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plshelpmyfatigue
@plshelpmyfatigue

Posts: 15
Joined: Oct 19, 2017

Constant Fatigue, 20 year old female

Posted by @plshelpmyfatigue, Oct 18, 2017

Hi all! I have suffered from overwhelming fatigue and exhaustion for years; however, over the past six months it has gotten increasingly bad/unmanageable. I sleep 14 hours a night, and I wake up not feeling rested. I drink at least 3 or 4 cups of coffee to stay awake. I was sleeping up to 18-20 hours a day in the beginning of the summer, and if I could do that without life getting in the way (school, friends, etc.) I absolutely would!! It’s been a brutal routine of trying to figure out how to not be exhausted– I’ve completely changed my eating habits (all veggies and protein) as well as working out 4 times a week.

I also have gained 15 pounds, flare up of acne, and random depression, but this could be from recently getting the IUD (which I am taking out soon to rule out any factors). All tests have been normal, except for positive ANAs. I have done tests for Cushing’s, lymes, thyroid, vitamin B levels, PCOS, lupus, etc. They were all normal. I’m just at a complete loss; if anyone had any ideas I would be beyond grateful. 🙂

Liked by swingandamiss

REPLY

Hello @plshelpmyfatigue,

Welcome to Connect. I’m hoping you can meet other Connect members who have similar health concerns and learn what they are doing for treatments.

Since you mentioned having a positive ANA, I’d like to start by introducing you to a few members with very similar conditions. Please meet @cmtg, @pinkmk, @aman_23_23, @mommaj, @tljam, @whitechinacat, @palscoreen, @terryblink, @pinkstar, @rebo, @v1crew, @jewel8888, @tbeckys, @WendyAnne, @559purplepatty, @atorset, @beff2468, @taterjoy, @kanaazpereira, @lisabeans, @wottone, who I’m hoping can offer some information that may help.

You may also want to take a look at the following discussions:
– Undiagnosed auto immune disease: https://connect.mayoclinic.org/discussion/undiagnosed-auto-immune-disease/
– Autoimmune Diseases and Fatigue: https://connect.mayoclinic.org/discussion/autoimmune-diseases-and-fatigue/
– What happens when you have a disease doctors can’t diagnose TED talk by TED Fellow Jennifer Brea who became progressively ill with
myalgic encephalomyelitis, commonly known as chronic fatigue syndrome:
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose?utm_source=tedcomshare&utm_medium=email&utm_campaign=tedspread

@plshelpmyfatigue have you received any diagnosis from your doctor?

John

Did they test your Vitamin B? That could cause exhaustion. Do you have any other symptoms (pain, swelling, rashes). Did you get in to see a rheumatologist? With a positive Ana there could be an inflammatory issue. I would start with a rheumatologist and see what he/she finds.

I have mentioned this in a previous post about what helps me with my chronic fatigue. It’s a point system used for people with concussions issues but works well for others. It made me realize what activities were more exhausting than others and helped me deal with those less understanding when I could just say to them I’ve used up my points for the day and am done. I’m a visual person and this reminds me all the time the importance of setting boundaries and taking care of myself. It’s a life long battle. There will be good days ahead. Just keep advocating. Good luck.

10E512AB-ADBD-4DD3-943F-884B5480A287

Hi, You are much too young to be that tired. If you sleep and wake up unrested, then you probably aren’t “really” sleeping. Find out if you have sleep apnea. Move all electronics away from your bed so you can rule out low-level electrical frequency interference. Get rid of that IUD! Those things are dangerous. And don’t give up. See a good doctor, have your blood worked up. You might be iron deficient. Determine if you are depressed instead of tired. Best of Luck and Don’t give up! Robbinr

@johnbishop

Hello @plshelpmyfatigue,

Welcome to Connect. I’m hoping you can meet other Connect members who have similar health concerns and learn what they are doing for treatments.

