Constipation and Parkinson’s.

Posted by susan62 @susan62, Aug 25, 2019

Hi everyone. Been awhile since I’ve been involved. My Parkinson’s has been doing pretty well for 2/3 of a year now with the exception of REALLY, REALLY bad constipation!!! I have been drinking a lot of water(60 oz a day), walking 5 days a week(3-4 miles each day), and trying to eat high fiber foods. Nothing seems to work much. I have taken Magnesium Citrate on a couple of occasions and tried an enema on a number of occasions too. These work for a short time, but then it is the same old, same old thing. I’ve tried Ducolax and a number of other stimulant laxatives. Same result. Not much. Last week I took the Magnesium Citrate again and this time when I drank it I had a horrible burning feeling in my upper GI tract. Had to go to ER. Did CT scan and could find nothing. Saw a GI doctor at the Mayo a few months ago and he had me do some tests and determined that I most likely have Bowl Evacuation Disorder. He ordered evaluation to see if I am a candidate for therapy. I haven’t scheduled that yet. I plan on calling his office tomorrow and request to see him again. I just feel so awful. Constipated most of the time, nausea, bloated, especially in am, and cramping. I wake up every morning feeling very bloated with considerable cramping. This is NOT normal!!! So that is my sob story. Am I going crazy? I am sincerely starting to think so. Has anyone had or have a similar experience? Your input would be greatly appreciated.

@oronogo

My Mayo doctor told me to use warm prune. I warm it in a cup in the microwave, just like you warm coffee. It must be warm.

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HI, @oronogo – did your doctor happen to mention why he or she suggested prune juice that is warmed, specifically?

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@januaryjane

Have you ever been diagnosed with pelvic floor dysfunction? I have a combo of this with stc. Might be something to look at. You can try therapy for it. The only thing that gets me to have bm is coffee/caffeine, stool stimulants, enema or suppository. Sometimes if i drink mag citrate. But will still have all the discomforts, gas, bloating, cramping. Ive tried most of the pills without luck, all the mixes. Though dr thinks miralax twice a day and low fodmap diet are the best.

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Hi January Jane. WOW! I am blown away by your post. Everything you say you experience with the constipation and the things you do to cope with it are dead on with me. As I say, ditto, ditto, ditto and ditto again. Yes, I was just recently diagnosed with pelvic floor dysfunction and am getting set up to have the therapy. Both my doctor and therapy nurse say I am a really good candidate. I am willing to try anything. Thanks again for sharing your experience.

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@oronogo

My Mayo doctor told me to use warm prune. I warm it in a cup in the microwave, just like you warm coffee. It must be warm.

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Thx Oronogo for your advise. I do eat prunes from time to time, but never warm. My pelvic floor therapist recommended a warm beverage in the am. Warm prune juice might help. Thx again.

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@susan62

Thx Oronogo for your advise. I do eat prunes from time to time, but never warm. My pelvic floor therapist recommended a warm beverage in the am. Warm prune juice might help. Thx again.

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Hello @susan62 and @oronogo

I have found that warm foods/liquids work much better for constipation than cold foods or beverages. When I take Miralax I mix it in coffee or cocoa. I also purchased pureed prunes (baby food containers) and warm them before having them at bedtime. It takes a lot of different treatments to keep constipation at-bay when you have Parkinson's. Hope some of these ideas help.

Liked by januaryjane

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@susan62

Hi January Jane. WOW! I am blown away by your post. Everything you say you experience with the constipation and the things you do to cope with it are dead on with me. As I say, ditto, ditto, ditto and ditto again. Yes, I was just recently diagnosed with pelvic floor dysfunction and am getting set up to have the therapy. Both my doctor and therapy nurse say I am a really good candidate. I am willing to try anything. Thanks again for sharing your experience.

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Nice to meet you, sorry we are in the same boat! Good luck with pelvic floor therapy. I also did some physical therapy, to help with breathing. Apparently you need to breath right! Some think its not fun, but i didnt mind my pft. Im still going, about a year, on and off.

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@hopeful33250

Hello @susan62 and @oronogo

I have found that warm foods/liquids work much better for constipation than cold foods or beverages. When I take Miralax I mix it in coffee or cocoa. I also purchased pureed prunes (baby food containers) and warm them before having them at bedtime. It takes a lot of different treatments to keep constipation at-bay when you have Parkinson's. Hope some of these ideas help.

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How do the pureed prunes work for you? I know awhile back i bought the individually wrapped prunes, but they didnt help any.

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@januaryjane

How do the pureed prunes work for you? I know awhile back i bought the individually wrapped prunes, but they didnt help any.

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The pureed prunes (baby food container) works the best, @januaryjane

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@oronogo

My Mayo doctor told me to use warm prune. I warm it in a cup in the microwave, just like you warm coffee. It must be warm.

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Prune juice

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