COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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@joeyd5641

Helen, did it last 2 weeks after the 2nd shot or 1st? Lacy, it seems most people here experienced significantly worse or new onset of neuropathy after the covid vax

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thank you joey.... i have just had to cancel tooth extraction tomorrow as suddenly realized the lidocaine and pinephrine mix).. MIGHT have been what has ben making my neuropathy gradually worse over the five dentist visits in last five months..where i had the freezing in gum..... am checking into... its frustrating as some people say: oh its not that, we have plenty of patients and they are fine with it: I dont say that to people who are allergic to peanut buttter! so am terrified of getting the vaccine as also have a list of other physical issues... always searching for reasons I have this, reasons I have that.. its driving me mad. And forget about what antibiotics do to my bowels....i try and concentrate on the positive but am gettng a 1 out of 110 on that! J.

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@lacy2

thank you joey.... i have just had to cancel tooth extraction tomorrow as suddenly realized the lidocaine and pinephrine mix).. MIGHT have been what has ben making my neuropathy gradually worse over the five dentist visits in last five months..where i had the freezing in gum..... am checking into... its frustrating as some people say: oh its not that, we have plenty of patients and they are fine with it: I dont say that to people who are allergic to peanut buttter! so am terrified of getting the vaccine as also have a list of other physical issues... always searching for reasons I have this, reasons I have that.. its driving me mad. And forget about what antibiotics do to my bowels....i try and concentrate on the positive but am gettng a 1 out of 110 on that! J.

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Interesting,I too have bowel issues and flaygyl is what started my neuropathy in the first place

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@joeyd5641

Helen, did it last 2 weeks after the 2nd shot or 1st? Lacy, it seems most people here experienced significantly worse or new onset of neuropathy after the covid vax

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2nd, the first shot I had some minor increase in symptoms and sore arm but lasted only 1-2 days so I was never concerned about getting the 2nd. Helen

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@lacy2

thank you joey.... i have just had to cancel tooth extraction tomorrow as suddenly realized the lidocaine and pinephrine mix).. MIGHT have been what has ben making my neuropathy gradually worse over the five dentist visits in last five months..where i had the freezing in gum..... am checking into... its frustrating as some people say: oh its not that, we have plenty of patients and they are fine with it: I dont say that to people who are allergic to peanut buttter! so am terrified of getting the vaccine as also have a list of other physical issues... always searching for reasons I have this, reasons I have that.. its driving me mad. And forget about what antibiotics do to my bowels....i try and concentrate on the positive but am gettng a 1 out of 110 on that! J.

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We are all different. How awful to have so many dental appointments. I still shudder when I think of my childhood trips to the dentist. My permanent teeth would not come in and the dentist yanked four of my baby teeth out while I was screaming. They flew all over the office. No tooth fairy for me! I became a bit better at the dental visits when I received nitrous oxide. It did not help my brother and he vomited. I know there are so many antibiotics I cannot take. I don't remember all of them. I am now afraid to take the vaccines after reading what some have written on this forum. I was sure I would take them, but I think I need to talk to my doctor. Some of the side effects people have told are just awful! I wish you well as you go forward. My sister and I say, "It is always something." And, it truly is.
@joybringer1

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@joybringer1

We are all different. How awful to have so many dental appointments. I still shudder when I think of my childhood trips to the dentist. My permanent teeth would not come in and the dentist yanked four of my baby teeth out while I was screaming. They flew all over the office. No tooth fairy for me! I became a bit better at the dental visits when I received nitrous oxide. It did not help my brother and he vomited. I know there are so many antibiotics I cannot take. I don't remember all of them. I am now afraid to take the vaccines after reading what some have written on this forum. I was sure I would take them, but I think I need to talk to my doctor. Some of the side effects people have told are just awful! I wish you well as you go forward. My sister and I say, "It is always something." And, it truly is.
@joybringer1

