched the phone from my right to left ear where it sounded fine in the right ear, but when I switched it to left, it was like the person on the other end had just sucked in helium from a balloon. It was very freaky. Mine went away after I lost all the hearing in my left ear later that year. I hope yours subsides more easily.

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Thanks Mark. Very interesting! Cus

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Really sorry to see about your problem. It seems just awful. No pain yet with my diplacusis. Cus

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@julieo4

Please share more information with us so we know what this condition is. Thank you.

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The best approach is to google it and follow the links. It is many facited. Cus

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@julieo4

Please share more information with us so we know what this condition is. Thank you.

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Basically, everything is distorted (even music). It is fairly complicated and the best way to learn the details is to google it up and follow the links. Cus

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So, here'a what I am going through. After going shooting with friends and wearing what I thought was adequate hearing protection, i now have a hum in my head when i talk and a hum or echo after listening to people talk (especially female voices) . I've been to two ENTs who have both told me there was no hearing loss based on a the results from the recent test compared to an older test. They both suggested it would improve. However, its week seven. There ia some improvement but i want to make sure I'm doing everything I can. Also, rooms with background noise make it hard to hear anything but the background noise. Any thoughts on what to do? Any recommendation on a specialist in San Antonio or Austin area?

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As of April 21/22, still have diplacucis. If there is any change, it's worse.
Cus

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@milo41

So, here'a what I am going through. After going shooting with friends and wearing what I thought was adequate hearing protection, i now have a hum in my head when i talk and a hum or echo after listening to people talk (especially female voices) . I've been to two ENTs who have both told me there was no hearing loss based on a the results from the recent test compared to an older test. They both suggested it would improve. However, its week seven. There ia some improvement but i want to make sure I'm doing everything I can. Also, rooms with background noise make it hard to hear anything but the background noise. Any thoughts on what to do? Any recommendation on a specialist in San Antonio or Austin area?

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I found the link below of interest. I'm unfamiliar with this unusual condition referred to as 'double hearing'. The article of reference does say this condition can be temporary or permanent. It also indicates that hearing aids that are fit for this condition may help.

I look forward to further information coming from others on this forum who may have experienced diplacusis.
https://www.amplifon.com/uk/audiology-magazine/diplacusis-syndrome-of-double-hearing

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@cus

As of April 21/22, still have diplacucis. If there is any change, it's worse.
Cus

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Are you familiar with HLAA? There is an active chapter in the Austin TX area. While this condition may not be experienced by members of that chapter, they should be able to provide advice about providers they have had positive experiences with.
Austin, Texas HLAA Chapter
Contact/s:
Carrie Leising AustinHLAA@yahoo.com
Anecia Lockhart AustinHLAA@yahoo.com

HLAA does not endorse or recommend providers or products. Members share their experiences with them.

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@milo41

So, here'a what I am going through. After going shooting with friends and wearing what I thought was adequate hearing protection, i now have a hum in my head when i talk and a hum or echo after listening to people talk (especially female voices) . I've been to two ENTs who have both told me there was no hearing loss based on a the results from the recent test compared to an older test. They both suggested it would improve. However, its week seven. There ia some improvement but i want to make sure I'm doing everything I can. Also, rooms with background noise make it hard to hear anything but the background noise. Any thoughts on what to do? Any recommendation on a specialist in San Antonio or Austin area?

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@milo41, I moved your question to this existing discussion:
– Diplacusis: Anyone else have this? https://connect.mayoclinic.org/discussion/diplacusis/

I did this so you can connect with other members like @cus and @mark888, who can share their experiences and recommendations.

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