COPD end stage: Anyone else?

Great tip, @uncdick. How long have you had COPD?

It is my husband that has COPD and it has been seven years. He is doing really well so far. He is limited as far as walking very far and not able to do a lot of things. We atr retired so this is a blessing. The other thing I do for him is I have a cup with an adapter to fit over his nose and I put some vicks and some water and microwave it and he breaths it. It seems to help also.The lemon really does work for him. So happy to help any one I can.
Anne Marie

By the way he is 78 years old.

Hi everyone. Yes, the hose on the oxygen is a big hazard I think. I almost trip over or it get around the knobs in the kitchen which will pull you back or stop on it you get and it jerks you head down. I told my daughter we were having to lean jump rope with the the blasted thing. She would be standing on it and I would have to tell you cutting off my oxygen, We have both come to terms and we can talk about it now. But she stills get a little teary when we talk.
She doesn't like seeing me go downhill but she knows there is nothing you can do about it except enjoy you family and friends as much as possible. If your loved can go to the pulmonary doctor with you it will really help them understand. I also told my daughter to read up on COPD on google. It will help them understand the disease better. She knows all I can do is what I am doing. I don't tell her everything that happens especially at night time. That is when the COPD is worst for me . Lying down is not much fun. I take a lot of medicine to help me sleep but it doesn't always work. Sleeping in the Recliner is me 2nd options, seems to help sitting up. I not only have COPD 4, Congestion Heart failure, high blood pressure, and asthma. I have a lot on my plate, but I try to keep going and try not to think about it all the time. I did ask my Pulmonary doctor about a lung transplant, but he said they would not consider me because I had so many things wrong. I ask him how could I have all of this at once. He said my case was difficult and unusual but all I could do is take the medicine and try to keep exercising. I am blessed for having a wonderful daughter to help me thru this . My son in law and my grandson. God bless and keep all of you thru the holiday. LOL

Hi everyone , noticed these post are dated 2018 but reading for comfort & trusting everyone is doing good as can be . I have had a tough week here in Texas as the weather is changing into fall . I am thankful to each of you for the post as they help me understand much more & not feel so alone fighting this Copd . Blessings to all

I am just entering stage 4, or D whatever they are calling end stage now. I am also an Alpha1 patient, please get checked, your odds are 1-2500. You can get a FREE test kit from the Alpha1 foundation http://www.Alpha1.org/ You can't change your condition, but if you test positive, then you have your children, grandchildren, brothers, sisters because it is hereditary and could help them not to smoke, or keep away from harmful air irritants.

Hi Gregory, while this discussion started in 2018, there are recent posts too. Conversation is still active. What plans do you have for Thanksgiving?

Hi Colleen , I enjoyed today Thanksgiving with family . It was my first holiday smoke free and with Copd so I made it thank God just very very winded and faced out first cold front here in Texas which it brutal on my breathing , I am just pacing myself daily as my breathing is changed so much in 6 months . I am just Thankful period lol-

Hi everyone. I had a very nice Thanksgiving but only with my daughter, son in law and my grandson.
I thank God every night that I had another day. It is really getting hard to shop and exercise is really bad. I can't catch my breath. I am still driving and shopping even though it is getting very hard. I am afraid if I stop I won't be able to go. I feel I have to keep moving.
Hope everyone had a great holiday and hope everyone's Christmas is filled with love. LOL

I'm also a level four COPD end of life. That sounds really harsh doesn't it. I have no one to blame but myself. I have many years of carefree living. At this point I can't walk across the room without stopping to rest. I also have an inogen oxygen mixer. I'm trying to learn how to use it and how to carry it as it is quite heavy and awkward. I also use a CPAP machine with an overflow oxygen machine in the evenings I did the mindful breathing techniques with the Mayo clinic which was quite helpful. I did one other program with the Mayo clinic and it was very supportive and helpful. I also have a home nebulizer and do treatments. Periodically. I have good days and bad days. I can only think our heavenly father Jesus Christ that I'm still walking and talking. I have a loving family and very supportive I would like to suggest and recommend that you never give in and you never give up.