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Ha... well at 77 its not a pretty site. My regular dentist was off ill for a year and did not get better.. she was the kindest person, let alone dentist, we ever knew and it was heartbreaking.
So new dentist said 3 teeth out! I went to another one who tried to save the teeth (last August started)and with my tinnitus, unknown pain in both ears waiting for EnT, but also slight hearing loss but can also pick up certain low volume that hurts my ears (hyeracousis) and prior tmj and I get a numb cheek. going through four double-drillings.. I must admit I said The Lord's Prayer to msyelf as it was happening.
The freezing ensured no pain but the noise of drill outside and inside my head was ............. fill in the blank. Now as I say I MIGHT be having reaction to the anaesthetic and they may send me for general anaesthetic... all the time my tooth hurting. That was awful how children were treated.... almost child abuse. I lived in UK then and had free "school dentist" who had the old fashioned rotary drill and NO freezing of gums - we were all crying our eyes out.
Yes @joybringer1 I think it only makes sense that we at least find out what we can before getting the Covid vaccination, especially with other illnesses. Actually, as I am a believer in M.A.I.D. for myself, I would rather my dose go to a young adult/with children whose death would have more of an impact than mine (yes I have given this a lot of thought) and I realize everyone is different but it's my preference: I totally, totally, support those of any age who want to have everything possible done to continue to live on this Earth. Mind you, although I am not scared of dying, I am scared of living in pain and distress as my Mum did and my brother did) but no assisted death allowed in UK and neither of them deserved the pain and suffering (sorry to bring up this subject but it is what it is). Hopefully millions of lives will be saved with the vaccines .. it's the only way out of this ...far too many millions of innocent peoples of all ages have died but for some who are at the brink with other illnesses, the side effects will be the straw that broke the camels back as they say.... am I wrong?
My spouse says he will take it even tho he has had heart bypass surgery 4 months ago and on 13 medications... he doesn't worry about anything..... wish I could be like that!! 🌹

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@lacy2

Ha... well at 77 its not a pretty site. My regular dentist was off ill for a year and did not get better.. she was the kindest person, let alone dentist, we ever knew and it was heartbreaking.
So new dentist said 3 teeth out! I went to another one who tried to save the teeth (last August started)and with my tinnitus, unknown pain in both ears waiting for EnT, but also slight hearing loss but can also pick up certain low volume that hurts my ears (hyeracousis) and prior tmj and I get a numb cheek. going through four double-drillings.. I must admit I said The Lord's Prayer to msyelf as it was happening.
The freezing ensured no pain but the noise of drill outside and inside my head was ............. fill in the blank. Now as I say I MIGHT be having reaction to the anaesthetic and they may send me for general anaesthetic... all the time my tooth hurting. That was awful how children were treated.... almost child abuse. I lived in UK then and had free "school dentist" who had the old fashioned rotary drill and NO freezing of gums - we were all crying our eyes out.
Yes @joybringer1 I think it only makes sense that we at least find out what we can before getting the Covid vaccination, especially with other illnesses. Actually, as I am a believer in M.A.I.D. for myself, I would rather my dose go to a young adult/with children whose death would have more of an impact than mine (yes I have given this a lot of thought) and I realize everyone is different but it's my preference: I totally, totally, support those of any age who want to have everything possible done to continue to live on this Earth. Mind you, although I am not scared of dying, I am scared of living in pain and distress as my Mum did and my brother did) but no assisted death allowed in UK and neither of them deserved the pain and suffering (sorry to bring up this subject but it is what it is). Hopefully millions of lives will be saved with the vaccines .. it's the only way out of this ...far too many millions of innocent peoples of all ages have died but for some who are at the brink with other illnesses, the side effects will be the straw that broke the camels back as they say.... am I wrong?
My spouse says he will take it even tho he has had heart bypass surgery 4 months ago and on 13 medications... he doesn't worry about anything..... wish I could be like that!! 🌹

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@steldove thank you for the web site, there is a lot of information so will take a look tomorrow and see where my concerns are discussed.... have been on this little Ipad most of day and think will give my eyes a rest.... thanks again, J.(Canada)

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Hey, everyone. I've been lying low for a few months, and just came across this discussion. My memory is lousy, but I remember someone was getting a stimulator implant, around the same time as getting the vaccine.

