COVID-19 and Holidays

Posted by Merry, Volunteer Mentor @merpreb, Oct 9, 2020

The first holiday to come upon us is at the end of this month. It is Halloween. This means lots of kids, who wear masks, who don't wear masks, who went back to school or who didn't. We live on a dead-end and really don't get a lot of kids unless they are accompanied by their folks. We also get older kids later on. I have to confess I have only thought about this once, but @bustrbrwn22 mentioned this in a post this AM. I think that it deserves its own discussion.

I don't think that we will be turning on our outdoor lights to welcome any tricks or treats. I will not be jeopardizing surviving 23 years of lung cancer to anyone if I can help it. I love and adore kids but they will have to do without my candy this year. I think that it is too risky for everyone.

I know that this sounds hard but the world has changed and we all have to adapt to it. What will you do about this holiday?

@bustrbrwn22

@merpreb I used to be ok with vaccines until I noticed myself gettting sick for a week after every flu shot. The stories about neuropathy starting after shingles vaccinations has scared me from it and I had an extremely mild case maybe 10 years ago. Can you please let us know how your husband feels after his shots? I just can’t imagine adding more neuropathy pain on top of what I already have. Thanks for sharing. And also how the Covid vaccine goes?

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@bustrbrwn22– I know that the shingles vaccine can cause side effects. Are you talking about the new one that does not have a live virus or the old one? Mine was the old one and I was just told that I still needed to get the 2 shots of the new one. I might even get the first one today. Dave hasn't gotten him yet and will be speaking with his dr. in the next couple of weeks.
I'll let the world know, lol, after I am vaccinated!

@hopeful33250 recently had shingles and she can tell you about her experience, I hope.

What is your neuropathy from?
https://www.cdc.gov/vaccines/vpd/shingles/public/shingrix/index.html

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@merpreb

@bustrbrwn22– I know that the shingles vaccine can cause side effects. Are you talking about the new one that does not have a live virus or the old one? Mine was the old one and I was just told that I still needed to get the 2 shots of the new one. I might even get the first one today. Dave hasn't gotten him yet and will be speaking with his dr. in the next couple of weeks.
I'll let the world know, lol, after I am vaccinated!

@hopeful33250 recently had shingles and she can tell you about her experience, I hope.

What is your neuropathy from?
https://www.cdc.gov/vaccines/vpd/shingles/public/shingrix/index.html

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@merpreb I would be thinking of the new vaccine that I think is a 2 parter
I apologize for my ignorance of my condition I always just refer to it as sciatica. My S1 nerve is hitting a/some vertebrae that isn’t best served by surgery according to neurologists I’ve seen. That’s ok surgery would scare me. Seems like sometimes the pain is worse after from some postings I’ve seen. I am now trying myofascial release therapy and doing the exercises prescribed dutifully. I’ve tried everything else I’ve heard about. For some reason I really believe this therapy will help. Along with cortisone injections I receive. I hope my expectations of the therapy are realistic but all you can do is whine for a couple days and then keep researching for “cures”. The people I’ve met on this forum have given me hope and relief from my loneliness as I’m usually in bed more hours than I’m upright due to the pain.

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@merpreb

@bustrbrwn22– I know that the shingles vaccine can cause side effects. Are you talking about the new one that does not have a live virus or the old one? Mine was the old one and I was just told that I still needed to get the 2 shots of the new one. I might even get the first one today. Dave hasn't gotten him yet and will be speaking with his dr. in the next couple of weeks.
I'll let the world know, lol, after I am vaccinated!

@hopeful33250 recently had shingles and she can tell you about her experience, I hope.

What is your neuropathy from?
https://www.cdc.gov/vaccines/vpd/shingles/public/shingrix/index.html

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Hi Mary, this is migizii…..I have been reading about people’s experiences having shingles but the article posted here about the shingles vaccine sounds rather alarming. How would one know if you had that previous condition to not take the vaccine? The side effects happen to 1 in 6 people which is a very high ratio and neuropathy from a vaccine would be terrible. I was seriously considering getting the vaccine, in spite of having to pay for the entire thing (due to my limitations on Medicare) but I have a good deal of apprehension now. I have taken many other vaccinations without incident, although my 92yr old mother hasn’t taken any and has never contracted any serious illnesses. I understand the decision is mine, but is there any other information to consider? Thx for listening and I am grateful for everyone’s input!

