Anyone else dealing with Demodex Mites? What helps?

Posted by medical1question @medical1question, Aug 10, 2022

Four years ago, with no history of any skin issues, I developed overnight red, pustules and papules on my eyebrows. Over the four years, I’ve gone to three dermatology groups known to be selected by other healthcare professionals, and have seen a total of seven practitioners. They have said it’s rosacea, seborrheic dermatitis, or actinic keratosis. I’ve been prescribed expensive new topicals, two different antibiotic courses, etc. Each visit I hear, “Well, you can try this.”

I’m an RN, and I know my body. I keep telling each dermatologist that I believe it could be an infestation or overpopulation of demodex; demodex reproduce at night on your skin (they live in hair follicles) and most evenings my eyebrows begin to itch about the time it’s getting dark. With needle-tipped tweezers, I can pull white cyndrically-shaped mucous-type material attached to a hair follicle. None of the practitioners have followed guidance from an article on the NIH website for ensuring there is a skin scraping or other method to obtain a demodex count. None has acknowledged the damaging effects on self image that abound in the literature for rosacea, with which demodex is associated. This post is in no way to disparage dermatologists in general, but I clearly don’t fit the mold of the repetitive frequently seen five minute visits to which they may be accustomed. Has anyone experienced an overpopulation of demodex? How was it diagnosed and treated? Thank you.

Interested in more discussions like this? Go to the Skin Health Support Group.

@cmcg

Me again…..

So, Inhave set up a zoom for Saturday 4/27 at 11AM ET. The invite is:
https://us04web.zoom.us/j/76192969812?pwd=dVr4d8hbV5jgbkec6elT5X3t

I put in Nancyjg and aljiu. Zoom asks for emails, but let’s try w Mayo initials and see if you can get in w the invite. Anyone is welcome. Our time will be limited to 40 minutes. We can decide if we need more time and or periodic meetings. Let me know if this will work and if you are game for trying it!

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Looks like we need a passcode.

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@gottab

Every time I search this entire site for info on demodex mite help, I get grover's disease. They are not the same. So will you please create a demodex mite group under Skin Health?

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Mtg ID is 761 9296 9812
PW if asked: 8L5G2

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@cmcg

Thought I set it up without a pw, but if prompted:

PW: 8L5G2

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The password isn't working.

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@nancyjg

The password isn't working.

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Is anyone in?

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@gottab

Every time I search this entire site for info on demodex mite help, I get grover's disease. They are not the same. So will you please create a demodex mite group under Skin Health?

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Mtg ID: 761 9296 9812
Code: 8L5G2

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@gottab

Every time I search this entire site for info on demodex mite help, I get grover's disease. They are not the same. So will you please create a demodex mite group under Skin Health?

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Hmmmm….. no one on the zoom. Let me see what else I can do!

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@gottab

Every time I search this entire site for info on demodex mite help, I get grover's disease. They are not the same. So will you please create a demodex mite group under Skin Health?

Jump to this post

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@gottab

Every time I search this entire site for info on demodex mite help, I get grover's disease. They are not the same. So will you please create a demodex mite group under Skin Health?

Jump to this post

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@gottab

Every time I search this entire site for info on demodex mite help, I get grover's disease. They are not the same. So will you please create a demodex mite group under Skin Health?

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I got right in from my phone clicking on the above link.

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@cmcg

Hmmmm….. no one on the zoom. Let me see what else I can do!

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It's never easy with those demodex!

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