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Cricoid (laryngeal) Chondrosarcoma: Anyone else?

Posted by deborahe @deborahe, Feb 25, 2017

I am currently being treated for this rare cancer at Mayo Rochester. Anyone else with this condition?

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jane1962 | @jane1962 | Aug 8, 2025
In reply to @colleenyoung "@jane1962, if you would like to pursue a second opinion at Mayo Clinic, here's how to..." + (show)
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@jane1962, if you would like to pursue a second opinion at Mayo Clinic, here's how to get started http://mayocl.in/1mtmR63

How are you doing with treatment decision making?

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Hi Colleen, yes, I do want to seek a second opinion at Mayo Clinic. Thanks for sending the link and for connecting me with other patients with my diagnosis of laryngeal chondrosarcoma. I was able to chat with Deborah which was very helpful.
Thanks again,
Jane Heinstein

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jeffk | @jeffk | Aug 14, 2025
In reply to @jane1962 "Hi Colleen, yes, I do want to seek a second opinion at Mayo Clinic. Thanks for..." + (show)
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Hi Colleen, yes, I do want to seek a second opinion at Mayo Clinic. Thanks for sending the link and for connecting me with other patients with my diagnosis of laryngeal chondrosarcoma. I was able to chat with Deborah which was very helpful.
Thanks again,
Jane Heinstein

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Jane,

It sounds like you’re getting a second opinion. I am a survivor and thriver. I was told the same thing as you that a laryngectimy was the approach. Fortunately I went to Mayo and found Dr. Moore who saved my functionality on two occasions starting nine years ago. I urge you to seek him out. There is no one better! God speed!

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jane1962 | @jane1962 | Aug 15, 2025
In reply to @jeffk "Jane, It sounds like you’re getting a second opinion. I am a survivor and thriver. I..." + (show)
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Jane,

It sounds like you’re getting a second opinion. I am a survivor and thriver. I was told the same thing as you that a laryngectimy was the approach. Fortunately I went to Mayo and found Dr. Moore who saved my functionality on two occasions starting nine years ago. I urge you to seek him out. There is no one better! God speed!

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Thank you Jeff! I’m so glad to hear that you’re doing well. It’s very comforting to know that there may be an alternative to a total laryngectomy. I have requested an appointment specifically with Dr. Moore, so I hope I get to see him!
Best wishes for your continued good health.
Jane

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kmlnj | @kmlnj | Aug 16, 2025

I hope this is helpful. My condition is different from yours.
My thyroid cancer was outside wrapped around my trachea and cricoid. Post thyroidectomy and a few lymph nodes....there was a 2cm tumor on my cricoid.
I underwent 35 radiation and 6 chemotherapy Treatments. Post treatment, the cancer/object on my cricoid is shrunken and inactive. They will continue to monitor.
Sending healing vibes.

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