So happy to find this discussion and so desperate to find out what is wrong with me. I’m so sorry that this is going to be long but I’ll try to shorten it as much as I can. When I was in my twenties up until mid thirties, I had several times of numbness in my left arm, could not see out of my left eye, periodic speech difficulty, and headache. The symptoms would last for the day and go away .I had several Imaging test done and various other test and nothing was found. The doctor at the time eluded to MS but not much else was said and I have not had one of those major incidences since. About 3 years ago to date, I started suffering from extreme fatigue. I shrugged it off as being too busy and doing too much or it was from the thyroid ectomy I had. I knew something was wrong one day when I was exercising I could not get through 15 minutes of my routine. I’ve been exercising for over 20 years and suffered no types of injuries so I knew something was wrong . This is where the quest began. I went to the doctor and explained my fatigue and the other symptoms of lower back pain, stiff neck, hives and nauseous. I started getting allergy shots for the hives, I was sent to infectious disease and a neurologist . My ANA was borderline elevated and blood work showed slightly elevated EBV. I was then sent to a rheumatologist, endocrinologist, a sleep study, a Urologist, Gasteroligist and any test or blood work were normal. During this time I saw a gynecologist because of Irregullarities I was having and no issues were found. I also went to a cardiologist for irregular heart beats but nothing to be concerned with . This was all in the last 2 years. I have now consistently low blood pressure, ridges in my nails, pain in my back, sick stomach, unrefreshed sleep or can’t sleep, I have extremely enlarged dark blue veins, the left side of my body is swollen at times ,I have had hard knots in the bottom of my foot that was hard to walk on ,joint pain, memory loss, speech impediment at times, dry eyes and random twitches in all parts of my body. To date some of the symptoms have lessened but I constantly have the fatigue, swelling and pain in joints. I still have not been able to exercise and when I get sick it’s a horrible recovery. I was diagnosed with CFS but I feel I have way more symptoms than what a person with CFS has.The last thing my primary care told me to do was find a support group for CFS. I’m actually at a loss and have no where else to turn. It’s been so hard to work and remain motivated when 80% of the time i feel like a walking slug.
Thanks for listening and wondering if there is anyone else having the same issues or suggestions. Thanks!