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Could Mac treatment cause food to taste bad?

Posted by hayn3705 @hayn3705, May 10, 2020

I have been on antibiotics for MAC for 6 weeks-the big 3 on MWF. I have 0 appetite and food doesn’t taste good. Sometimes my tongue burns and mouth feels dry. Is this common?

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Terri Martin, Volunteer Mentor | @windwalker | May 29, 2020
In reply to @hayn3705 "I have been having issues with tomato based foods, citrus, and peppered foods as well. Thank..." + (show)
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I have been having issues with tomato based foods, citrus, and peppered foods as well. Thank goodness for yogurt, eggs and watermelon. Appreciate the advice.

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Cuccmbers are a cooling food also.

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Terri Martin, Volunteer Mentor | @windwalker | May 29, 2020
In reply to @irene5 "@hayn3705That’s exactly how I feel: not enough hours in the day! My appetite has come back...." + (show)
Profile picture for irene5 Irene Estes @irene5

@hayn3705That’s exactly how I feel: not enough hours in the day! My appetite has come back. It took a really long time - but it did come back! I think MAC causes no appetite. Adding the treatment probably adds to that. Please do what @sueinmn suggested. She is very knowledgeable. irene5

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Hello Irene. I was curious about whether you have been able to put some weight back on?

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Terri Martin, Volunteer Mentor | @windwalker | May 29, 2020
In reply to @marthachs "@onana I'm off 13 months of daily Big 3 since mid Feb. (had to substitute Ciprofloxacin..." + (show)
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@onana I'm off 13 months of daily Big 3 since mid Feb. (had to substitute Ciprofloxacin for Azithromycin for the last half of treatment because of ototoxicity). I had dry mouth before starting, but worse while on the meds, and I also had the change of tastes and the burning tongue. I tried meds for yeast for the tongue, but they didn't really help. The only thing that worked was eating yogurt which I don't really like. But it was worth it! The burning never completely went away, but if it got better and I began to slack off on the yogurt, the burning would come roaring right back. I also ate kefir with fruit and honey and that worked too. For the dry mouth, I use Xylimelt tablets at bedtime, one in each cheek. I like the mint free ones. And during the day, I use Biotene mouth rinse for some short term relief. I think it helps relieve the burning a bit as well.
My infectious Disease doc advised me to continue probiotics for 6 months after stopping the antibiotics, and I have continued to need the yogurt as well, although I think the burning tongue is beginning to need less attention. This whole business (disease and treatment) is certainly an adventure!
Hope this helps!
Martha

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Onana, I had the burning tongue for yrs. It drove me up the wall. I too ate yogurt to soothe it. I am happy to report that it has gone away for the most part. I do have food triggers that will bring it back on though. The main one is wine, more than one glass will cause the burning. If I eat red tomatoe sauce, that will bring it on also. Just thought I'd let you know that there is hope that you will be rid of it some day.

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Profile picture for irene5 Irene Estes
irene5 Irene Estes | @irene5 | May 29, 2020
In reply to @windwalker "Hello Irene. I was curious about whether you have been able to put some weight back..." + (show)
Profile picture for Terri Martin, Volunteer Mentor @windwalker

Hello Irene. I was curious about whether you have been able to put some weight back on?

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@windwalker Hi Terri. I have been able to put back about 5 pounds. Irene

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onana | @onana | May 29, 2020

@windwalker Thanks for letting me know that your experience with burning tongue finally let up. I've had the same aggravation from wine and tomato sauce, plus all citrus, and a few other acidic foods. It's encouraging to hear there may be an end to this and a bit more relaxation around food.

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