Dietary changes for lichen sclerosis
Has anyone had any luck with dietary changes for lichen sclerosis? (blood sugar management, less sugar, intermittent fasting, no dairy, etc) Ironically I have also found that possibly increased blood flow to the area (through bike riding) has seemed to decrease symptoms dramatically.
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
@scarlettoh Hi, is this a new diagnosis for you? Have your doctors been able to help you? I, personally, have not heard of a diet specific to Lichen sclerosis, but i know that many members swear by the AIP (auto-immune protocol) diet. Here is a link:
I also found this support group for lichen sclerosis:
I will see if any other members can help
Will you let me know how you like the diet?
I feel that my LS is under control and I eat just about everything. I occasionally use Clobetasol. Ointment if I sense a bit of a flare up but that doesn’t happen often. What I didn’t understand about my LS was that there is a difference between a flare up of LS and the nerve damage caused by LS that has been undiagnosed and untreated for a long time. The steroid ointment will take care of a flare up but it won’t do anything for the nerve damage which I believe remains permanent. This is an important distinction that needs to be made. I always puzzled over why I had pain even after using the ointment until a new GP prescribed a combination pregabalin and amitriptyline and bingo, pain gone. I realize that not everybody can tolerate these medications, I am just fortunate to have no side effects except occasionally have a dry mouth. The important distinction I am trying to make is that a LS flare up and LS caused nerve damage and pain are two different things and need to be tackled in a medically different way. Dietary changes may reduce flare ups but I doubt that they would tackle nerve damage.
@scarlettoh We can ask the following members if they have any tips on diet for you: @bustrbrwn22 , @sue225 , @artist01, @620
I have not flared since adding collagen powder to coffee daily? Has anyone else noticed a difference?
No but I haven’t tried it either.
Don’t know massaging the area helps , but your right when it is painful it isn’t easy to get rid of.
Yes! I have had great success with dietary changes.
I currently eat no dairy, no flour of any kind, no sugar or artificial sweeteners. I also abstain from caffeine and all grain except for 4 oz of rice a day.
I weigh and measure all of my food. The only time I have had a flare in the last few years of eating like this has been when the 8 oz of fruit I eat per day is overly sweet. ( For example, if I eat watermelon for my fruit several days in a row, I will begin to get itchy.)
I am currently considering giving up the rice since I think it could be contributing to a mild flare.
But on the whole, my experience of eating like this for 7 years, I seldom have flares and use the clobetasol for maintenance.
When I was eating flour and sugar, my lichen schlerosis was out of control.
I followed the link on AIP. But since I'm also pescatarian, it eliminated almost my entire diet! I get nearly all of my protein from legumes, nuts/seeds, eggs and dairy.
Is there any research into developing a testing process for auto-immune sensitivities similar to what is done for allergy testing?
I have LS going on30 years. Fortunately I rarely get a flare now. I have never been a fan of diet changes to deal with a sickness except for high blood pressure and high cholesterol, or diabetics controlling sugar. I pretty much eat what I want and have not associated any flare up as a result of any food but I believe you if you can identify the cause of the problem in your case.
Dietary changes…that depends…each carb/fat/vitamin/mineral etc within us has a different effect on our genes and in waking up our dormant genes…