1. < Parkinson's Disease

Looking for Information on Deep Brain Stimulation

Posted by sainath aidoor @sainath, Feb 3, 2018

I am 65 years Indian male national being actively employed for the past 41 years in the field of maritime human resource provider having worked for India's two leading shipping companies owning fleet of Oil Tankers. Gas Tankers & Bulk Carriers trading worldwide. Presently self employed as a Marine Consultant. I am suffering from Parkinson's Disease and controlling the same by way of regular daily walk and exercise by way of simple yoga. I would thank you for information on Deep Brain Stimulation.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Dec 31, 2019
In reply to @leftylucy "I know Mayo in Jacksonville does Boston Scientific DBS implantations only. I was one of the..." + (show)
@leftylucy

I know Mayo in Jacksonville does Boston Scientific DBS implantations only. I was one of the first to have it done at Rochester. After 3 months I have not had much improvement. Less dyskinesia, but more tremor, new foot drag,
more bradykinesia. I would love to hear how other B/Sci patients have been doing. My settings are L 1.9 - R 2.1.
I am getting very discouraged.

Jump to this post

Hello @leftylucy

I'm sorry to hear that your DBS has not provided you with the improvement that you expected. I'm wondering if more adjustments are needed in order to solve the problems you are experiencing.

Will you be having more adjustments in the future?

REPLY
1 reply
leftylucy | @leftylucy | Dec 31, 2019
In reply to @hopeful33250 "Hello @leftylucy I'm sorry to hear that your DBS has not provided you with the improvement..." + (show)
@hopeful33250

Hello @leftylucy

I'm sorry to hear that your DBS has not provided you with the improvement that you expected. I'm wondering if more adjustments are needed in order to solve the problems you are experiencing.

Will you be having more adjustments in the future?

Jump to this post

I hope so. Some say it takes up to a year to get properly adjusted. Just hoping to talk to others who have Boston Sci. DBS.

REPLY
leftylucy | @leftylucy | Dec 31, 2019

I know Mayo in Jacksonville does Boston Scientific DBS implantations only. I was one of the first to have it done at Rochester. After 3 months I have not had much improvement. Less dyskinesia, but more tremor, new foot drag,
more bradykinesia. I would love to hear how other B/Sci patients have been doing. My settings are L 1.9 - R 2.1.
I am getting very discouraged.

REPLY
2 replies
Lisa Lucier | @lisalucier | Dec 31, 2019
In reply to @leftylucy "I know Mayo in Jacksonville does Boston Scientific DBS implantations only. I was one of the..." + (show)
@leftylucy

I know Mayo in Jacksonville does Boston Scientific DBS implantations only. I was one of the first to have it done at Rochester. After 3 months I have not had much improvement. Less dyskinesia, but more tremor, new foot drag,
more bradykinesia. I would love to hear how other B/Sci patients have been doing. My settings are L 1.9 - R 2.1.
I am getting very discouraged.

Jump to this post

Hi, @leftylucy - just wanted to let you know I moved your post here to where you were previously discussing the Boston Scientific deep brain stimulation (DBS) implantations so that all your inquiries and experiences with this implant could reside in one place.

Do you have a checkup soon with your Mayo doctor to look at your progress? What kind of timeline did your doctor mention at the time of implantation for potential improvements?

REPLY
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