Continuous Bronchiectasis exacerbation- Lung infections
All symptoms resolved when I changed antibiotics.
That's the short story short. Here's the long story see if it sounds like you. I started getting lung colds after being diagnosed with BE. I'd go to the doctor, get antibiotics and get better....mostly. Then I'd start a month long decline until I had another severe lung cold. My pulmonologist said I had BE and asthma and chronic bronchitis, perhaps aggravated by environmental factors. I was on long lasting bronchio-dialators and steroids, nasal rinses, long-term low-dose antibiotics. I took bacterial lung tests that at first were positive and then came back consistantly negative.
A year into this, I had the idea to "Cut it out!", you can search for that discussion to learn all about that. I decided to get the BE section of my lung cut out and solve the problem once and for all. A month afterwards, the lung infections returned and lasted another 9 months. That is until, exasperated, depressed, and drained, I went to an urgent care clinic. There the young P.A. looked and my chart and said, "Huh? They've been giving you the same antibiotics this whole time. Let's try this different stronger one a try." THANK YOU! NAMELESS DOCTOR. Within 5 days I'd felt better than I had in two years. It turned out that I had an antibiotic resistant strain of bacteria that was deeply embedded in my mucous such that it didn't show up on the tests. IT HAS BEEN 3 MONTHS NOW OF PERFECT LUNG HEALTH. I can't stop sucking in deeply the delicious air. I just got the rest of my life handed back to me with free of this malady.
I wanted to post this on here in case any of you are going through something similar. Yes the BE made the infections worse, but the reason they kept returning was due to the resistant bacteria they couldn't detect, rather than all the other causes the "experts" thought up. I truthfully don't blame them though. I was actually seeing too many different doctors, such that none of them were tracking the repetition of the antibiotic prescriptions. Also, it took me taking detailed daily notes and color coding them and marking on a printed calendar which days I was sick and well, until I could see that pattern caused by the antibiotic resistance.
I wish you all well, I know how horrible it is to not be able to take a deep breath without having coughing fits.
Much love,
Shon.
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@shonney Yes maybe it is the conditon worsing with age.
My sputum is crystal clear.
I am getting a septoplasi nose job strightening my middle bone and also turnbinate reduction surgery in the next 4 months may help a little.
All the respiratory specilaists seem to always lean to infection, i could have a infection deep within my lungs but have been on 3 different courses of antibiotics and nothing has changed.
With Bronchietasis the airways are widened and more sputum is produced from the airways.This can cause the risk for more infections, one way to look at it, is if it is an infection you can treat it.
Thanks for your reply.
@mjf33709 Please let me know how it goes for him,apparently takes up to 3 months before any improvement.
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1 Reaction@brody89 Have they done a sputum culture on the secretions from your lungs? Some lung infections respond only to lengthy courses of very specific antibiotics, sometimes requiring more than one.
Sounds like what I am going through. Can you reply to me the name of the antibiotic that worked for you?
Kay
The antibiotic that worked for my situation was Levoflaxacin.
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1 Reaction@shonney thanks
@shonney
Dose and duration?
Levofloxacin 750mg once a day for 5 days. Talk with your doctor about potential side effects. I luckily didn't have any other than sleepless nights from having caffeine while on it. It prevents the normal metabolization of caffeine, resulting in being endlessly wired for a couple days. Don't take caffeine with this drug 🙂