Mayo Clinic Connect
i have Als and reactive arthritis .Is some one on cosentyx more then 5 months I have now been on it for 3and half months ,have not seen mutch improvement. I hope this will work,tryed pretty mutch everything out there
Hello @nafal, welcome to Mayo Connect. I’m glad you found us. This is a great place to discuss symptoms, treatments and ask questions. I have polymyalgia rheumatica and small fiber peripheral neuropathy and can relate to trying a lot of different things and having difficulty getting answers. I can’t answer your question but hopefully others will join in and provide some information for you.
Mayo Clinic does have some information on reactive arthritis treatment that may help – http://mayocl.in/2pG41eb
Mayo Clinic also has some information on Amyotrophic lateral sclerosis (ALS) – http://mayocl.in/2pmWx3h
Another good place to do a search is Google Scholar – https://scholar.google.com/
Hoping you find some answers soon.
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rhank you john for getting back to me. It is a lonely world out there, if you sick. I would like to find some one who is been taking cosentex more then 5 months and how they are responding to the meds . thanks nafal
Liked by John, Volunteer Mentor
Hi Nafal – I did a search of the Mayo Connect Groups and could not find any reference to the drug. I was able to go to the US Food and Drug Administration website and find a lot of information on the drug that may be helpful.
Have you talked with your primary care doctor to let them know the drug is not helping much? It might help to have a discussion or maybe a second opinion on treatments.
Liked by Kanaaz Pereira, Connect Moderator
@nafal, I’d like to welcome you to Connect, as well.
In addition to what @johnbishop has detailed, I did find some information about Cosentyx (Secukinumab) in our Bones, Joints & Muscles group that may interest you:
Older TNF Inhibitors Better for Psoriatic Arthritis: http://mayocl.in/2oLQRPj
And, you may also wish to read these posts about ALS (Lou Gehrig’s disease) in the Brain & Nervous system group:
Mayo Clinic Breakthrough With ALS Treatment In Mice: http://mayocl.in/2pgp7ng
Finally — Some Hope for People With ALS: http://mayocl.in/2oLK9sx
Mayo Clinic researchers place ALS hope in stem cells: http://mayocl.in/2onnPTz
A while ago, @denver90 wrote about his sister who was diagnosed with ALS, and I hope will return with more insight for you.
@nafal, as John mentioned, have you talked with your healthcare team about Cosentyx, or considered getting a second opinion? I can only imagine the heartbreaking challenges with this condition; what symptoms are you dealing with, that you feel the drug is not working?
Sorry guy's i misspell one of my condition i have ankelsondelitis hope i spelled. It right not ALS. Sorry. Nafal
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