I had an Abbott spinal cord stimulator implant in June of 2017. It was wonderful for the first year. The burning pain in my feet was reduced by 75%. The only medication that had been helping was morphine sulfate contin. I reduced the dosage (big mistake), because the stimulator was helping so much. Year two, I had to have it adjusted by the rep every 3 months. Year 3, it just wasn't doing much.

LastSeptember I had surgery for severe spinal stenosis,, and after recovery, I had the rep recalibrate the stimulator, and it started helping a little, though far from the original 75%. I've been fighting to get the morphine dosage raised back to the pre SCS level, but have only been given a token increase. I'm in the process of finding a way to get a pain pump implant, but the doctor who does it, at OHSU , in Portland, said I need to do a trial of a dorsal root ganglion stimulator first. Yay! Another surgery. But constant pain, at a 5 on a good day, at 8 or 9 on days like today, is a big contributor to the depression and anxiety I've been living with for 20 years.

It's time to let my dog out for her nightly business, and rub lidocaine cream on my feet in bed. I do want to say that I hadn't thought about any possible negative connection between my sfpn and autonomic polyneuropathy and the covid vaccine, which my wife and I are scheduled to have at the end of this month. I'm sure I'll be talking with my therapist about the effect this will have on my mental health at my next session on Wednesday. When you struggle with anxiety disorder, along with depression and PTSD, everything changes. I was never one to worry or to be depressed the first 50 years of my life, so sometimes I'm a stranger to myself.

I hope each of you will stay in touch, so we can be a support team for one another.

Jim

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@colleenyoung

@joeyd5641, you may be interested in this podcast with Dr. Gregory Poland, Mayo Clinic infectious diseases expert.
- Tackling the latest COVID-19 topics https://connect.mayoclinic.org/page/podcasts/newsfeed-post/tackling-the-latest-covid-19-topics/

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The podcast with Dr. Poland is up to date and very informative. Because it is current you will see how much is now known about 2nd dose side effects that are different depending on age and other situations. I would also recommend that you submit your side effects to

https://vaers.hhs.gov/reportev

The future is dependent on more data from you and me and her and him. Thank you for contributing.

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@jimhd

Hey, everyone. I've been lying low for a few months, and just came across this discussion. My memory is lousy, but I remember someone was getting a stimulator implant, around the same time as getting the vaccine.

I had an Abbott spinal cord stimulator implant in June of 2017. It was wonderful for the first year. The burning pain in my feet was reduced by 75%. The only medication that had been helping was morphine sulfate contin. I reduced the dosage (big mistake), because the stimulator was helping so much. Year two, I had to have it adjusted by the rep every 3 months. Year 3, it just wasn't doing much.

LastSeptember I had surgery for severe spinal stenosis,, and after recovery, I had the rep recalibrate the stimulator, and it started helping a little, though far from the original 75%. I've been fighting to get the morphine dosage raised back to the pre SCS level, but have only been given a token increase. I'm in the process of finding a way to get a pain pump implant, but the doctor who does it, at OHSU , in Portland, said I need to do a trial of a dorsal root ganglion stimulator first. Yay! Another surgery. But constant pain, at a 5 on a good day, at 8 or 9 on days like today, is a big contributor to the depression and anxiety I've been living with for 20 years.

It's time to let my dog out for her nightly business, and rub lidocaine cream on my feet in bed. I do want to say that I hadn't thought about any possible negative connection between my sfpn and autonomic polyneuropathy and the covid vaccine, which my wife and I are scheduled to have at the end of this month. I'm sure I'll be talking with my therapist about the effect this will have on my mental health at my next session on Wednesday. When you struggle with anxiety disorder, along with depression and PTSD, everything changes. I was never one to worry or to be depressed the first 50 years of my life, so sometimes I'm a stranger to myself.

I hope each of you will stay in touch, so we can be a support team for one another.

Jim

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Hi @jimhd nice to hear from you. I would give another stimulator a chance first before trying the pump. What is your reasoning for the pump, ease? Keep in mind no matter how many times you press the button for medication you will never get more than the amount prescribed. As for the vaccine, the side effects are scary. I don’t think the doctors have a handle on it because they just repeat what was said to them( mostly by the vaccine manufacturers). We are all different when it comes to medical history. We look at what we can tolerate to make our decision. Wish you the best. Toni

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