Connection between depression, epilepsy and nutrition

Posted by erinorb @erinorb, May 23, 2016

My 21 year old son is very sick. His history involves him being very sensitive as a child (emotionally, mentally and physically) which manifested itself in numerous ways. His emotional sensitivity lead to him becoming a vegetarian at 14. Throughout high school he exhibited mild anxiety and sadness and saw a counselor but didn't get a formal mental health diagnosis. At about 17 he started to display gastrointestinal issue - diarrhea and stomach pain. He went through a battery of tests during which nothing was found. Shortly after starting college he was diagnosed with depression and social anxiety and put on meds. Less than a year later he developed seizures and was put on more meds. He continues to suffer from chronic depression and epilepsy. As his mom I just can't help but think all these health issues are related. Because he's an adult we are not involved in his medical care and there is no cooperation among the doctors he sees - psychiatrist, neurologist and family practitioner. Help! Am I grasping at straws or is there some credence to my suspicions that all this is related?

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

@kevinkelley

...I too have epilepsy and with that experience a bit of depression; Having epilepsy, seizures and the things associated with those have been a part of my life for some time... <br>The medicines I have been given seem to be my biggest difficulties, they have varied overtime and with that the side effects those individuals have...I had the "VNS" device for a little while but was not totally happy with its success as well. <br>I finished college and a wide range of misc things, am now in my 40's, have remained active, have had some success with my seizures, seemed to have found the med I now take that has the littlest of side effects those Meds seem to be associated with; Your son... Hang in there! Eating heathy has had a very positive effect on me and with that staying active is a positive thing for me as well; Epilepsy can be a very difficult thing to be accustomed to but with that, sharing those difficulties with others seems to have a somewhat positive effect to that...Kevin <br><br>

Jump to this post

If you have anyone who might know of a connection between seizures and blood sugar, let me know

While checking our 42 yr old son's seizure activity noted that the 2 bad ones where after he had pigged out at family meals.. the last 2 have been between 8-8:30 in the am, before he had anything to eat. There has to be a connection somewhere and I am always looking for clues...

he was out about 20 min - on the last seizure at 8:14 am and it was 8:36 when he awoke on the floor of the kitchen.
He was having 2 per month but now has the VNS which has helped a little - now he is going about 2 months between seizures and they seem to be milder. The VNS hurts sometimes and makes him cough, changes his voice level -
did you have yours removed?

REPLY
@kevinkelley

...I too have epilepsy and with that experience a bit of depression; Having epilepsy, seizures and the things associated with those have been a part of my life for some time... <br>The medicines I have been given seem to be my biggest difficulties, they have varied overtime and with that the side effects those individuals have...I had the "VNS" device for a little while but was not totally happy with its success as well. <br>I finished college and a wide range of misc things, am now in my 40's, have remained active, have had some success with my seizures, seemed to have found the med I now take that has the littlest of side effects those Meds seem to be associated with; Your son... Hang in there! Eating heathy has had a very positive effect on me and with that staying active is a positive thing for me as well; Epilepsy can be a very difficult thing to be accustomed to but with that, sharing those difficulties with others seems to have a somewhat positive effect to that...Kevin <br><br>

Jump to this post

Welcome to Connect, CarHowell.
I'm tagging @ketomom @clairesmom who have discussed diet and managing seizures, in particular the keto diet and a low glycemic index diet. They may be able to help answer your questions. @dawn_giacabazi might also have something to add.

REPLY

Hello
To answer one of the question related to depression and anxiety, yes it unfortunately goes hand and hand with seizures. I have had epilepsy for 25 years now. It was a huge struggle for many years but thankfully a 10 day stay at Mayo Clinic Epilepsy Clinic they found the answers needed. Finding the right medication, taken at the right does, at the right time of the day is definitely the key to successful treatment. http://www.mayoclinic.org/diseases-conditions/epilepsy/symptoms-causes/dxc-20117207

Pharmocogenetic testing is absolutely amazing at this. Here is a great link on how this testing works. http://mayoresearch.mayo.edu/center-for-individualized-medicine/drug-gene-testing.asp

