Confused About Diet for Stage 3 or 4 Chronic Kidney Disease (CKD)

Posted by wietop @wietop, Dec 13, 2017

I was diagnosed with Stage 3 CKD four years ago, but my doctor didn’t tell me. When he retired and I had to find a new doctor is when I found out. I’m new to this and completely confused when it comes to diet. I am currently eating a sandwich for lunch, made with Ezekiel Low-Sodium bread, which is sprouted whole grain bread. In my research I have found some sites that say never eat whole grain bread, while others say you can eat it with no problem. My doctor has told me I don’t need to change my diet, but, as you can imagine, my trust factor is pretty low right now. I’m trying to find some solid information about which breads I should avoid and which ones are okay.

@fiesty76

@kamama94, Hah, I didn't have to work at keeping my face expressionless at the ckd news…thought I'd been hit with a stun gun and simply froze in the chair…so kudos to you for maintaining a stoic facial expression.

While I've not delved into specific brands as you have and had only one visit with the "general" nutritionist, I can only report that his time with me was greatly beneficial. I'm sure that there are many, as with any profession like the differences between my docs and yours, who have less knowledge or willingness to share in more depth than we would wish. Think that is why becoming a a researcher and self advocate and activist for our individual maladies and symptoms is so very important.

Just darn regrettable that you are having continuing painful effects from your long bout with shingles! My daughter had to bouts, rather close together several years ago and was much younger than us. However, her second bout was the one that continued much longer with "residual" discomfort. She was in her mid-twenties at the time and will be celebrating her 50th this August. Thankfully, she's had no re-occurrences but I remember how debilitating her pain was despite her being a warrior who believes in mustering on and through challenges.

My long self-quarantine and heightened virus vulnerability is more due to asthma and chronic bronchitis. My pulmonologist cautioned that while others my age with serious health issues might become ill with the virus, if I were to get it, I would die…like you, I'm not ready to check out from the party! vbg

Quite the contrary, instead of TMI…"too much info"? I appreciate your taking the time to explain more fully and also want to thank you for these most recent posts because I've become more lax over these last weeks and need to do a review of diet. Like your precautions, I am taking similar ones whenever leaving the house. Thanks again for sharing! Take care.

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@fiesty76, keep me posted about your diet. I love other people's ideas.

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What’s best bottled water to drink? Seems like most have sodium chloride and potassium. My mom is 90 and will be buying her water for her

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@cltjojo1

What’s best bottled water to drink? Seems like most have sodium chloride and potassium. My mom is 90 and will be buying her water for her

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@cltjojo1 In my opinion, the best bottled water to drink is spring water. Read the ingredients. Second choice is purified water, but there can be variables depending on how/where the water was "purified", so I like to stick with spring water. I grew up drinking well water and I like to ingest everything 'closest to nature' as possible.

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Thanks for the tips. I never knew regular bottled water had so much minerals in it already

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Hi, everybody! Heads up! Throw away all rough drafts of YES because final copy will be ready soon. I hope you can pass this message along to other kidney threads. (Yes, I'm lazy. No, make that tired.) Thanks for all the suggestions.

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I am new to the group and I am having a hard time figuring out what to eat is right and or wrong. I wish I had someone to prepare my meals for me.

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@sherelle930, welcome to the group! There's a downloadable fairly simple recipe collection here. If one of the members of the group can't post it for you, let me know and I'll re-post it. Words of caution: clear a recipe with your care team before making something and since manufacturers can change ingredients the values in those recipes might have changed since their writing. Alway, always, always read labels! We're glad you joined us. Love and hope live here.

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I'm trying to stay away from "white" food and junk food. Easier said than done.

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@sherelle930

I am new to the group and I am having a hard time figuring out what to eat is right and or wrong. I wish I had someone to prepare my meals for me.

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@sherelle930 Oooh, when they are finished at your house, please send them over to mine!
Welcome to Mayo Connect. We are all fellow patients, caregivers, and family members here, not medical professionals. We lend support and share our experiences, to help others on their own journeys. Like @kamama94 mentioned, she has a recipe type book on here that is geared towards kidney disease patients. I myself am in Stage 3b/4 at the moment, but also have to tweak my diet because of gout.

Actually, fixing your own meals and getting involved in the way things taste, and presentation, can help detract from those items on the "cannot have" list. Seasonings play a big draw in tasty meals. If you haven't been in consultation with a renal dietician, ask your nephrologist to get you one.

Besides that, and kamama94's recipes, also look at rsnhope.org and davita.com for ideas. Please come back and let us know what you cook up!
Ginger

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@sherelle930

I am new to the group and I am having a hard time figuring out what to eat is right and or wrong. I wish I had someone to prepare my meals for me.

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@sherelle930, I want to also extend a Welcome to Mayo Connect. I have a few questions for you so that our members can best share their experiences with you to support you with your food requirements. Have you been recently diagnosed with Chronic Kidney Disease (CKD)? Has your doctor given you any directions about your diet? What is your biggest difficulty in selecting foods?

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