Since you mentioned having a positive ANA, I’d like to start by introducing you to a few members with very similar conditions. Please meet @cmtg, @pinkmk, @aman_23_23, @mommaj, @tljam, @whitechinacat, @palscoreen, @terryblink, @pinkstar, @rebo, @v1crew, @jewel8888, @tbeckys, @WendyAnne, @559purplepatty, @atorset, @beff2468, @taterjoy, @kanaazpereira, @lisabeans, @wottone, who I’m hoping can offer some information that may help.

You may also want to take a look at the following discussions:
– Undiagnosed auto immune disease: https://connect.mayoclinic.org/discussion/undiagnosed-auto-immune-disease/
– Autoimmune Diseases and Fatigue: https://connect.mayoclinic.org/discussion/autoimmune-diseases-and-fatigue/
– What happens when you have a disease doctors can’t diagnose TED talk by TED Fellow Jennifer Brea who became progressively ill with
myalgic encephalomyelitis, commonly known as chronic fatigue syndrome:
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose?utm_source=tedcomshare&utm_medium=email&utm_campaign=tedspread

@plshelpmyfatigue have you received any diagnosis from your doctor?

John

Jump to this post

what happens when the doctors cannot diagnose your health problem? YOU BECOME CONFUSED, IRRITATED, DEPRESSED, SAD AND ETC., ETC. YOU GIVE UP YOU STOP BELIEVING IN YOURSELF, AND FEEL AS THOUGH YOU ARE LOSING IT. YOU WONDER WHAT ELSE CAN BE WRONG WITH YOU THAT THE DOCTORS DO NOT BELIEVE YOU. AND THEN YOUR FAMILY AND FRIENDS DO NOT BELIEVE IN YOU. WOW! SOME PEOPLE BECOME SUICIDAL WITH THEIR PHYSICAL AND NOW MENTAL PAIN.

THEY GIVE UP.

SHOULD THE DOCTORS TAKE A NEW COURSE TO HELP THESE PATIENTS? SHOULD THIS ADDITIONAL COURSE BE ADDED TO THEIR CURRICULUM IN ORDER TO GRADUATE? OR,,,, DO THEY ALREADY HAVE THIS SPECIFIC PROBLEM ADDRESSED PROPERLY INTO THEIR CURRICULUM? OR……IF SO, IT SHOULD BE ENHANCED ENHANCED, ENHANCED.

for the most caring of doctors please forgive me.

OR, AS IN THE DIFFERENT CAREERS SUCH AS THE POLICE: THE UNACCEPTABLE CANDIDATES ARE WEEDED OUT AND NOT ALLOWED TO CONTINUE ON WITH THE COURSE.

SHOULD THIS ALSO BE WITH THE DOCTORS?

this suggestion is meant only to help.

Liked by wottone

@johnbishop

Hello @plshelpmyfatigue,

Welcome to Connect. I’m hoping you can meet other Connect members who have similar health concerns and learn what they are doing for treatments.

Since you mentioned having a positive ANA, I’d like to start by introducing you to a few members with very similar conditions. Please meet @cmtg, @pinkmk, @aman_23_23, @mommaj, @tljam, @whitechinacat, @palscoreen, @terryblink, @pinkstar, @rebo, @v1crew, @jewel8888, @tbeckys, @WendyAnne, @559purplepatty, @atorset, @beff2468, @taterjoy, @kanaazpereira, @lisabeans, @wottone, who I’m hoping can offer some information that may help.

You may also want to take a look at the following discussions:
– Undiagnosed auto immune disease: https://connect.mayoclinic.org/discussion/undiagnosed-auto-immune-disease/
– Autoimmune Diseases and Fatigue: https://connect.mayoclinic.org/discussion/autoimmune-diseases-and-fatigue/
– What happens when you have a disease doctors can’t diagnose TED talk by TED Fellow Jennifer Brea who became progressively ill with
myalgic encephalomyelitis, commonly known as chronic fatigue syndrome:
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose?utm_source=tedcomshare&utm_medium=email&utm_campaign=tedspread

@plshelpmyfatigue have you received any diagnosis from your doctor?