Hope this helps
Dawn

REPLY
@kevinkelley

...I too have epilepsy and with that experience a bit of depression; Having epilepsy, seizures and the things associated with those have been a part of my life for some time... <br>The medicines I have been given seem to be my biggest difficulties, they have varied overtime and with that the side effects those individuals have...I had the "VNS" device for a little while but was not totally happy with its success as well. <br>I finished college and a wide range of misc things, am now in my 40's, have remained active, have had some success with my seizures, seemed to have found the med I now take that has the littlest of side effects those Meds seem to be associated with; Your son... Hang in there! Eating heathy has had a very positive effect on me and with that staying active is a positive thing for me as well; Epilepsy can be a very difficult thing to be accustomed to but with that, sharing those difficulties with others seems to have a somewhat positive effect to that...Kevin <br><br>

Jump to this post

We were gone over the holidays, sorry for the delayed response: Yes and yes. There is a connection between seizures and blood sugar. Has your son been seen by an epileptologist since this happened?

REPLY
@kevinkelley

...I too have epilepsy and with that experience a bit of depression; Having epilepsy, seizures and the things associated with those have been a part of my life for some time... <br>The medicines I have been given seem to be my biggest difficulties, they have varied overtime and with that the side effects those individuals have...I had the "VNS" device for a little while but was not totally happy with its success as well. <br>I finished college and a wide range of misc things, am now in my 40's, have remained active, have had some success with my seizures, seemed to have found the med I now take that has the littlest of side effects those Meds seem to be associated with; Your son... Hang in there! Eating heathy has had a very positive effect on me and with that staying active is a positive thing for me as well; Epilepsy can be a very difficult thing to be accustomed to but with that, sharing those difficulties with others seems to have a somewhat positive effect to that...Kevin <br><br>

Jump to this post

I have Internal Bowel Syndrome, the IBS started in the past 10 years. I'm 51years old, I would appreciate any information you could give me on the keto diet and a low glycemic index diet, and any type of foods that could control the seizures.

REPLY

@erinorb, though I don't have challenges with epilepsy, I agree with @blooms44 and @beauti2000 and @dawn_giacabazi that given the difficulties experienced, pharmacogenomic (PGx) testing may be very beneficial. I originally had this testing done at Mayo Rochester, and it has helped me significantly. PGx tests actually saved my life.

My GI issues have been associated with anxiety in the past but more recently my IBS issues were associated to medication-metabolism issues. And we learned from these PGx tests that many medications didn't work for me, including psych meds, because of my genetic drug polymorphisms. If he continues to have the challenges of depression while on medications, his metabolism of his medications could be negatively-affected by his other medications, or he could have polymorphisms that prevent his body from metabolizing the medications as intended, or both of these things could be happening. In the absence of psych meds, regular walking and using a light box are very helpful for me.

I had my first set of nine genetic tests performed via a blood draw at Mayo Rochester in March 2016, and then I had another set of 22 pharmacogenomic tests performed by OneOme (a Mayo Company) in March 2017 via mail order (gum swab). (Mail order pharmacogenomic testing company options depend on the state you live in, though there are workarounds for this. I live in NY and OneOme isn't certified in NY, but since I have doctors in MN, a state that has certified OneOme, my Mayo docs were allowed to order the tests for me and have it sent to me.)

REPLY

I am epileptic (now controlled by lots of meds), intelligent, anxious, depressive, 83 years old, extrovert. My seizures started at age 45 when I started practicing law, big pressure. They stopped when I retired. My moods are directly related to my physical activity level, i.e. the more activity I get, the better I feel. No relation to diet or alcohol. I have hemochromatosis, well controlled. Now seizure free for 8 years, tapered off carbmazepine, feel so much better mentally. I am Canadian, the medical system is incredible, no charge for hospital visits! Suffer from diarrhea, don't know why, use Immodium otc.

REPLY
@billbees

I am epileptic (now controlled by lots of meds), intelligent, anxious, depressive, 83 years old, extrovert. My seizures started at age 45 when I started practicing law, big pressure. They stopped when I retired. My moods are directly related to my physical activity level, i.e. the more activity I get, the better I feel. No relation to diet or alcohol. I have hemochromatosis, well controlled. Now seizure free for 8 years, tapered off carbmazepine, feel so much better mentally. I am Canadian, the medical system is incredible, no charge for hospital visits! Suffer from diarrhea, don't know why, use Immodium otc.

Jump to this post

Welcome @billbees! You mention that you've successfully tapered off carbamazepine, but that you're epilepsy is controlled by lots of meds. Are you taking other meds for epilepsy? Interesting that your moods have also improved since tapering off carbamazepine. What physical activities do you do?

REPLY
Please sign in or register to post a reply.