COPD with cronic bronchitis

Posted by gramham @gramham, Oct 14 10:18am

I have COPD and now have chrocic branchitis. Just concerend. I also have acute excerbation,Hyponxia, multiple lung nodules, centeral sleep apnea, hiatal hernia, chronic caugh. This is just from one specialist. I am 88 years old..But have so much I want to get done. I love my family, my church family and I love quilting, and sewing. I know it is all in God's hands and what will be will be. I would just want to know what all this means. Thanks for your help. Grandma Ha.

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Hello Grandma Ha- I have COPD too. I have emphysema and had chronic bronchitis.
I went for a clinical trial for the bronchitis at Temple Hospital in Philadelphia. It was a one year study using the RheOx treatment for bronchitis. It uses a thermal wand to zap the mucus plugs in the lungs & 1 year later I found out I’d gotten the real treatment and the bronchitis is gone. Will it stay gone - hopefully yes - but my lungs sound great according to both Temple & my own awesome pulmonologist. I don’t know if trials are ongoing but I’m glad I did it and will continue researching clinical trials for COPD.
God bless
https://galvanizetx.com/the-rheox-system/

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Here are also some other trials for bronchitis. This is in Europe but I do know Temple was also trialing the liquid nitrogen.
https://err.ersjournals.com/content/30/159/200281
Try a search for clinical trials for COPD and you’ll find several hopefully in your area.

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@ktf

Here are also some other trials for bronchitis. This is in Europe but I do know Temple was also trialing the liquid nitrogen.
https://err.ersjournals.com/content/30/159/200281
Try a search for clinical trials for COPD and you’ll find several hopefully in your area.

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Thank you so much for this artical. Sounds promising.
Where do I start. At my Pulmonary Doctor's office? I am 88 years old. Would I even be considered?
Thank you again!
Grama Ha

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@ktf

Hello Grandma Ha- I have COPD too. I have emphysema and had chronic bronchitis.
I went for a clinical trial for the bronchitis at Temple Hospital in Philadelphia. It was a one year study using the RheOx treatment for bronchitis. It uses a thermal wand to zap the mucus plugs in the lungs & 1 year later I found out I’d gotten the real treatment and the bronchitis is gone. Will it stay gone - hopefully yes - but my lungs sound great according to both Temple & my own awesome pulmonologist. I don’t know if trials are ongoing but I’m glad I did it and will continue researching clinical trials for COPD.
God bless
https://galvanizetx.com/the-rheox-system/

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The University Medical Center where I live just completed the clinic trial for RheOx and awaiting the data results. I was not a candidate for the clinical trial as I had valve insertion. Am anxiously awaiting the results as the bronchitis renders me short of breath. The congestion is produced as quickly as I rid of it!

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Most certainly speak to your pulmonologist. I hope they are as supportive and as caring as mine. She’s the one who suggested Temple to me for clinical trials.
And kdalda75 is correct you cannot have any inserts in your body like inspire, pacemaker I assume or valves. I don’t recall the ages the trial was limited to but I was 73 when I had it done. The nice thing was if I hadn’t gotten the actual treatment at the end of the trial I would’ve gotten it.

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Link
https://www.lung.org/lung-health-diseases/lung-disease-lookup/copd/treating/clinical-trials-for-copd
I don’t know where you live but hospitals like Temple and Mayo do clinical trials. Definitely speak to your doc

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@ktf

Most certainly speak to your pulmonologist. I hope they are as supportive and as caring as mine. She’s the one who suggested Temple to me for clinical trials.
And kdalda75 is correct you cannot have any inserts in your body like inspire, pacemaker I assume or valves. I don’t recall the ages the trial was limited to but I was 73 when I had it done. The nice thing was if I hadn’t gotten the actual treatment at the end of the trial I would’ve gotten it.

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Thank you for your encouragement! I had a CT today.. We will see what they say. I will be talking to my Pulmonoligest.

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@ktf

Most certainly speak to your pulmonologist. I hope they are as supportive and as caring as mine. She’s the one who suggested Temple to me for clinical trials.
And kdalda75 is correct you cannot have any inserts in your body like inspire, pacemaker I assume or valves. I don’t recall the ages the trial was limited to but I was 73 when I had it done. The nice thing was if I hadn’t gotten the actual treatment at the end of the trial I would’ve gotten it.

Jump to this post

There have been times that researchers and the powers that be have allowed a procedure on a "compassionate basis." Worth a try. Personally. I don't understand the age limitations for offering a patient relief, less suffering and pain and a better quality of care. Does that mean that because you are 88 you don't deserve that.....only deserved it at 73. You didn't have this problem at 73 albeit!

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kdalda75 | @kndaustin71 | 1 second ago
In reply to @ktf "Most certainly speak to your pulmonologist. I hope they are as supportive and as caring as..." + (show)

There have been times that researchers and the powers that be have allowed a procedure on a "compassionate basis." Worth a try. Personally. I don't understand the age limitations for offering a patient relief, less suffering and pain and a better quality of care. Does that mean that because you are 88 you don't deserve that.....only deserved it at 73. You didn't have this problem at 73 albeit!

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@gramham

Thank you so much for this artical. Sounds promising.
Where do I start. At my Pulmonary Doctor's office? I am 88 years old. Would I even be considered?
Thank you again!
Grama Ha

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Gramma Ha, also speak to your pulmo about a nebulizer using .07 saline solution for the bronchitis. Prior to RheOx my pulmo said by all means try it. It helped bring up the mucous. Just be sure to put your phone in a ziplock if you’re using it while you nebulize. Saline can destroy electronics.
It is otc but it might be covered by Part B Medicare - Walgreens does part B & probably CVS.

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