Desperate to be free from dependence on Seroquel for sleep

Posted by daddyb60 @daddyb60, May 21, 2021

I suffer from Bipolar 1. Back in 2018 I lost the ability to go to sleep naturally. I was hospitalized twice after being awake for seven days and falling into psychosis as a result. It took 600mg of Seroquel to get me to sleep (which is an off-label use of this antipsychotic.) I have been taking 150-300mg every night since. I am desperate to break this dependence but when I don't take my nightly dose, I don't sleep. The Seroquel has caused me to gain a lot fo weight and I think it actually prevents me from getting into deep sleep. I have tried many of the prescription sleep meds with no success. Can anyone help me find a way to break free? And please don't suggest "Have you tried taking a shower before bed?" Thanks!

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@cehunt57

In regards to the discussion “Desperate to be free from dependence on Seroquel for sleep”, this discussion originally started 2 years ago but has recently generated a lot of comments.

Quality sleep is important for a healthy body. Just like eating and exercise, it takes time to develop habits that promote quality sleep. Some of these habits may include exercise earlier in the day and avoiding strenuous activity before sleeping. Gentle stretching or various types of yoga might help. Follow a healthy diet throughout the day and avoid heavy meals late in the day. Sometimes a small snack is helpful before bed or a soothing decaf beverage. A warm bath or shower can be relaxing before bed. Avoid suspenseful screen time and reading. Meditative devotionals or poetry may be better. As a Christian believer I like prayer, Psalms and Proverbs. Learning relaxation breathing techniques and positive imagery techniques can be helpful.

Unfortunately some people are unable to achieve quality sleep using just the above methods. At times a medication may become necessary. That is when a medical professional provider is absolutely essential! The provider can consider all the options, the patients’ medical history including other conditions/ medications that may affect the situation, interactions etc.

Each person should be treated as an individual. There is no such thing as “one size fits all” for treatment especially mental health treatment. Sometimes a curious thing occurs when a medication classified as one thing actually has an effect on something else. This could be a really great result or a really terrible one. It is the Dr.’s job to consider the benefits and risks of what s/he prescribes. The patient’s job is to ask questions until s/he understands the benefits & risks and is satisfied with the proposed treatment. If s/he becomes dissatisfied with a treatment the provider can help with weaning off of it and switching to something else. Sometimes after being on a particular drug for a long time the body becomes too accustomed to it and it is no longer effective. The Dr. can monitor for these problems and make necessary adjustments.

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My experience lately over the past year is that doctors are busy and don’t always take the time to review your current medication before prescribing or deleting a medication. In 3 occasions the doctor did not review current medications. I now make sure that the doctor reviews my medications. Write down your questions or concerns before you see a doctor so you get the most out of your visit. Research the side effects before you start taking medication. An example…. I went to my general practitioner complaining of a cough with no other symptoms. I was sent for lung cancer testing who sent me to a pulmonologist who prescribed steroids to a diabetic. I was taking Lisinopril that has a common side effect of a cough. I stopped taking it and the cough disappeared

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I had been taking Seroquel for three years. 150 mg for sleep. Gained 55 pounds. And deepens my depression. Provider put me on 40 mg of Latuda ( I have bipolar disorder) and took me off the Seroquel 50mg at a time. Took about three months. I’m only sleeping 6 unbroken hours but it’s getting better. I’ve had no ill effects from the Latuda. It actually makes things a little better. Some nights I do take 1mg of Lorazepam, but that’s down from three everyday. Good luck, Seroquel is a tough one.

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@albiback3

My experience lately over the past year is that doctors are busy and don’t always take the time to review your current medication before prescribing or deleting a medication. In 3 occasions the doctor did not review current medications. I now make sure that the doctor reviews my medications. Write down your questions or concerns before you see a doctor so you get the most out of your visit. Research the side effects before you start taking medication. An example…. I went to my general practitioner complaining of a cough with no other symptoms. I was sent for lung cancer testing who sent me to a pulmonologist who prescribed steroids to a diabetic. I was taking Lisinopril that has a common side effect of a cough. I stopped taking it and the cough disappeared

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Amen!

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@andytheman

Unfortunately, and I’m speaking about myself, benzodiazepines like klonopin, adavan, Xanax, and other benzodiazepines are extremely difficult and may be even be dangerous to get off of. It sometimes takes up to a year to wean off. Withdrawal symptoms are a nightmare. In my opinion, they should be removed from the pharmacies who fills them through your doctor.

Don’t start them is my advice as I’ve been on klonopin (Clonazapan) for years and I’m not able to wean off of. Adavan (lorazepan) is a little bit easier to wean off of. I can't speak about Xanax as I've never been on it.

I take 150 mg of Seroquel at bedtime for sleep and it is working. It makes me fall asleep during the day as well. I need to taper down. I’m also on lamictal in the morning and I don’t know what it’s for.
I recently had a genetics test and results will be discussed at my next psychiatrist appointment. Some say it doesn’t work. Others swear by it so we’ll see how it goes. I’ve also gone from 186 to 207 lbs in 4 months.

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Seroquel is for sure a weight gainer! I'm down from 300 to 100mg. and lost 5 pounds. I'm also worried about Kolonopin and Gabapentin. Can't think clearly @ all. Afraid to decrease Gabapentin for foot pain. I have OCD and afraid won't sleep and do compulsions all nite. What are these Doctors thinking? They aren't.

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@mariajean03

Seroquel is for sure a weight gainer! I'm down from 300 to 100mg. and lost 5 pounds. I'm also worried about Kolonopin and Gabapentin. Can't think clearly @ all. Afraid to decrease Gabapentin for foot pain. I have OCD and afraid won't sleep and do compulsions all nite. What are these Doctors thinking? They aren't.

