1. < Polymyalgia Rheumatica (PMR)
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Daily build up of face fluid

Posted by lionspaw @lionspaw, Jul 25 9:52pm

I am on 17.25mg prednisone for PMR I have tapered from 40mg I am wondering if anyone else has the problem of daily swelling of face & eyes starting about 1 to 2 hrs after dose in the morning & it continues to get worse as the day progresses it affects my eye sight as well & makes me feel really yuk When I get up in the morning I don’t feel it until after I have taken my next dose I do realise that you can get the moon face from it which I have that doesn’t bother me so much but the daily swelling is not nice at all If you have experienced anything like this I would love to hear about it please

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gigilea | @gigilea | Jul 26 10:19am

I've had puffy eyes since I was diagnosed with PMR. It was especially bad this spring with the addition all of the tree pollen where I live. I usually use cold compresses on my eyes/face in the morning and evening which helps. If your eyes are swollen enough to affect your eyesight, I would definitely talk to your Dr. about that. I've tapered to 6 mg prednisone and noticed the fluid retention has reduced as I've tapered.
Hopefully it will get better as you taper, but remember, in general it's best to taper slowly. Also, keep in mind the swelling is not a permanent thing, it will get better!

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kjoed53 | @kjoed53 | Jul 27 7:22am

I was told that there's an Rx we can take if we experience uncomfortable swelling from the prednisone. Have you discussed this with your doctor?

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lionspaw | @lionspaw | Jul 27 8:21pm

thank you No I have never heard of this what is an Rx? Please

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newtogmg75f | @newtogmg75f | Jul 30 10:25am
In reply to @gigilea "I've had puffy eyes since I was diagnosed with PMR. It was especially bad this spring..." + (show)
Profile picture for gigilea @gigilea

I've had puffy eyes since I was diagnosed with PMR. It was especially bad this spring with the addition all of the tree pollen where I live. I usually use cold compresses on my eyes/face in the morning and evening which helps. If your eyes are swollen enough to affect your eyesight, I would definitely talk to your Dr. about that. I've tapered to 6 mg prednisone and noticed the fluid retention has reduced as I've tapered.
Hopefully it will get better as you taper, but remember, in general it's best to taper slowly. Also, keep in mind the swelling is not a permanent thing, it will get better!

Jump to this post

@gigilea hi, I am on prednisone and finally starting to taper down ( for MG not PMR though) but I have been “ depressed, sad, out of my mind ,upset “ etc over my moon face etc and also it has caused a double chin too!! I understand it is supposed to be temporary but it really bothers me. Some people who haven’t seen me for a while have actually not recognized me. And my husband and I have just had our 50 th wedding anniversary and I can’t tolerate getting pictures done. I know this probably seems like being vane and a pity party when I should just be glad I’m alive and have some hope that I will be better in maybe 4-6 months after the taper but still. I’m almost embarrassed to post this but I’m hoping I’m not alone in this type of feeling down about myself. Thanks all!

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gigilea | @gigilea | Jul 30 12:38pm
In reply to @newtogmg75f "@gigilea hi, I am on prednisone and finally starting to taper down ( for MG not..." + (show)
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@gigilea hi, I am on prednisone and finally starting to taper down ( for MG not PMR though) but I have been “ depressed, sad, out of my mind ,upset “ etc over my moon face etc and also it has caused a double chin too!! I understand it is supposed to be temporary but it really bothers me. Some people who haven’t seen me for a while have actually not recognized me. And my husband and I have just had our 50 th wedding anniversary and I can’t tolerate getting pictures done. I know this probably seems like being vane and a pity party when I should just be glad I’m alive and have some hope that I will be better in maybe 4-6 months after the taper but still. I’m almost embarrassed to post this but I’m hoping I’m not alone in this type of feeling down about myself. Thanks all!

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@newtogmg75f Please don't be embarrassed about the post. Thats what we do, support each other.
I had a double chin for a while too. I almost liked it because my neck wasn't wrinkled any more haha! Looking in the mirror and not seeing ourselves as we used to is very upsetting. The worst part is people's comments when they notice something different.
People say stupid things sometimes ( often). For me, noticing a change in the way I look is alarming and made me feel like I was losing my old self! My husband said he didn't notice ( that figures) and really doesn't care anyway about how I look. He still sees the old me. My hair has gotten thinner also. All this can chip away at our self esteem.
If you can afford to, try to find ways to pamper yourself-get a top in your best colors or get your hair done after a massage-things like that. Every day I usually put on a little makeup and earrings and an outfit I'm comfortable in since I'm 72 and retired. Also exercising helps too. I hike and go to physical therapy once a month and do some basic exercises daily. Take care of your bones and get a DEXA scan too. Those are just a couple things you could try.

As for having anniversary photos taken, why not not just smile
and be proud that you have come this far. Who gives a $&@! what anyone thinks.

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newtogmg75f | @newtogmg75f | Jul 30 3:15pm
In reply to @gigilea "@newtogmg75f Please don't be embarrassed about the post. Thats what we do, support each other. I..." + (show)
Profile picture for gigilea @gigilea

@newtogmg75f Please don't be embarrassed about the post. Thats what we do, support each other.
I had a double chin for a while too. I almost liked it because my neck wasn't wrinkled any more haha! Looking in the mirror and not seeing ourselves as we used to is very upsetting. The worst part is people's comments when they notice something different.
People say stupid things sometimes ( often). For me, noticing a change in the way I look is alarming and made me feel like I was losing my old self! My husband said he didn't notice ( that figures) and really doesn't care anyway about how I look. He still sees the old me. My hair has gotten thinner also. All this can chip away at our self esteem.
If you can afford to, try to find ways to pamper yourself-get a top in your best colors or get your hair done after a massage-things like that. Every day I usually put on a little makeup and earrings and an outfit I'm comfortable in since I'm 72 and retired. Also exercising helps too. I hike and go to physical therapy once a month and do some basic exercises daily. Take care of your bones and get a DEXA scan too. Those are just a couple things you could try.

As for having anniversary photos taken, why not not just smile
and be proud that you have come this far. Who gives a $&@! what anyone thinks.

Jump to this post

@gigilea
Thank you so much you were just the person I needed. It’s given me a
Boost!!! 🙏😊❤️

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gigilea | @gigilea | Jul 30 5:56pm

You're welcome! Keep us updated on how you are doing. Best wishes!

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