I’m awaiting a transplant. I have people that have offered to donate. I called my team to find out what is happening. They asked the donor team if they have someone they are testing. I was told, “Not at this time.”
At the same time, a potential donor for me called the donor team and was told they are speaking to a woman at this time.
Why different answers? Why can’t I find out about the progress of finding me a donor? This is very frustrating. I understand there are privacy laws, can’t I just be given updates? Why can’t the team let me know my status, how many are on the list, etc?
I’m hoping to get a transplant before I need to start dialysis which will be by the end of this year according to my nephrologist.
Thank you for your input.