Curious about mast cell activation and sleep disturbance

Hi @jillco. Think you may find many under the post covid group who experience this situation with some formally diagnosed with mast cell activation and many others maneuvering their healthcare systems seeking help/diagnosis. My providers explain that our bodies are basically fighting themselves, central nervous system disruption causing sleep and central apnea, newly highly reactive, and new histamine food/drink intolerance that releases about 3am each night🙃. Hope this direction helps you find your answers and quickest healing to you🌈

are you taking any meds/supplements for this? if so, please provide. histamine intolerance is one of my many symptoms in spite of great sleep hygiene and going to be early every night. i do take a histamine blocker, famotidine and either loratadine or citrizine after dinner but at times i'm still getting up at 3am. am also almost 79 so i don't sleep like i did at 40!

I haven’t gotten the right help yet so not on any meds. What histamine blocker do you take?

Dao, Famotidine, alternate between citrizine and loratidine… dealing with various symptoms for nearly 5 yrs and Tues I see an integrated dr but I’m not hopeful she can help

Hi @trnmom1. My body is highly reactive to anything now so I only take Lysine, vitamin C gummy, fish oil and citrulline. Spent couple of years keeping reaction logs etc to anything I consumed and have a very limited daily routine focused around apples, blueberries, chicken etc that I tolerate to lower histamine, inflammation and get protein🙃 I have to use cpap now and have found if Im able to have good day with pacing, I can make it past 2 or 3am for hour or 2 longer sleep and I wear my cpap for 8 hours even while awake for good oxygen🤞. Think youre right too that our bodies normal changing with sleep as aging is tripled in difficulties with all these other symptoms too🙃. Hope any of this helped you🌈