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@migizii

Hi Mary, this is migizii…..I have been reading about people’s experiences having shingles but the article posted here about the shingles vaccine sounds rather alarming. How would one know if you had that previous condition to not take the vaccine? The side effects happen to 1 in 6 people which is a very high ratio and neuropathy from a vaccine would be terrible. I was seriously considering getting the vaccine, in spite of having to pay for the entire thing (due to my limitations on Medicare) but I have a good deal of apprehension now. I have taken many other vaccinations without incident, although my 92yr old mother hasn’t taken any and has never contracted any serious illnesses. I understand the decision is mine, but is there any other information to consider? Thx for listening and I am grateful for everyone’s input!

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@migizii. I had the "old" shingle vaccine and one dose of the new vaccine. I didn't have the second dose because my pharmacy ran out of it and then covid started. I wonder if I have to do it all over again. I did not have any adverse reaction other than my arm was sore. I did have shingles many many years ago after an automobile accident. Shingles are often brought on by stress. It was on my neck area. The water from the shower felt like needles. I had to wear button my shirt up all the way to cover it. I was not a happy camper. Since then, I am always worried when I'm under stress, of course this covid doesn't help. I have Medicare too, and I did not pay for the first dose. Check with your insurance company again. I'm surprise you have to pay for it since I didn't.

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@migizii

Hi Mary, this is migizii…..I have been reading about people’s experiences having shingles but the article posted here about the shingles vaccine sounds rather alarming. How would one know if you had that previous condition to not take the vaccine? The side effects happen to 1 in 6 people which is a very high ratio and neuropathy from a vaccine would be terrible. I was seriously considering getting the vaccine, in spite of having to pay for the entire thing (due to my limitations on Medicare) but I have a good deal of apprehension now. I have taken many other vaccinations without incident, although my 92yr old mother hasn’t taken any and has never contracted any serious illnesses. I understand the decision is mine, but is there any other information to consider? Thx for listening and I am grateful for everyone’s input!

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@migizii– Well I had it yesterday and I am ill. My arm hurts and so does the rest of me. I have a fever. I decided to get it because I've known people who have had shingles and they hurt a lot more than I do.

It's pretty much against the human grain to purposely go get something that will make you ill. I get that. But I feel the need to be protected from it. If I begin to feel worse I might change my opinion about the second shot.

Of course the decision is yours to make. Weighing the pros and cons is pretty tough, eh?

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@merpreb

@migizii– Well I had it yesterday and I am ill. My arm hurts and so does the rest of me. I have a fever. I decided to get it because I've known people who have had shingles and they hurt a lot more than I do.

It's pretty much against the human grain to purposely go get something that will make you ill. I get that. But I feel the need to be protected from it. If I begin to feel worse I might change my opinion about the second shot.

Of course the decision is yours to make. Weighing the pros and cons is pretty tough, eh?

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@hopeful33250 – Teresa is there a chance that you can describe your experience with shingles?

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@merpreb

@hopeful33250 – Teresa is there a chance that you can describe your experience with shingles?

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Hi, @merpreb as well as @migizii @bustrbrwn22 and others who are considering the newest Shingles vaccine (the 2 part vaccine). I had the vaccine about 1 1/2 years ago. I didn't feel all that great afterward. I recall having a sore arm, being fatigued, and generally feeling flu-like. I don't recall any neuropathy, though.

However, this year, I did have a case of shingles. it really did surprise me, but I later found out that 10% of people who get this newest vaccine will still get shingles. I was told that my case was mild (only a few small lesions) however the pain was terrible. It took several meds before I found relief. If this was a mild case, with only a few lesions, I can't imagine what a heavy case of shingles would be like.

To be vaccinated or not, is a personal decision. I usually always get every vaccine available.

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@bustrbrwn22

@merpreb I would be thinking of the new vaccine that I think is a 2 parter
I apologize for my ignorance of my condition I always just refer to it as sciatica. My S1 nerve is hitting a/some vertebrae that isn’t best served by surgery according to neurologists I’ve seen. That’s ok surgery would scare me. Seems like sometimes the pain is worse after from some postings I’ve seen. I am now trying myofascial release therapy and doing the exercises prescribed dutifully. I’ve tried everything else I’ve heard about. For some reason I really believe this therapy will help. Along with cortisone injections I receive. I hope my expectations of the therapy are realistic but all you can do is whine for a couple days and then keep researching for “cures”. The people I’ve met on this forum have given me hope and relief from my loneliness as I’m usually in bed more hours than I’m upright due to the pain.

