Currently being worked up to rule out Myasthenia Graves vs. SPS.

What if I’m seronegative. That would put me back at square one. But she did prescribe me Baclofen.

I’m waiting for labs to come in that look for MG and SPS. I could not believe it when she mentioned it. I don’t know which one is worse. Right now I’m trying to get hold of an old CT that showed enlarged thymus and an EMG 1-2 years old. She is doing another EMG this Friday. She is waiting for all reports before diagnosing but she plain as day told me what her thoughts were after I told her every weird thing my body has been doing.

From facial weaknesses and Bell’s palsy, eye crossing, double-vision more so at night and horrific spasms mostly in back, legs and feet with a 6 day stint of myopathy after general anesthesia. Bad spasms, muscle twitching to rolling muscles, difficulty with balance - a cane helps. It hurts to walk. My quality of life has gone down. I cant do what I used to do. Not for a while. I try to walk. And its slow going. But it hurts too much.

The neuromuscular doctor said neuropathy would not cause muscle spasms. That got me. I’ve been living for the past two years with horrendous pain, with controlled blood sugars, and thought it was from the falls I’ve been having. Unexplained shortness of breath that isn’t helped with the cpap. Years ago had unexplained excruciating pain while taking breaths in. It eventually resolved over time but it was worse at night, just like the double vision. After I rest for a couple hours the double vision gets better.

Weird things started a long time ago, unexplained pain. First they thought FM. I do have back issues, and autoimmune psoriatic arthritis but it wouldn’t cause the painful tingling.

It sounds like this doctor is on the case. She spent 1 hr and 45 minutes with me. It was a 45 minute appointment.

She had me try to walk without a cane and balance on heals and tip toes. That was not happening. I tried.

So, does anyone with seronegative MG and can you have a combination of ocular mg and general mg? she wants to do another chest ct.
Any ideas? Does any of this sound familiar? I don’t want to end up having convulsions from SPS spasm triggers in my future. I don’t know which one is worse.