COOLIEF

Posted by rmeddings @rmeddings, Jun 15, 2017

Does anyone know anything about a new procedure for knee pain called COOLIEF. ? I believe it supposedly freezes the nerves, wondering if it would work for me. I continue to have awful pain, one and a half years after having bilateral knee replacements. I’m told it is nerve pain from the surgery

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@rmeddings I had a doctor mention that this may be an option for my neck pain in the future. It works on the same principle as Radio Frequency Ablation-RFA, which burns the nerves thus disrupting the pain signal. From my research, COOLIEF can treat a larger area than RFA. You might want to check out this link about COOLIEF. http://bit.ly/2rvBwoM
Could you share with us if you have taken any medicines or had any treatments for the nerve pain?

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Yes, I have tried nerve blocks twice, to no avail. I have tried Lyrica, and also Gabapentin. Neither seemed to make a difference. I tried accupuncture for 6 months, and a lot iof supplements. It did seem to help a little. However , I’m still in constant pain. I just keep searching and hoping to find help !!

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@rmeddings

Yes, I have tried nerve blocks twice, to no avail. I have tried Lyrica, and also Gabapentin. Neither seemed to make a difference. I tried accupuncture for 6 months, and a lot iof supplements. It did seem to help a little. However , I’m still in constant pain. I just keep searching and hoping to find help !!

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Hello @rmeddings. Like @sandytoes14 did, I also looked in to the COOLIEF website. It’s disclaimer states that you should always talk with your provider about any procedure, including cooled radio-frequency treatment. My search on MayoClinic.org only turned up information regarding cryotherapy and use of freezing for cancer cells and topical cryotherapy for neuropathy pain. As Jen mentioned, Mayo Clinic does have a lot of information on radio frequency ablation. It would be wise to continue your research and present what you find to your physician.

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@rmeddings

Yes, I have tried nerve blocks twice, to no avail. I have tried Lyrica, and also Gabapentin. Neither seemed to make a difference. I tried accupuncture for 6 months, and a lot iof supplements. It did seem to help a little. However , I’m still in constant pain. I just keep searching and hoping to find help !!

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@JustinMcClanahan this is something about burning nerves I never heard of but Edgar Cayce talked about RFA back in the 40',s wonder if it's the same thing! I,'ll have to look it up

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Terrible results. I worry I am going to be permanently disabled and unable to bend my knee even enough to sit down properly. Hopefully over time, and with enough physical therapy it will get better but definitely not as advertised. The immediate relief didn't happen. The resting pain is reduced, but only providing I don't put any weight on the knee. Any bending of the knee past about 20 degrees results in pain. Most of the pain felt just above the knee cap where the quads attach, and directly behind the knee. In fairness to the Coolief folks their brochure does warn there is a danger of this; so buyer beware. I may just be one of the unlucky statistics.

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@dougm2866

Terrible results. I worry I am going to be permanently disabled and unable to bend my knee even enough to sit down properly. Hopefully over time, and with enough physical therapy it will get better but definitely not as advertised. The immediate relief didn't happen. The resting pain is reduced, but only providing I don't put any weight on the knee. Any bending of the knee past about 20 degrees results in pain. Most of the pain felt just above the knee cap where the quads attach, and directly behind the knee. In fairness to the Coolief folks their brochure does warn there is a danger of this; so buyer beware. I may just be one of the unlucky statistics.

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Hello @dougm2866, Welcome to Connect. I'm sorry to hear the Coolief procedure didn't help but from what I've read it is like you say buyer beware. Here is a Harvard Health Ad Watch on Coolief.

"Most studies found few or no side effects associated with the Coolief procedure. Even so, the manufacturer warns of potential risks that include infection, nerve damage, increased pain — even paralysis and death. In part, this may be based on reports of cooled radiofrequency ablation in other areas of the body. Oct 15, 2019" — Harvard Health Ad Watch: A new treatment for knee arthritis: https://www.health.harvard.edu/blog/harvard-health-ad-watch-a-new-treatment-for-knee-arthritis-2019101518015

Have you thought about a total knee replacement?

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