Anyone had a problem with neuropathy after receiving the vaccine?

2nd, the first shot I had some minor increase in symptoms and sore arm but lasted only 1-2 days so I was never concerned about getting the 2nd. Helen

We are all different. How awful to have so many dental appointments. I still shudder when I think of my childhood trips to the dentist. My permanent teeth would not come in and the dentist yanked four of my baby teeth out while I was screaming. They flew all over the office. No tooth fairy for me! I became a bit better at the dental visits when I received nitrous oxide. It did not help my brother and he vomited. I know there are so many antibiotics I cannot take. I don't remember all of them. I am now afraid to take the vaccines after reading what some have written on this forum. I was sure I would take them, but I think I need to talk to my doctor. Some of the side effects people have told are just awful! I wish you well as you go forward. My sister and I say, "It is always something." And, it truly is.
@joybringer1

https://jamanetwork.com/journals/jama/fullarticle/2776667 JAMA article of interest to those concerned about vaccine reactions.

Hey, everyone. I've been lying low for a few months, and just came across this discussion. My memory is lousy, but I remember someone was getting a stimulator implant, around the same time as getting the vaccine.

I had an Abbott spinal cord stimulator implant in June of 2017. It was wonderful for the first year. The burning pain in my feet was reduced by 75%. The only medication that had been helping was morphine sulfate contin. I reduced the dosage (big mistake), because the stimulator was helping so much. Year two, I had to have it adjusted by the rep every 3 months. Year 3, it just wasn't doing much.

LastSeptember I had surgery for severe spinal stenosis,, and after recovery, I had the rep recalibrate the stimulator, and it started helping a little, though far from the original 75%. I've been fighting to get the morphine dosage raised back to the pre SCS level, but have only been given a token increase. I'm in the process of finding a way to get a pain pump implant, but the doctor who does it, at OHSU , in Portland, said I need to do a trial of a dorsal root ganglion stimulator first. Yay! Another surgery. But constant pain, at a 5 on a good day, at 8 or 9 on days like today, is a big contributor to the depression and anxiety I've been living with for 20 years.

It's time to let my dog out for her nightly business, and rub lidocaine cream on my feet in bed. I do want to say that I hadn't thought about any possible negative connection between my sfpn and autonomic polyneuropathy and the covid vaccine, which my wife and I are scheduled to have at the end of this month. I'm sure I'll be talking with my therapist about the effect this will have on my mental health at my next session on Wednesday. When you struggle with anxiety disorder, along with depression and PTSD, everything changes. I was never one to worry or to be depressed the first 50 years of my life, so sometimes I'm a stranger to myself.

I hope each of you will stay in touch, so we can be a support team for one another.

Jim

The podcast with Dr. Poland is up to date and very informative. Because it is current you will see how much is now known about 2nd dose side effects that are different depending on age and other situations. I would also recommend that you submit your side effects to
https://vaers.hhs.gov/reportev
The future is dependent on more data from you and me and her and him. Thank you for contributing.

Hi @jimhd nice to hear from you. I would give another stimulator a chance first before trying the pump. What is your reasoning for the pump, ease? Keep in mind no matter how many times you press the button for medication you will never get more than the amount prescribed. As for the vaccine, the side effects are scary. I don’t think the doctors have a handle on it because they just repeat what was said to them( mostly by the vaccine manufacturers). We are all different when it comes to medical history. We look at what we can tolerate to make our decision. Wish you the best. Toni

Yes. Definitely with radiculopathy. Severe negative reaction with 1st Moderna shot, continuous ice cold feet and up to waist, sudden extreme pain and hightened numbness, started 3 to 4 days after vaccine. Experienced strange feeling of nerve agitation, strong burning/tingling sensation, approx.15 minutes after vaccine shot. Confusing, no literature for any such side effects.

Hi Hank, my 2nd dose was last Saturday. No Sxs except for a lot of pain and a little swell at the site. Then, on Monday it started to itch and my muscles became extremely weak and painful if I tried to use them. Other than that, no Sxs. So strange how this didn't happen until two days after my shot of Moderna. Please forgive if this is a repeat. I have 383 emails in my neuropathy group. Oy vei!

I find that cold packs help and heat flares it worse. I take lyrica for the nerve pain which helps but has it's own set of side effects. massaging the lumps also help.

Hi everyone, I received this as an email from The Foundation for Peripheral Neuropathy. It’s not on their website yet and it didn’t work to paste the registration link here...sorry. When you register there is a space to ask a question. So, I put in a question regarding my neuropathy symptoms increasing after the first Covid vaccine. Since I can’t get a concrete answer about the correlation from anyone I’ve decided to risk it and get the second shot tomorrow. I’m just so tired of being in strict lockdown and living in fear of getting the virus. Wish me luck!

Ask the Expert: Managing Peripheral Neuropathy AND a Pandemic
April 1, 2021 2:00-3:00 p.m. ET
Dr. Shanna Patterson, M.D., FPN’s Patient Education Advisor, is Assistant Professor of Neurology at Mount Sinai West in New York City.