John

Jump to this post

Hi @johnbishop , thank you so much for these resources! no diagnosis yet. Meeting with a rheumatologist soon, so hopefully that’ll show some answers. Thank you!!

@lisabeans

Did they test your Vitamin B? That could cause exhaustion. Do you have any other symptoms (pain, swelling, rashes). Did you get in to see a rheumatologist? With a positive Ana there could be an inflammatory issue. I would start with a rheumatologist and see what he/she finds.

Jump to this post

Hi @lisabeans thank you for your reply!! Vitamin B was a bit low but pills didn’t help much. No swelling, rashes, or pain really…meeting with a rheumatologist soon! Thank you so much.

@wottone

I have mentioned this in a previous post about what helps me with my chronic fatigue. It’s a point system used for people with concussions issues but works well for others. It made me realize what activities were more exhausting than others and helped me deal with those less understanding when I could just say to them I’ve used up my points for the day and am done. I’m a visual person and this reminds me all the time the importance of setting boundaries and taking care of myself. It’s a life long battle. There will be good days ahead. Just keep advocating. Good luck.

Jump to this post

@wottone Thank you so so much!! I appreciate the empathy and support.

Liked by swingandamiss

@lisabeans

Did they test your Vitamin B? That could cause exhaustion. Do you have any other symptoms (pain, swelling, rashes). Did you get in to see a rheumatologist? With a positive Ana there could be an inflammatory issue. I would start with a rheumatologist and see what he/she finds.

Jump to this post

Good luck with the rheumy. Keep us updated.

@robbinr

Hi, You are much too young to be that tired. If you sleep and wake up unrested, then you probably aren’t “really” sleeping. Find out if you have sleep apnea. Move all electronics away from your bed so you can rule out low-level electrical frequency interference. Get rid of that IUD! Those things are dangerous. And don’t give up. See a good doctor, have your blood worked up. You might be iron deficient. Determine if you are depressed instead of tired. Best of Luck and Don’t give up! Robbinr

Jump to this post

Hi @robbinr thank you so much for your reply. Going to do a sleep study– but I don’t snore, so I’m not sure if it’ll show anything promising. Thank you so much for the advice. IUD out soon! Thank you so much, have a appointment with a new doctor very soon. Thank you!

Even if that Doctor doesn’t figure it out, keep pushing for answers. I got PID from an IUD and it nearly did me in. I didn’t even have any pain in the pelvic region, just felt awful. You are on the route to wellness!

@johnbishop

Hello @plshelpmyfatigue,

Welcome to Connect. I’m hoping you can meet other Connect members who have similar health concerns and learn what they are doing for treatments.

Since you mentioned having a positive ANA, I’d like to start by introducing you to a few members with very similar conditions. Please meet @cmtg, @pinkmk, @aman_23_23, @mommaj, @tljam, @whitechinacat, @palscoreen, @terryblink, @pinkstar, @rebo, @v1crew, @jewel8888, @tbeckys, @WendyAnne, @559purplepatty, @atorset, @beff2468, @taterjoy, @kanaazpereira, @lisabeans, @wottone, who I’m hoping can offer some information that may help.

You may also want to take a look at the following discussions:
– Undiagnosed auto immune disease: https://connect.mayoclinic.org/discussion/undiagnosed-auto-immune-disease/
– Autoimmune Diseases and Fatigue: https://connect.mayoclinic.org/discussion/autoimmune-diseases-and-fatigue/
– What happens when you have a disease doctors can’t diagnose TED talk by TED Fellow Jennifer Brea who became progressively ill with
myalgic encephalomyelitis, commonly known as chronic fatigue syndrome:
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose?utm_source=tedcomshare&utm_medium=email&utm_campaign=tedspread

@plshelpmyfatigue have you received any diagnosis from your doctor?

