Confused About Diet for Stage 3 or 4 Chronic Kidney Disease (CKD)

Posted by wietop @wietop, Dec 13, 2017

I was diagnosed with Stage 3 CKD four years ago, but my doctor didn’t tell me. When he retired and I had to find a new doctor is when I found out. I’m new to this and completely confused when it comes to diet. I am currently eating a sandwich for lunch, made with Ezekiel Low-Sodium bread, which is sprouted whole grain bread. In my research I have found some sites that say never eat whole grain bread, while others say you can eat it with no problem. My doctor has told me I don’t need to change my diet, but, as you can imagine, my trust factor is pretty low right now. I’m trying to find some solid information about which breads I should avoid and which ones are okay.

@sissieann

Thank you…thank you!!! Question, “chicken flavor protein sticks”??? For some reason, protein scares me (now)….recipe sounds pretty good! I love pasta so, I’ll check it out!

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Morning Star Farms and Gardein make "chicken"-flavored strips, patties, and nuggets as well as "beef" and "pork" flavored shreds and patties. Some I use, some I do not because they have too much sodium and/or protein and I usually prepare less than the standard serving. Right now I don't have to limit protein but as an almost vegan (the only animal product I use is egg white) several combinations of vegetables=a complete protein indistinguishable from meat protein even on a molecular level.
Also, Daiya and Go Veggie "cheese" flavored products are a good choice for me, approved by my nephrologist as long as I am in stage 3.
I'll post more recipes later.

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@rosemarya

@wietop Good Morning and welcome to Mayo clinic Connect. I am a volunteer mentor here on Connect I want to share with you what Mayo Clinic has to say about Chronic Kidney Disease (CKD).
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/symptoms-causes/syc-20354521
I had acute kidney failure that was related to liver failure, and was immediately placed on dialysis and a restricted diet that was monitored by a nutritionist. So, I’m afraid that I don’t have any experience about your particular dietary question.

While we wait for someone else to add their input, would you mind telling us a little more about yourself? Are you being monitored for your CKD? Have you been seen by a nephrologist? Have you asked to be referred to a nutritionist?

Rosemary

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If you’re asking me…moved to PNW from Arkansas in ‘79 with husband and daughter. Retired in ‘09….from managing hospital gift shop and Starbucks. I started seeing a nephrologist a couple of years ago. He was concerned but didn’t suggest any changes….then early this year I hit stage 4 and here I am…My diet has been horrible for several years….I just got sick of cooking so was living off fast food…junk. Every now and then I’d cook a roast with carrrots and potatoes to make myself feel better….I miss that roast with carrots and potatoes but…that’s life now! lol Heading to Savannah for Thanksgiving with family! I’m thinking…..how will I manage my food on the road! I want to be kind to my kidneys so…. I’ll keep reading and taking notes! Thanks for letting me join….it’s nice to know I’m not alone!

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@sissieann

If you’re asking me…moved to PNW from Arkansas in ‘79 with husband and daughter. Retired in ‘09….from managing hospital gift shop and Starbucks. I started seeing a nephrologist a couple of years ago. He was concerned but didn’t suggest any changes….then early this year I hit stage 4 and here I am…My diet has been horrible for several years….I just got sick of cooking so was living off fast food…junk. Every now and then I’d cook a roast with carrrots and potatoes to make myself feel better….I miss that roast with carrots and potatoes but…that’s life now! lol Heading to Savannah for Thanksgiving with family! I’m thinking…..how will I manage my food on the road! I want to be kind to my kidneys so…. I’ll keep reading and taking notes! Thanks for letting me join….it’s nice to know I’m not alone!

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Ah, we're off to Chicago for Thanksgiving and the only food anyone eats there is pizza. How to manage food when one is eating every meal out is my question. I find this discussion extremely interesting but do not understand why my nephrologist seemed totally disinterested in discussing food. Shall take all your comments with me when I check in with a dietitian.

