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nafal
@nafal

Posts: 3
Joined: Apr 16, 2017

cosentyx

Posted by @nafal, Apr 15, 2017

i have Als and reactive arthritis .Is some one on cosentyx more then 5 months I have now been on it for 3and half months ,have not seen mutch improvement. I hope this will work,tryed pretty mutch everything out there

REPLY

Hello @nafal, welcome to Mayo Connect. I’m glad you found us. This is a great place to discuss symptoms, treatments and ask questions. I have polymyalgia rheumatica and small fiber peripheral neuropathy and can relate to trying a lot of different things and having difficulty getting answers. I can’t answer your question but hopefully others will join in and provide some information for you.

Mayo Clinic does have some information on reactive arthritis treatment that may help – http://mayocl.in/2pG41eb
Mayo Clinic also has some information on Amyotrophic lateral sclerosis (ALS) – http://mayocl.in/2pmWx3h

Another good place to do a search is Google Scholar – https://scholar.google.com/

Hoping you find some answers soon.

John

@johnbishop

Hello @nafal, welcome to Mayo Connect. I’m glad you found us. This is a great place to discuss symptoms, treatments and ask questions. I have polymyalgia rheumatica and small fiber peripheral neuropathy and can relate to trying a lot of different things and having difficulty getting answers. I can’t answer your question but hopefully others will join in and provide some information for you.

Mayo Clinic does have some information on reactive arthritis treatment that may help – http://mayocl.in/2pG41eb
Mayo Clinic also has some information on Amyotrophic lateral sclerosis (ALS) – http://mayocl.in/2pmWx3h

Another good place to do a search is Google Scholar – https://scholar.google.com/

Hoping you find some answers soon.

John

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rhank you john for getting back to me. It is a lonely world out there, if you sick. I would like to find some one who is been taking cosentex more then 5 months and how they are responding to the meds . thanks nafal

@johnbishop

Hello @nafal, welcome to Mayo Connect. I’m glad you found us. This is a great place to discuss symptoms, treatments and ask questions. I have polymyalgia rheumatica and small fiber peripheral neuropathy and can relate to trying a lot of different things and having difficulty getting answers. I can’t answer your question but hopefully others will join in and provide some information for you.

Mayo Clinic does have some information on reactive arthritis treatment that may help – http://mayocl.in/2pG41eb
Mayo Clinic also has some information on Amyotrophic lateral sclerosis (ALS) – http://mayocl.in/2pmWx3h

Another good place to do a search is Google Scholar – https://scholar.google.com/

Hoping you find some answers soon.

John

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Hi Nafal – I did a search of the Mayo Connect Groups and could not find any reference to the drug. I was able to go to the US Food and Drug Administration website and find a lot of information on the drug that may be helpful.

http://bit.ly/2puVr2w

Have you talked with your primary care doctor to let them know the drug is not helping much? It might help to have a discussion or maybe a second opinion on treatments.

John

@nafal, I’d like to welcome you to Connect, as well.
In addition to what @johnbishop has detailed, I did find some information about Cosentyx (Secukinumab) in our Bones, Joints & Muscles group that may interest you:
Older TNF Inhibitors Better for Psoriatic Arthritis: http://mayocl.in/2oLQRPj

And, you may also wish to read these posts about ALS (Lou Gehrig’s disease) in the Brain & Nervous system group:

Mayo Clinic Breakthrough With ALS Treatment In Mice: http://mayocl.in/2pgp7ng
Finally — Some Hope for People With ALS: http://mayocl.in/2oLK9sx
Mayo Clinic researchers place ALS hope in stem cells: http://mayocl.in/2onnPTz

A while ago, @denver90 wrote about his sister who was diagnosed with ALS, and I hope will return with more insight for you.

@nafal, as John mentioned, have you talked with your healthcare team about Cosentyx, or considered getting a second opinion? I can only imagine the heartbreaking challenges with this condition; what symptoms are you dealing with, that you feel the drug is not working?

@kanaazpereira

@nafal, I’d like to welcome you to Connect, as well.
In addition to what @johnbishop has detailed, I did find some information about Cosentyx (Secukinumab) in our Bones, Joints & Muscles group that may interest you:
Older TNF Inhibitors Better for Psoriatic Arthritis: http://mayocl.in/2oLQRPj

And, you may also wish to read these posts about ALS (Lou Gehrig’s disease) in the Brain & Nervous system group:

Mayo Clinic Breakthrough With ALS Treatment In Mice: http://mayocl.in/2pgp7ng
Finally — Some Hope for People With ALS: http://mayocl.in/2oLK9sx
Mayo Clinic researchers place ALS hope in stem cells: http://mayocl.in/2onnPTz

A while ago, @denver90 wrote about his sister who was diagnosed with ALS, and I hope will return with more insight for you.

@nafal, as John mentioned, have you talked with your healthcare team about Cosentyx, or considered getting a second opinion? I can only imagine the heartbreaking challenges with this condition; what symptoms are you dealing with, that you feel the drug is not working?

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Sorry guy's i misspell one of my condition i have ankelsondelitis hope i spelled. It right not ALS. Sorry. Nafal

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