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Crushing fatigue
My husband has sleep apnea and is being treated for that. He didn't use his CPAP but now the mouth device appears to be helping. But he still has crushing fatigue. This has gone on 5? years. He'll sleep 12 hours at night and still take an hour+ nap once or twice a day. It is frustrating and the doctors don't seem to take it seriously. He's being evaluated for Parkinsons because he has some dizziness/balance issues, brain fog and a mild hand tremor (that isn't the typical resting tremor of Parkinsons). But I don't think this type of fatigue is usual with Parkinsons. They did put him on Amantadine which is used for the fatigue in MS and it hasn't helped.
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Did they do a sleep study (even an at-home one) to see how the mouthpiece was working?
The results might tell you a lot.
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1 ReactionI can’t remember if they did last year. But he doesn’t snore anymore and sleeps SO much more quietly and doesn’t thrash around when sleeping anymore, so it would seem to be working.
It sounds like he may have chronic fatigue syndrome, which I have been dealing with for the past 16 years. It does cause crushing fatigue. Unfortunately I also suffer with chronic insomnia so it’s miserable. My sleep study doctor says that with all the medication I take that they can’t give me anything to relieve it.
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1 Reaction@sjde53
Yes, that does sound encouraging.
@mbixler I mentioned chronic fatigue last time at the neurology visit and they just kind of brushed it off.
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1 ReactionNot surprising. I had to fight to get the testing, as they kept saying that the symptoms were from my chronic insomnia. But the symptoms were worse than what I experienced with just the insomnia, as that had been present since I was 12 years old. It’s simple to get tested, so be proactive and keep pushing for the test.
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1 ReactionI didn’t know there was a test for it. What is it?
@mbixler And as far as I know, there is no treatment either, for chronic fatigue syndrome?
@sjde53 Last I heard, this is at least 9 years ago, they were working on a treatment. Whether it was completed or not I’m not sure, as my doctor told me I would not be a candidate because of multiple other medical conditions and medications.
Here are a couple research papers on ME/CFS and treatment
Patient-reported treatment outcomes in ME/CFS and long COVID
https://pubmed.ncbi.nlm.nih.gov/40627388/
Diagnosis and Management of ME-CFS PIIS0025619623004020
https://www.mayoclinicproceedings.org/article/S0025-6196(23)00402-0/fulltext