My daughter is 39 and has episodes of vomiting that last for up to 2 weeks, at first it can be 10/ times an hour for the first 24-36 hrs then it eases but she still vomits up to 2 weeks.
Hi @tiabrooks, You'll see that I moved your post to the discussion that you started earlier. Not only does it bring your post back to the top of the list, but it keeps all like topics together.
I was recently diagnosed with CVS after finding Barrett's Espophagus. I believe I have had this for the past two plus years.
Am already on recommended meds - Pregabalin, Baclofen, Imitrex, Sucralfate, Amitriptyline, and Omeprazole - for Fibromyalgia. Just got PCP to give Hydroxyzine.
Anyone dealing with CVS have other ideas for me to try?
I was recently diagnosed with CVS after finding Barrett's Espophagus. I believe I have had this for the past two plus years.
Am already on recommended meds - Pregabalin, Baclofen, Imitrex, Sucralfate, Amitriptyline, and Omeprazole - for Fibromyalgia. Just got PCP to give Hydroxyzine.
Anyone dealing with CVS have other ideas for me to try?
Hi,
I'm so sorry that you are going through this awful situation and for more than 2 years! Have you considered looking up the side effects of the many medications you are taking for this? Often the side effects of a medication can make things worse.
I wish you the best and will say a prayer for you.
PML
I was recently diagnosed with CVS after finding Barrett's Espophagus. I believe I have had this for the past two plus years.
Am already on recommended meds - Pregabalin, Baclofen, Imitrex, Sucralfate, Amitriptyline, and Omeprazole - for Fibromyalgia. Just got PCP to give Hydroxyzine.
Anyone dealing with CVS have other ideas for me to try?
After two plus years of GI issues (nausea, vomiting, weight loss of 40 # in 4 months), I was diagnosed with CVS.
All of the recommended meds I am on for Fibromyalgia - Amitriptyline, Baclofen, Imitrex, Omeprazole, Pregabalin, and Sucralfate - and wondering if there are more options. Diet, lifestyle, and exercise of course. Is there something I am missing?
I know everyone is different, but there has to be a working solution for most.
After two plus years of GI issues (nausea, vomiting, weight loss of 40 # in 4 months), I was diagnosed with CVS.
All of the recommended meds I am on for Fibromyalgia - Amitriptyline, Baclofen, Imitrex, Omeprazole, Pregabalin, and Sucralfate - and wondering if there are more options. Diet, lifestyle, and exercise of course. Is there something I am missing?
I know everyone is different, but there has to be a working solution for most.
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Wishing you all success, @coquifoife. I'm tagging @aishia @ed32 @blackoutthesun @evgenimat and Mentor @kdubois – I hope they join in with their insights about peroral endoscopic myotomy (POEM).
Has anyone here been diagnosed with Cyclic Vomiting Syndrome? Sometimes referred to abdominal migraines, CVS.
Hi @tiabrooks and welcome to Mayo Clinic Connect. While we haven't had members in a while mention this syndrome we do have an older discussion that talked about it. You can see that here.
https://connect.mayoclinic.org/discussion/cyclic-vomiting-syndrome-2a7201/
Here is what Mayo Clinic has to say about CVS.
https://www.mayoclinic.org/diseases-conditions/cyclic-vomiting-syndrome/symptoms-causes/syc-20352161
How long have you been dealing with this problem?
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1 ReactionLooking for people like me that has (cyclic vomiting syndrome.
Hi @tiabrooks, You'll see that I moved your post to the discussion that you started earlier. Not only does it bring your post back to the top of the list, but it keeps all like topics together.
@concernedmtnmom or @astaingegerdm might be able to weigh in on this topic.
Also here are a couple good articles:
Cyclic Vomiting Syndrome (CVS) Is a Rare Disease in Adults and Children – https://hubpages.com/health/Cyclic-Vomiting-Syndrome-In-Young-Children
Link about G-POEM procedure with 80% success rate to end vomiting https://connect.mayoclinic.org/comment/209289/
Are you asking for yourself because you were diagnosed or is this for someone else?
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2 ReactionsI have been diagnosed with CVS
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1 ReactionI was recently diagnosed with CVS after finding Barrett's Espophagus. I believe I have had this for the past two plus years.
Am already on recommended meds - Pregabalin, Baclofen, Imitrex, Sucralfate, Amitriptyline, and Omeprazole - for Fibromyalgia. Just got PCP to give Hydroxyzine.
Anyone dealing with CVS have other ideas for me to try?
-
Like -
Helpful -
Hug
1 ReactionHi,
I'm so sorry that you are going through this awful situation and for more than 2 years! Have you considered looking up the side effects of the many medications you are taking for this? Often the side effects of a medication can make things worse.
I wish you the best and will say a prayer for you.
PML
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Like -
Helpful -
Hug
2 ReactionsAfter two plus years of GI issues (nausea, vomiting, weight loss of 40 # in 4 months), I was diagnosed with CVS.
All of the recommended meds I am on for Fibromyalgia - Amitriptyline, Baclofen, Imitrex, Omeprazole, Pregabalin, and Sucralfate - and wondering if there are more options. Diet, lifestyle, and exercise of course. Is there something I am missing?
I know everyone is different, but there has to be a working solution for most.
Tagging members like @hsayler @jean64 @bradleymom1967 @kilh @nicolemramirez @concernedmtnmom @glad483118 @okeefe38 @jdd @coppageb who have mentioned cyclical vomiting syndrome to share what has helped them or a loved one with this syndrome. @julsnealey @coquifoife also may have insights to offer.