DAW dorsal arachnoid web

Posted by pmross @pmross, 21 hours ago

My daughter became paralyzed from the waist to her knee. Stanford hasn’t been able to diagnose her after 18 months. Many ct scans, MRI’s and mri with contrast from head to toe. One doctor thought she might have scoliosis. Nothing came of that.

I was reading about DAW and I believe is said if you had previous injury or infection. She had meningococcal infections at 3 years old. Could DAW (dorsal arachnoid web) be the after effects of this?

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gently | @gently | 17 hours ago

pmross, yes. you might pursue specialized imaging. You may need (CT) Myelogram or a high-resolution 3D MRI utilizing heavily T2-weighted CISS or DRIVE sequences. Scans highlighting cerebrospinal fluid flow to visualize the location of the web. You could have second opinion of current imaging by a neurological surgeon with expertise with dorsal arachnoid web.
Nice detective work mom.
Lucky daughter.