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Hi, all. Good Morning. You have me thinking and searching👀 on this Monday morning.
I want to add to thyis conversation by sharing what I have found!
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/symptoms-causes/syc-20354521
How kidneys work
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/multimedia/how-kidneys-work-video/vid-20207497
Low-phosphorus diet: Helpful for kidney disease? Includes a table of high and low phosphorus foods.
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/expert-answers/food-and-nutrition/faq-20058408
Effectively managing chronic kidney disease
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/multimedia/vid-20209090
Renal diet for vegetarians
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/expert-answers/renal-diet/faq-20058205
I am anxious to hear what you read that will be useful to your own situation. Remember that we are all individuals and our needs are different (as is mentioned in several of these resources).
I hope we can all learn as we learn and share ways to eat healthy and to take care of our kidneys.

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@sissieann

If you’re asking me…moved to PNW from Arkansas in ‘79 with husband and daughter. Retired in ‘09….from managing hospital gift shop and Starbucks. I started seeing a nephrologist a couple of years ago. He was concerned but didn’t suggest any changes….then early this year I hit stage 4 and here I am…My diet has been horrible for several years….I just got sick of cooking so was living off fast food…junk. Every now and then I’d cook a roast with carrrots and potatoes to make myself feel better….I miss that roast with carrots and potatoes but…that’s life now! lol Heading to Savannah for Thanksgiving with family! I’m thinking…..how will I manage my food on the road! I want to be kind to my kidneys so…. I’ll keep reading and taking notes! Thanks for letting me join….it’s nice to know I’m not alone!

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trishanna, I want to suggest that you take a look at this link. There is a easy-to- read chart that you could copy and take with you for easy reference.
Low-phosphorus diet: Helpful for kidney disease? Includes a table of high and low phosphorus foods.
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/expert-answers/food-and-nutrition/faq-20058408
What do you think?

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@rosemarya

Hi, all. Good Morning. You have me thinking and searching👀 on this Monday morning.
I want to add to thyis conversation by sharing what I have found!
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/symptoms-causes/syc-20354521
How kidneys work
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/multimedia/how-kidneys-work-video/vid-20207497
Low-phosphorus diet: Helpful for kidney disease? Includes a table of high and low phosphorus foods.
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/expert-answers/food-and-nutrition/faq-20058408
Effectively managing chronic kidney disease
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/multimedia/vid-20209090
Renal diet for vegetarians
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/expert-answers/renal-diet/faq-20058205
I am anxious to hear what you read that will be useful to your own situation. Remember that we are all individuals and our needs are different (as is mentioned in several of these resources).
I hope we can all learn as we learn and share ways to eat healthy and to take care of our kidneys.

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Thanks, Rosemary! Will check these out ASAP

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@trishanna

Ah, we're off to Chicago for Thanksgiving and the only food anyone eats there is pizza. How to manage food when one is eating every meal out is my question. I find this discussion extremely interesting but do not understand why my nephrologist seemed totally disinterested in discussing food. Shall take all your comments with me when I check in with a dietitian.

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Help is available! You (we)are not alone in this struggle.
I think it is a great time of the year to recativate the discussion – Fighting Holiday Blues Food Problems
https://connect.mayoclinic.org/discussion/fighting-holiday-blues-food-problems/
Who wants to go first!

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@rosemarya

Hi, all. Good Morning. You have me thinking and searching👀 on this Monday morning.
I want to add to thyis conversation by sharing what I have found!
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/symptoms-causes/syc-20354521
How kidneys work
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/multimedia/how-kidneys-work-video/vid-20207497
Low-phosphorus diet: Helpful for kidney disease? Includes a table of high and low phosphorus foods.
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/expert-answers/food-and-nutrition/faq-20058408
Effectively managing chronic kidney disease
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/multimedia/vid-20209090
Renal diet for vegetarians
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/expert-answers/renal-diet/faq-20058205
I am anxious to hear what you read that will be useful to your own situation. Remember that we are all individuals and our needs are different (as is mentioned in several of these resources).
I hope we can all learn as we learn and share ways to eat healthy and to take care of our kidneys.

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Re renal diet link, vegetarian renal diet
I noticed that beans are recommended here as well as soy. Because of high potassium content, I've been told to avoid beans. I also noticed that there's no mention of non-dairy cheese flavored products, most of which are vegetarian and many actually vegan and which my own nephrologist approved for me in stage 3 CKD.