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I can’t speak about Gabapentin because I’ve never been on it. I’m on 25 mg of seroquel in the morning, I don’t know why. But I’m on 150 mg at bedtime and I sleep about 6 hours a night. Klonopin is 0.5 mg in the morning and 1mg at 4 pm. I also take 150 mg of Wellbutrin in the morning. I’m sleepy all day but when I try to get off either of them my body feels very anxious.
How do I know witch medication should be discontinued? Nobody knows for sure so he keeps prescribing them. I’ve gone from 212 lbs in January to 186 lbs during a 2 month inpatient in a hospital for internal bleeding. I was basically bleeding to death internally (scary stuff). I came home on Feb 22. I immediately went back to my regular medication and I am now 205 lbs so I’m gaining weight from something as I only eat breakfast and dinner. I have diabetes 2 with no diabetic medication and my levels are good. I have a mechanical aortic heart valve replacement. On blood thinners. Recently found an aneurysm in my aortic artery. And it has a tear in it. I need a second opinion on my aneurysm as one hospital transferred me to a trauma hospital for emergency surgery. The trauma hospital doctor said it isn’t bleeding so we feel you are stable enough to be discharged. But you will need to come back to the hospital for surgery but it won’t be an emergency.
He said to see my cardiovascular surgeon ASAP. I did and my doctor for 2 years said I had an aneurysm but don’t worry about it. Now it’s torn and he said “I didn’t see anything, see you in a year what?? He’s claiming he seen nothing despite the fact that he’s been telling me that I had one earlier in the last 2 years. He was annoyed that he had to deal with me as he had patients to get back to. He blew me off!! I asked him as he was walking away “could it burst?” He said it could “but we have ways to deal with that" huh? Isn’t it fatal rather quickly? So do I wait until it Bursts and die or get this 4 cm aneurysm with a tear in it repaired. Don’t forget, he said “see you next year “ I feel like a time bomb ready to go off. 2 surgeons seen it but he hasn’t?

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@chulderman

I have the same problem and honestly, I still take seroquel for other things (unipolar depression adjunct) but there was a time I did not need it. What I did need was ramelteon AND trazadone. It helped a lot.

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What has been your experience with Ramelteon, such as dosage, how long taking, help with sleep, side effects, etc? I've been taking 75-150mg of Trazodone for a while but it doesn't always work so my dr prescribed 8mg Ramelteon. I afraid to take it because it's one of the hypnotic drugs where you can sleepwalk without knowing it.

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@cehunt57

In regards to the discussion “Desperate to be free from dependence on Seroquel for sleep”, this discussion originally started 2 years ago but has recently generated a lot of comments.

Quality sleep is important for a healthy body. Just like eating and exercise, it takes time to develop habits that promote quality sleep. Some of these habits may include exercise earlier in the day and avoiding strenuous activity before sleeping. Gentle stretching or various types of yoga might help. Follow a healthy diet throughout the day and avoid heavy meals late in the day. Sometimes a small snack is helpful before bed or a soothing decaf beverage. A warm bath or shower can be relaxing before bed. Avoid suspenseful screen time and reading. Meditative devotionals or poetry may be better. As a Christian believer I like prayer, Psalms and Proverbs. Learning relaxation breathing techniques and positive imagery techniques can be helpful.

Unfortunately some people are unable to achieve quality sleep using just the above methods. At times a medication may become necessary. That is when a medical professional provider is absolutely essential! The provider can consider all the options, the patients’ medical history including other conditions/ medications that may affect the situation, interactions etc.

Each person should be treated as an individual. There is no such thing as “one size fits all” for treatment especially mental health treatment. Sometimes a curious thing occurs when a medication classified as one thing actually has an effect on something else. This could be a really great result or a really terrible one. It is the Dr.’s job to consider the benefits and risks of what s/he prescribes. The patient’s job is to ask questions until s/he understands the benefits & risks and is satisfied with the proposed treatment. If s/he becomes dissatisfied with a treatment the provider can help with weaning off of it and switching to something else. Sometimes after being on a particular drug for a long time the body becomes too accustomed to it and it is no longer effective. The Dr. can monitor for these problems and make necessary adjustments.

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My PCP only gives 10 minute appointments. I spend more time giving my vitals to the nurse (or assistant). He doesn’t give me enough time to discuss any issues I may have. He talk’s over me and says “yeah yeah” when I start mentioning my health issues. Then he quickly cuts me off during mid question and shakes my hand and runs out of the exam room. As far as Seroquel is concerned I take 25 mg in the morning and 150 mg at night for sleep. They work and I don’t know if they’re considered Benzodiazepines like my Klonopin.
I need a new PCP

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@jenatsky

Glad to hear you were able to accomplish that goal. Out of curiosity do you recall your dreams if you dream?

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Hi I noticed your comment about dreams I'm on sequel and I don't ever dream or I don't remember I'm trying to get off of it I take it to sleep I hate medication.

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If the only reason you’re using it is for sleep you’re correct to want off of it. If you haven’t had a sleep study done you should. Sleep meds should only be used after all other avenues have been tried. Improve your sleep hygiene and improve your sleep. But if you’re having other issues preventing you from obtaining restful sleep you should do something for yourself.

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@andytheman

My PCP only gives 10 minute appointments. I spend more time giving my vitals to the nurse (or assistant). He doesn’t give me enough time to discuss any issues I may have. He talk’s over me and says “yeah yeah” when I start mentioning my health issues. Then he quickly cuts me off during mid question and shakes my hand and runs out of the exam room. As far as Seroquel is concerned I take 25 mg in the morning and 150 mg at night for sleep. They work and I don’t know if they’re considered Benzodiazepines like my Klonopin.
I need a new PCP

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Seroquel is an antipsychotic drug. Do some research about this drug.

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