Does anyone have or know someone who has cyclic vomiting syndrome (abdominal migraines)? I have had it for 2 years and am wondering, can be done to overcome CVS?
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i take dexalant daily for acid and two capsuls of syllium husk at night with lots of water and don’t eat before bed. this helps me reduce the times i vomit. i have a problem with to much mucus as well and if i gag on that it starts all over again.
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My sister has just been diagnosed with this … she is a full time worker and is 49 yrs old, with bills to pay. we are trying to help her also! Let me know what you find out. Is dexalant and syllium husk prescriptions and if not where do you purchase them?
I saw this same illness on Grey’s Anatomy in and older homeless man! My sisters docters told her at one point that it was all in her head! Very frustrating to all of us – especially sine it will wake her in the middle of the night – don’t think its all in her head.
I was diagnosed in 2011. My current abort meds are working so far (30) days.
I was diagnosed in 2011. This syndrome is pure hell. No cure. No Quality of life. Mayo n John Hopkins are my last hope for treatment plans that are successful to manage my CVS.
On Grey's.. the short Dr Bailey. She is our spokesperson for CVS. Her daughter has it.
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