Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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Profile picture for rosemariezda @rosemariezda

Do anyone know about Mamma Bears cream for neuropathy.

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Welcome @rosemariezda, There have been a few comments about Mamma Bears cream in another discussion. Here's a link to the different comments using the search function of Connect - https://connect.mayoclinic.org/search/comments/.

Do you mind sharing more about your neuropathy diagnosis and any treatments you have tried?

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Profile picture for betl @betl

This is the first time I’ve posted and have read comments from many with PN. I’ve been diagnosed with idiopathic peripheral neuropathy. The diagnosis was based on results of EMG. I’ve had epidural steroid injections twice to no avail. It started with tingling of feet and has moved to lower legs effecting muscles. I am in pain most of the time and find that I can no longer exercise or take long walks as before. I tried Gabapentin but did not like the side effects so use Aleve sparingly. I have always been quite active and am trying to determine the cause of the neuropathy. My primary care doctor is of the opinion (after review of a complete blood panel and urinalysis and his own testing) that the cause of my leg problems may not be neuropathy connected. He is sending me to see an orthopedic. I have a future appointment with a neurologist also. As for Covid, I had it early in 2021 and had Mono-Clonal antibody treatment. The neurology surfaced in early 2022 and has been present throughout 2022 during which time my condition has worsened. Has anyone been to the Mayo Clinic in Rochester? I am in NC but was a patient at Mayo Clinic in Jacksonville for several years. If no resolution to the cause and/or treatment is determined, I am wondering which Mayo Clinic location would be a better choice. I have read that the Mayo in Rochester specializes in Neurology, although the Jacksonville location would be closer. Any ideas on treatment options that alleviate symptoms would be helpful.

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Your story sounds very similar to mine. Three years ago, coincidentally or not following the first Covid injection symptoms started. In my feet, and now three years later going up my legs. Discomfort never goes away. Gets worse in the afternoon. Have you had an MRI? After two EMG tests they ruled out neuropathy and call this idiopathic what a silly word. I live near Boston so have no info on the South. The one treatment that alleviates my pain are my special socks with get inserts that I keep in the freezer. They are very soft material and the cold feels good. I got them on Amazon. I'm also new to Connect but I'm finding comfort in sharing new information. Good luck to you.

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Profile picture for dorethalorraine @dorethalorraine

Your story sounds very similar to mine. Three years ago, coincidentally or not following the first Covid injection symptoms started. In my feet, and now three years later going up my legs. Discomfort never goes away. Gets worse in the afternoon. Have you had an MRI? After two EMG tests they ruled out neuropathy and call this idiopathic what a silly word. I live near Boston so have no info on the South. The one treatment that alleviates my pain are my special socks with get inserts that I keep in the freezer. They are very soft material and the cold feels good. I got them on Amazon. I'm also new to Connect but I'm finding comfort in sharing new information. Good luck to you.

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AFTER A LOT OF BLOOD WORK AND A DOCTOR CLOSLY LISTENING TO MY PROBLEMS, I HAVE LUPUS WHICH DAMAGED MY NERVES.

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Profile picture for hello2 @hello2

AFTER A LOT OF BLOOD WORK AND A DOCTOR CLOSLY LISTENING TO MY PROBLEMS, I HAVE LUPUS WHICH DAMAGED MY NERVES.

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I'm sorry . That can be a scarey diagnosis. I'm hoping with good medical advisors you'll find your way 🙏

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Profile picture for speercntry @speercntry

I don’t know about the flu vaccine but I believe that the maderna vaccine brought on my trigeminal neuralgia.

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Is your TN causing numbness too, pain or both? Are you treating it?

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Profile picture for hello2 @hello2

HAS ANYONE EXPERIENCED NEUROPATHY AND NERVE PAIN FROM HEAD TO TOE FROM THE VACCINE AND/OR COVID?

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I am almost that is how mine started summer2021. The booster. Not an anti vac person, but am/was in healthcare, and have seen Gillian Bare post vaccines, but wasn't aware of CIDP or Polyneuropathy. My Neuro is not convinced. Still numb from head to toe. No treatment has reversed it. How about you? How long , who's treating/Specialty?

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I have had all the vaccine updates, all from Moderna, and have not noticed any side effects until this year, when 24 hours later I had a distinct progression of numbness in my feet which I still have a month later. This is how my neuropathy, diagnosed way before COVID, has always progressed, sudden progression. I don’t know if this is a coincidence or not and I will still continue to get vaccinated as I imagine having Covid itself will also worsen my neuropathy even more.

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Profile picture for serenafix @serenafix

I have had all the vaccine updates, all from Moderna, and have not noticed any side effects until this year, when 24 hours later I had a distinct progression of numbness in my feet which I still have a month later. This is how my neuropathy, diagnosed way before COVID, has always progressed, sudden progression. I don’t know if this is a coincidence or not and I will still continue to get vaccinated as I imagine having Covid itself will also worsen my neuropathy even more.

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@serenafix
Yes, After the 3rd Covid shot, I have had extreme numbness
and stiffness in my feet and lower legs, mostly in the evening for approx. 4 years now. I have gone through every conceivable treatment, taken large doses of gabapentin for years and nothing has changed. I have always believed that the booster shot (3rd shot) was the cause of all this grief. Has anyone found any treatment or relief yet?

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Profile picture for ograf49 @ograf49

@serenafix
Yes, After the 3rd Covid shot, I have had extreme numbness
and stiffness in my feet and lower legs, mostly in the evening for approx. 4 years now. I have gone through every conceivable treatment, taken large doses of gabapentin for years and nothing has changed. I have always believed that the booster shot (3rd shot) was the cause of all this grief. Has anyone found any treatment or relief yet?

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@ograf49 yes, I got PN after my 2nd Phizer Covid shot. Lots of folks have…..

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Profile picture for sue4 @sue4

@ograf49 yes, I got PN after my 2nd Phizer Covid shot. Lots of folks have…..

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YES!
One hour and forty-five minutes After the 2nd COVID VACCINE March 28 2021, I was unable to walk for 3 months. At first the doctors said it wasn't the vaccine, but after one year when the
next booster was being touted, my Primary Care Physician told me to Never take covid vaccine
with RNA again. My third Vaccine (for travel) was J&J. That was in 2022. I've not taken a vaccine since. My allergy doctor told me to try to get Nova-Vax which is a COVID Vaccine without
RNA, rather a protein compound similar to the flu shot we take every year.
Nove Vax is given around the world and all over the Caribbean. When I visited Sint Maarten
they were giving it for free on the French side of the Island. Do you think they would give it
to an American? NO It is only given to citizens in every country. I'm still searching for it.
The big gun Pfizer in the US has dominated the COVID Vaccine market, unfortunately.

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