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Desperately seeking a Specialist for my Oral Lichen Planus
I've been treated for my Oral Lichen Planus with steroids, Hydroxychloroquine, Methotrexate and now Leflunomide. I have limited success and then I have a reoccurrence. I have no idea what retriggers the outbreaks but I'm not sure what to do. I've gone to the dentist. Who sent me to a dental specialist, who sent me to a rheumatologist, who told me to go back to the dental specialist. I'm frustrated and I have no idea what to do next. Are there any studies in the Baltimore area? I would be more than happy to take time off from work to be guinea pig. I'm desparate!
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@melanie3k, @eclecticlz and @sbha someone has just started a discussion thread mentioning a dermatology clinic in Rochester, specializing in out of control Oral Lichen Planus. I am wondering if it is connected to Mayo Clinic in Rochester …
https://connect.mayoclinic.org/discussion/dermatology-clinic-for-olp/
Like most of us, I have done, and continue to do, a lot of detective work trying to figure out the best treatment for OLP. Quite by accident, maybe through the NORD website, I stumbled across a group of dentists who have an interest in OLP. There is lots of info and videos on their website. Baylor College of dentistry in Dallas, TX. Dr. Nancy Burkhart replied to my email and suggested some specialists in my area of California. I suggest you go to that website and review their materials. Then email them and ask for the name of some specialists in your area.
I don't know of any studies. I see Dr. Ahmed S. Sultan, at University of Maryland School of Dentistry, 650 W. Baltimore St., Baltimore, MD Phone (410-706-7961) I am currently on Clobetasol Propionate Gel, 0.05%, 2 times daily as needed, & for now it seems to be working for me. I apply the gel to a plastic device and place in my mouth 30 mins., 2 times daily. Best of luck, I hope you find something that works for you.