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@bustrbrwn22– I get flare up of sciatica too. It's one of the most painful things, right? I know less than you do which of my v's is pressing on that nerve. PT will help.
https://www.healthline.com/health/back-pain/sciatic-stretches#reclining-pigeon-pose
Do you have any exercises that you know of to help stretch that area?

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@merpreb

@bustrbrwn22– I get flare up of sciatica too. It's one of the most painful things, right? I know less than you do which of my v's is pressing on that nerve. PT will help.
https://www.healthline.com/health/back-pain/sciatic-stretches#reclining-pigeon-pose
Do you have any exercises that you know of to help stretch that area?

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@merpreb after 3 years and $10k’s of dollars and different PT’s I found one that did dry needling that helped in only 1 specific spot in my butt. This was awesome though cause I didn’t realize I had been going to the bathroom on only one cheek for years! If the therapist gets a spot that is afflicted the pain is intense when he dry needling. There is light screaming involved. He also said the stretches were probably making it worse so I do very few like the cat cow and child’s pose. Something about the unusual placement of my S1 through my muscle. When I do the pidgeon I pay for it. In the meanwhile the pain just gets worse I buy custom orthotics but podiatrists have said my gait is correct and it isn’t plantar fasciitis but it makes walking softer. I know I must walk daily but right after I do that’s when the pick axes start on the bottom of my feet up the sides of my calves and right hammie and butttock. I treated myself to a Bluetooth TENS unit but it’s still a slight pain in the ass using it but no tripping on wires! am hoping this new myofascial therapy I’m doing is the answer. And I do the stretches she prescribed faithfully. Thank you so much for taking an interest in me. My condition is so minor compared to everyone else’s so I feel guilty whining but it keeps me in bed most of the day. Any other suggested remedies are appreciated.

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@merpreb

@migizii– Well I had it yesterday and I am ill. My arm hurts and so does the rest of me. I have a fever. I decided to get it because I've known people who have had shingles and they hurt a lot more than I do.

It's pretty much against the human grain to purposely go get something that will make you ill. I get that. But I feel the need to be protected from it. If I begin to feel worse I might change my opinion about the second shot.

Of course the decision is yours to make. Weighing the pros and cons is pretty tough, eh?

Jump to this post

@merpreb thanks for sharing and please keep us posted!!

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@merpreb

@migizii– Well I had it yesterday and I am ill. My arm hurts and so does the rest of me. I have a fever. I decided to get it because I've known people who have had shingles and they hurt a lot more than I do.

It's pretty much against the human grain to purposely go get something that will make you ill. I get that. But I feel the need to be protected from it. If I begin to feel worse I might change my opinion about the second shot.

Of course the decision is yours to make. Weighing the pros and cons is pretty tough, eh?

Jump to this post

Just thought I would chime in on this one. I had both shots in the Shingrix series last year. From the first I had significant arm pain but it wasn’t that much worse than happens when I have a tetanus shot. The second one wasn’t comfortable but less than the first. I saw my mother repeatedly have shingles and there is no way these shots were any worse or even close to what she went through. Nancy

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@merpreb

@hopeful33250 – Teresa is there a chance that you can describe your experience with shingles?

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@merpreb

Sure, it started with a few bumps on my back, looked rather like mosquito bites (they itched terribly). It looked to me like an allergic reaction to something. It was on my back, on the waistband area right side, so I couldn't really see these bumps multiplying. By the time I went to see the doctor four days later, there were three of them. I had no pain at first, just the itching.

By the time I got to the doctor, there was a lot of lower back pain that felt like I must have lifted something too heavy, but could not think of doing anything like that. The pain was very intense, like a sunburn inside the body. The doctor put me on an antiviral med which caused the bumps to disappear but the pain continued and grew from my lower back to my side on the flank area (the ER doc thought I might have appendicitis or a kidney stone). This sunburn-type of pain was intense. It took 2 rounds of prednisone and lots of Gabapentin for about 3 weeks before it was bearable.

I would definitely not want to repeat that experience. If you hear of anyone who has Singles offer them as much compassion, support, and sympathy as you can. I received two types of homemade soup from a friend, another friend made a GF lasagna, salad, and GF cake. I was well taken care of.

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