John

Jump to this post

Thanks @plshelpmyfatigue, can you update us after your appointment to let us know if you find out anything? Thank you for sharing…

John

Dear @plshelpmyfatigue. I am also so very sorry to see what you are going through. Continuing your investigation with the Rheum and sleep study is a great idea. I hope they have answers and solutions. If they are perplexed, you might consider being evaluated at a treatment center with a comprehensive team of specialists who can work together to make a diagnosis and treatment plan. My mom suffered from disabling Fibromyalgia for many years, undiagnosed, because the disease was not yet recognized/known by her physicians in Florida. My Dad flew her to Mayo clinic in Rochester in the 1970’s where she was diagnosed with Fibromyalgia. They provided education, diagnosis info, and a treatment plan and shared it also with her local internist and rheumatologist for follow-up. Her quality of life improved dramatically; now is she 86, with no fibro symptoms, amazingly. 🙂

I hope you will be so fortunate to be healthy again, and feeling great!

About profound fatigue and sleepiness, have your tests included screening for West Nile Virus, Epstein Bar Virus (related to Chronic Fatigue), and Vitamin D deficiency? I have friends with each of those conditions, and none were diagnosed quickly. If you are sleeping a lot and not getting enough sunlight, you may not getting enough natural vitamin D. Also I hope your thyroid tests were comprehensive (not JUST a screen for TSH), as you might have high autoimmune antibodies though the TSH screening can show normal levels.

Maybe the sleep clinic will have ideas on how to alter your sleep patterns with Blue Light or other alternatives. It not be the best option at present, but when you are feeling better, there are some excellent DVDs (short and long) of Qi Gong healing gentle exercises, which include very low impact breathing/movement to improve energy, fatigue, and to heal the body. Many are free on youtube. Let me know if you want me to send you links to specific videos. I hope you will feel better soon, and that if per chance your condition is chronic that it is highly treatable and allows you to function fully.

@wottone

I have mentioned this in a previous post about what helps me with my chronic fatigue. It’s a point system used for people with concussions issues but works well for others. It made me realize what activities were more exhausting than others and helped me deal with those less understanding when I could just say to them I’ve used up my points for the day and am done. I’m a visual person and this reminds me all the time the importance of setting boundaries and taking care of myself. It’s a life long battle. There will be good days ahead. Just keep advocating. Good luck.

Jump to this post

It Ismail so important to be strong persistent and determined to get results from the medical “experts”. Good luck

@taterjoy Hi, friend. Very interesting. Just like you, I have had overwhelming daytime fatigue and sleepiness for many years from about age 10. I snored occasionally, a big loud snort, and anyone around thought a bear was loose in the house and could not get out. Anyway, snoring is always secondary, so it is not snoring you need to worry about. There are many possible underlying causes of snoring and fatigue, and a good sleep study may put you on the track of some of them. Dead and dying Protein deposit diseases, Usually known as the Amyloidosis Family. They deposit bad protein chains in any tissue in the body, and interfere with tissue operating. Nerve, brain, muscle, ligaments, bones, plasma, serum, organs. Almost all persons who have sleep apnea have some form of Amy. It usually appears later in life, but teens and older are susceptible. Have SERUM FreeLiteChain and total daily urine protein tests done. Medicare has been paying for them. Any skin problems where the skin looks like it has been plowed one way, and then a cross-furrow at a 45 degree angle? or black spots on your toes or around your eyelids?
2nd, Diabetes. 3rd, asthma. 4th, environmental, such as radon, Round-Up. Household chemicals? Do you live near a chemical plant, dry cleaners, oil refinery, freeway, airport? 5. Have you had concussions or other brain or nerve or head injuries? How is your voice? Changing any? Raspy? Any x-rays of your lungs, heart, jaw, thyroid, goiter? Nodules on your airway or esophagus? Do you bruise easily? Any broken bones? Dental care needs? Eye problems? Kidney or urinary tract issues that could spread inflammation? See what I mean? There are many possible causes, and you just must keep sorting them out, and do not let some tin-horn doctor try to protect the disorder from the patient’s medical care which you need.

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