Cricopharyngeal muscle problem

Posted by praying4miracle @praying4miracle, 5 days ago

Has any one had trouble with their cricopharyngeal muscle and sought treatment?
Mine is strangling me and makes it very hard to swallow. Looking for remedies that will not make my healing journey worse with other complications

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Profile picture for steve55 @steve55

I’ve had serious issues with my cricopharyngeal muscle. I can no longer swallow food or drink. Five months ago I had a Peg feeding tube put in. I avoided it for several years but weight loss and malnutrition forced the decision. I’m still struggling with the quality of life issues.
I had 6 dilations over 2 years and they helped but eventually stopped helping. I also did throat exercises but they eventually were not enough. Everyone is different so if you haven’t look into those procedures I would suggest that you do.
My situation is radiation treatment 23 years ago, I was fine but the last 4 years my condition worsened. Apparently scar tissue is a major problem.

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@steve55 Hello, I'm also on a feeding tube, been 7 mo. now give or take. I had tonsil cancer in July 2015/2016 (cancer free) after 33 treatments, I now have nerve damage 🙁 I adjusted my life and so gratefully i'm here. Fast forward today after 9+ yrs. the nerve damage has affected my speech, eating, no longer can swallow. All my doctors are "Baffled" after so many yrs. I'm having these problems...they all keep telling me all side effect usually happened after the 1st or 2nd yr.

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Profile picture for cskippy @cskippy

@steve55 Hello, I'm also on a feeding tube, been 7 mo. now give or take. I had tonsil cancer in July 2015/2016 (cancer free) after 33 treatments, I now have nerve damage 🙁 I adjusted my life and so gratefully i'm here. Fast forward today after 9+ yrs. the nerve damage has affected my speech, eating, no longer can swallow. All my doctors are "Baffled" after so many yrs. I'm having these problems...they all keep telling me all side effect usually happened after the 1st or 2nd yr.

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@cskippy
After 20 years my problems started and I know this happens to many people. I find it’s not something doctors and researchers spend a lot of time on. I find it frustrating and I too have voice issues. I’m grateful for the extra 20+ years and the feeding tube probably saved my life, But I’m having difficulty dealing with it.

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Profile picture for steve55 @steve55

@cskippy
After 20 years my problems started and I know this happens to many people. I find it’s not something doctors and researchers spend a lot of time on. I find it frustrating and I too have voice issues. I’m grateful for the extra 20+ years and the feeding tube probably saved my life, But I’m having difficulty dealing with it.

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@steve55 I totally understand I have my good & bad days. I did found out, that the treatment I had back in 2015...they no longer using it due to all the side effect. I wish I would've did more research. That being said, I am happy that there's a support group like this one, that we can come and express our feelings. We're all on our own journey but at the sametime on the same journey. 😉

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