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@rosemarya

trishanna, I want to suggest that you take a look at this link. There is a easy-to- read chart that you could copy and take with you for easy reference.
Low-phosphorus diet: Helpful for kidney disease? Includes a table of high and low phosphorus foods.
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/expert-answers/food-and-nutrition/faq-20058408
What do you think?

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@rosemarya. To say I'm surprised at what is or is not included in a low-phosphorous diet is to put it mildly! No one said word one to me about diet, not even my nephrologist. It's going to be a bit of a problem to find substitutes for some of these items, particularly milk and meat, but was already planning to see a dietitian. Now at least I'll have some idea of what my problems are. Bit difficult to substitute easily with product availability limited where I live. If anyone has suggested convenience food products that would work, I'd love to know about them. Cooking for me is somewhat of a problem and we do depend on convenience and/or restaurant foods to help! BTW, long before this conversation, I've been complaining about "fluids" added to our local fresh meat products. Butcher's tell me it's to enable a longer shelf life, but on a purely esthetic and taste level, I find these additions to be unacceptable.

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@trishanna

@rosemarya. To say I'm surprised at what is or is not included in a low-phosphorous diet is to put it mildly! No one said word one to me about diet, not even my nephrologist. It's going to be a bit of a problem to find substitutes for some of these items, particularly milk and meat, but was already planning to see a dietitian. Now at least I'll have some idea of what my problems are. Bit difficult to substitute easily with product availability limited where I live. If anyone has suggested convenience food products that would work, I'd love to know about them. Cooking for me is somewhat of a problem and we do depend on convenience and/or restaurant foods to help! BTW, long before this conversation, I've been complaining about "fluids" added to our local fresh meat products. Butcher's tell me it's to enable a longer shelf life, but on a purely esthetic and taste level, I find these additions to be unacceptable.

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I never tolerated milk well, only cooked with it. Then when I found out about having CKD I switched to kidney-friendlier unsweetened almond milk to cook with. Other than that it tends to thicken during cooking, I can't tell the difference. I even drink a half-cup now and then and find it tastes quite good.

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@trishanna

@rosemarya. To say I'm surprised at what is or is not included in a low-phosphorous diet is to put it mildly! No one said word one to me about diet, not even my nephrologist. It's going to be a bit of a problem to find substitutes for some of these items, particularly milk and meat, but was already planning to see a dietitian. Now at least I'll have some idea of what my problems are. Bit difficult to substitute easily with product availability limited where I live. If anyone has suggested convenience food products that would work, I'd love to know about them. Cooking for me is somewhat of a problem and we do depend on convenience and/or restaurant foods to help! BTW, long before this conversation, I've been complaining about "fluids" added to our local fresh meat products. Butcher's tell me it's to enable a longer shelf life, but on a purely esthetic and taste level, I find these additions to be unacceptable.

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trishanna, You are making a good choice by making an appointment with nutritionist. My suggestion, if I might add it, is to go to someone who is knowledgeable about specifics related to kidneys. Perhaps your nephrologist can suggest someone.
I hope that you can learn about the dietary adjustments that will fit into your own life situation as well as your own kidney issue and any other contributing health concerns.
One thing that I have learned over the years, is that we are not a 'one size fits all'. As we share and learn with each other we can also go to our appointments loaded with questions and hopefulky improved lab results. My current situation is that I am trying to become better aware of foods so that I can make better choices.

Trishanna, I will be interestd to hear what your nutritionist suggests about convenience and/or rrstaurant foods that you (and many of us) depend on. I hope to hear from you soon.

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Can't remember if I posted this here or somewhere else, if it's a repeat please forgive me,
Please check for errors, always read labels, ask renal care providers if ok to eat.
Mac & cheese:
1 C cooked macaroni-approx ½ C dry (61.6 mg K, 81.2 mg P)
¼ C chopped onion (29.3mg K, 7.3mg P)
1 C non-dairy mozzarella flavored shreds (40 mg K, 40 mg P)
Sauté onion in sm amt EVOO, drain, stir into mac, stir in 1 C shreds, micro 1-2 min to melt
Total 140.9 mg K (7 %) 128.5 mg P (13 %)

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