Just an FYI

This is another organization that I follow. Here is an email I received today.

Dear friends,

This year, Solve M.E. & #MEAction are partnering on a medical education initiative. As we began planning Advocacy Week this year, we took a step back and asked: Where can our collective effort make the most meaningful difference right now?

The ME/CFS community has been pushing for better and more widespread knowledge among medical providers for decades. The introduction of ME/CFS knowledge into medical education and national medical exams has been a longtime focus for ME/CFS advocacy groups.

Over the past few months, Solve M.E. & #MEAction have been partnering in strategic work to initiate conversations with partner organizations, clinicians, and advocates across the ME/CFS, Long COVID, and infection-associated chronic conditions (IACC) community, asking a central question:

How can we close the knowledge gap in ME/CFS and Long COVID care?

The Ask: We will meet with state and local healthcare leaders and ask for their support for introducing questions on ME/CFS and Long COVID medical exams at the national level.

The Theory of Change: By reaching out to patient safety/regulatory agencies, State Medical Boards, and State Health Leadership/Chief Medical Officers by state, framing ME/CFS education gaps as a patient safety and standard-of-care issue, we will move IACC’s such as ME/CFS and Long COVID from “optional knowledge” to “standardized knowledge” in clinical care.

Target: State healthcare leadership and patient safety agencies

Dates: March 23–27, 2026

This will look a little different from our usual advocacy week, so let’s talk about our schedule!

Monday: Kickoff & training
Tuesday: Outreach to state patient safety/regulatory agencies
Wednesday: Federal social media advocacy (toolkit provided)
Thursday: Outreach to state medical boards & chief medical officers.

Register here to join us for Advocacy Week 2026.

In solidarity,

Monique & Jaime
Solve M.E. & #MEAction

Solve ME/CFS and #MEAction recognize that meaningful systems-level change builds on sustained, collaborative efforts across the field. We are grateful for and acknowledge the strong work in medical education and regulatory initiatives led by Bateman Horne Center and the Open Medicine Foundation’s Medical Education Resource Center (MERC), and #MEAction, including engagement with state licensing boards and contributions to clinician education standards. These collective efforts reflect shared momentum toward improving oversight, education, and accountability in the care of people with ME/CFS and related conditions.