COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

I found an interesting reddit thread today. It was in the covid ling haulers thread where a guy popped in describing exactly my symptoms (which apparently aligns with most covid ling haulers). His doctor immediately believed him and what he thought was a correlation directly to the vaccine.

He specified that the protein spike that people get with covid AND all of the current vaccine can make your immune system wonky and actually attack itself.

His doctor recommended glucosamine/chindrotin, plus MSM, plus turmeric.

It seems that the Bromelain may be helping me a bit, but it is tearing my stomach up. I purchased the g/c/msm and will be receiving it Sat. Just another thing to try.

Here's the link to the reddit thread if anyone wants to check it out:

https://www.reddit.com/r/covidlonghaulers/comments/nmiqlw/reducing_inflammation_in_the_body_for_symptom/?utm_medium=android_app&utm_source=share

It also contains this young man's "recipe" which seems to have worked wonders for him.

I'll report back if I learn more and report my progress.

REPLY

Hi all. Iam male.
I live in the uk.
I received my first Pfizer jab feb 25th. 3 weeks later I developed a huge headache with swollen neck.
This lasted 5 days oh I thought I was dying.
Then 3 weeks after 2 jab , I developed freezing cold feet, which travelled into my calf and knees, I can describe it as like frostbite pins needles with intense burning on top of feet.

Also my face felt chilled like ice feeling.
I also developed numbness in my right side of face affecting my upper lip.
Also slight numbness in finger tips, also muscle wasting between thumb and for finger.

Saw a specialist in July who told me, it’s caused by the ingredient in the Pfizer–BioNTech jab.
Polyurethane glycol.
And he was seeing more people coming forward.

Scheduled for a biopsy September.

Feeling scared angry.

REPLY
@terrys999

Hi all. Iam male.
I live in the uk.
I received my first Pfizer jab feb 25th. 3 weeks later I developed a huge headache with swollen neck.
This lasted 5 days oh I thought I was dying.
Then 3 weeks after 2 jab , I developed freezing cold feet, which travelled into my calf and knees, I can describe it as like frostbite pins needles with intense burning on top of feet.

Also my face felt chilled like ice feeling.
I also developed numbness in my right side of face affecting my upper lip.
Also slight numbness in finger tips, also muscle wasting between thumb and for finger.

Saw a specialist in July who told me, it’s caused by the ingredient in the Pfizer–BioNTech jab.
Polyurethane glycol.
And he was seeing more people coming forward.

Scheduled for a biopsy September.

Feeling scared angry.

Jump to this post

Hi there. I'm sorry to hear your situation. Doctors are gradually figuring things out but it's probably not PEG, which can cause instant allergic reactions, and is the reason you have to wait 15 mins after injection. It's more likely because the spike protein (the thing the vaccine actually makes) remains in your body for several weeks after vaccination. In some cases this causes neuropathy, which feels like burning, because the spike protein can get attached to peripheral nerves, which the body reacts to. In rare cases, this can also lead to autoimmune reactions where the body attacks its own nerves. This typically leads to a numb feeling. There aren't any tried and tested solutions yet but in the meantime I suggest trying bromelain. It helped me. It is thought to potentially snip the spike protein, maybe making it less reactionary and helping the body to remove it. Unfortunately, we're all lab rats at the moment but getting covid without being vaccinated might be a lot worse.

REPLY
@littlenoise

I found an interesting reddit thread today. It was in the covid ling haulers thread where a guy popped in describing exactly my symptoms (which apparently aligns with most covid ling haulers). His doctor immediately believed him and what he thought was a correlation directly to the vaccine.

He specified that the protein spike that people get with covid AND all of the current vaccine can make your immune system wonky and actually attack itself.

His doctor recommended glucosamine/chindrotin, plus MSM, plus turmeric.

It seems that the Bromelain may be helping me a bit, but it is tearing my stomach up. I purchased the g/c/msm and will be receiving it Sat. Just another thing to try.

Here's the link to the reddit thread if anyone wants to check it out:

https://www.reddit.com/r/covidlonghaulers/comments/nmiqlw/reducing_inflammation_in_the_body_for_symptom/?utm_medium=android_app&utm_source=share

It also contains this young man's "recipe" which seems to have worked wonders for him.

I'll report back if I learn more and report my progress.

Jump to this post

Maybe taking bromelain with food could help settle your stomach? You could also lower the dosage to maybe just one or two a day? There's no exact protocol for this...

REPLY
@jard

Maybe taking bromelain with food could help settle your stomach? You could also lower the dosage to maybe just one or two a day? There's no exact protocol for this...

Jump to this post

Yeah... I'm giving that a try now. But my stomach hates me right now.

REPLY
@terrys999

Hi all. Iam male.
I live in the uk.
I received my first Pfizer jab feb 25th. 3 weeks later I developed a huge headache with swollen neck.
This lasted 5 days oh I thought I was dying.
Then 3 weeks after 2 jab , I developed freezing cold feet, which travelled into my calf and knees, I can describe it as like frostbite pins needles with intense burning on top of feet.

Also my face felt chilled like ice feeling.
I also developed numbness in my right side of face affecting my upper lip.
Also slight numbness in finger tips, also muscle wasting between thumb and for finger.

Saw a specialist in July who told me, it’s caused by the ingredient in the Pfizer–BioNTech jab.
Polyurethane glycol.
And he was seeing more people coming forward.

Scheduled for a biopsy September.

Feeling scared angry.

Jump to this post

I had the Pfizer shot as well on March. And then the second. Nothing, nothing out of the ordinary. Perhaps it brought to light for you some underlying condition. Good luck with biopsy. Don’t forget, you might have already died without the shot. Don’t regret having got it.

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@rnlorena

could it be sciatica shooting down your leg.

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I thought it could be that too. But, the sciatica runs down the back of your leg, my pain is at the front. The pain has also moved, it’s still in the front right thigh, but it’s in the right groin area, the right buttocks, my whole right hip area and yesterday it started constant stabbing a pains in my right knee. And I feel it in my right calf. I also went to a chiropractor, she said this is not the sciatica, I still have no idea what it is. I’m still trying to get to a specialist, but my primary doctor has been on vacation till tomorrow. I have an appointment on Friday.

REPLY

I had the J&J, but I also had chemotherapy treatment after getting the vaccine, and found out that I ended up with the neuropathy from the chemotherapy treatments. My oncologist said it would go away. I read it could take 3-5 months after treatment and then maybe only partially go away. You didn't mention having cancer or treatments even, so I guess this information can't help you. Better health for you I hope.

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@tracysky

I thought it could be that too. But, the sciatica runs down the back of your leg, my pain is at the front. The pain has also moved, it’s still in the front right thigh, but it’s in the right groin area, the right buttocks, my whole right hip area and yesterday it started constant stabbing a pains in my right knee. And I feel it in my right calf. I also went to a chiropractor, she said this is not the sciatica, I still have no idea what it is. I’m still trying to get to a specialist, but my primary doctor has been on vacation till tomorrow. I have an appointment on Friday.

Jump to this post

hope you get it figured out soon

REPLY

Hello. I received my first Pfizer vaccine on April 25 and since then have had a really rough go of it. July & August were my worst months (in and out of the hospital). I have been diagnosed with vestibular and autonomic disorders, neuropathy & MCATS. What I most want to know from this group is anyone’s vaccine induced neuropathy getting better? Has anyones neuropathy issues resolved? And if not, how are you best managing them? Also, does anyone here have autoimmune based neuropathy? Thank you.:)

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