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Anyone had a problem with neuropathy after receiving the vaccine?
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
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Wow... Our stories are so very similar. I would love to know more about your story.
Your story is very similar and helpful! I haven’t had testing done, as my doctor is convinced it’s shot related inflammation. However, with the worsening symptoms, I’m thinking we may end up testing. I have a lot of fluid retention and lethargy with Gabapentin, which aggravates my heart condition, so am trying to stay off it. We’ll see where we go from here. Hope you continue to improve!
Update: There has been no resolution of symptoms after 2 months. Actually, the intermittent paresthesia in the arms/hands has progressed to symptoms consistent with CTS. The immune response from the vaccine definitely inflicted damage to the median and peroneal nerves. There is no doubt about it. It feels like the median nerve damage could possibly resolve over time, but I am almost certain the progressed peroneal nerve damage will not. Not on its own. The former is intermittent, the latter is constant.
Extensive lab work returned mixed results. No vitamin deficiencies or toxicities. Standard inflammation markers(CRP, CRP-HS, ESR) are in the optimal range. A1c well below the pre-diabetes threshold. homocysteine levels, however, are elevated. Elevated homocysteine is typically associated with vitamin B deficiencies--but i have none of that--but the literature also suggests it is a reliable marker for PN.
Treatment at this point consists of physician supervised lab work, a scheduled neurological exam in November and medical laser treatment. The medical cold laser therapy might be of some significant therapeutic benefit if you do it done every day for 6 months to a year. So, just shell out about 10K for a used medical laser on eBay and do it yourself. That would be more cost effective than having it done at the doc's office(1K/month, 3 days/wk). Any further aggressive alternate treatments will depend on the neuro exam diagnosis.
Interestingly enough, I was already pretty fit before this happened. But I have since gone on TRT. So apart from problems feeling my feet and the median nerve irritation, I feel pretty good. The damage is sensory, not motor. There is no real impediment to exercise. However, there will be no more shots for me. Ever. Again. For any vaccine. I had all the childhood inoculations, but this is the first vaccine as an adult. And this happens.
I began having numbness and tingling after Covid vaccine. After seeing neurologist I was told he had seen this with other patients. Labs ordered revealed I had MGUS which can also cause peripheral neuropathy. I am still having some symptoms 6 wks post vaccine. Have you learned any more about this since your original question?
I began having numbness and tingling after a Covid vaccine? Has anyone experienced the same symptoms and how long did this last?
I had my Covid shot Moderna in Jan & Feb. I got Covid arm a week after the first shot. My left thigh also had a very sensitive, tingling sensation. I had shingles there years ago and it was the same feeling. Then my upper left back had the same feeling. I felt sure it was shingles and maybe the shot activated the virus in me. I did take Valtrex, never broke out with the blisters but the strange feeling has not gone away.........and it has been months. I have been to a doctor, He said it had something to do my spine and sent me to physical threrapy. Everything they did made it worse.....including dry needling into the muscle. Weeks after the dry needling I took a hot shower due to the pain and broke out with a red rash everywhere the needles went in. Similar to shingles but not as painful. I am 76, female and in excellent health. I do think the vaccine caused all this but no one in believes me. I don't know what the shot did, but I think it has something to do with the nerves. I will NOT the booster. Anyone else have this problem.
@sdf2000 the similarities in our conditions are amazing, except that I have hardly any arm/hand involvement any more. I am coming around to the same way of thinking about vaccines as well, which constitutes a huge change for me. Have been a very big proponent of this vaccine, but I feel no more will be in order for me.
Thank you for sharing your experience, sounds VERY SIMILAR to my story, and seems you have had same thoughts that I do.
I guess all these symptoms are post covid?
I'm 2 1/2months post covid, I too had, and have, the bruising and nerve issues, including DDD in spine and neck, tingling, numbness, in hands, arms and legs (seems to come and go, changing intensity. As you said, difficult to explain precisely. Im on Mobic too, (I know Cymbalta well, Gabapenton too.) I was precovid diagnosed with Fibromyalgia. I also had head pressure and Vertigo seeing ENT first time today.
Hard to keep calm and patient when you're dealing with chronic pain and anxiety and the stress with these symptoms.
BTW, I had Moderna vaccine. No one wants to points blame of my symptoms POST-COVID to the vaccine but the virus itself. I was sick day 21 AFTER SECOND vaccine.
Keeping fingers crossed for answers.
Today marks 5 months since my 2nd Moderna shot. Neuropathy that began right after has not gotten any better with time, but the opposite. Have been to the neurologist 3 times now, had all the testing and labs. All negative, no nerve damage. Doctors still refuses to blame vaccine or prior Covid for any of this. I am 53 with no prior health issues. The burning and numbness in feet and toes has slowly progressed up my ankles and calves. I now have same in wrists and starting in my fingers. I have constant feeling of stepping on rocks under balls of my feet when I walk. Also a feeling of tingling in my left ear and nostril. Constant sneezing. Sometimes feeling of something crawling on my right arm and leg, always in the same area. Doctor now says he thinks I have restless leg syndrome????? Put me on meds for that. Makes my legs heavy at night, but burning doesn’t go away. I don’t think this is RLS. Anyway, 5 months and not getting any better. My hope is dwindling as my quality of life slowing diminishing. Doctor makes me feel like I’m crazy. My husband is a neuro radiologist, thank God he sees me everyday and sees what I have been experiencing and let’s me know it’s not all in my head. Thinking I want to get tested for MS. Wish I lived in an area with better healthcare resources. I’m very pro vaccine, but will not be getting any boosters.
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1 ReactionMine lasted 3 months . Every week that went by was a little bit better but it was still scary . My doctor suggested I stay away from alcohol and any other foods/drink that cause inflation .