Confused: Lung cancer, pulmonary fibrosis and more

Posted by shamrock5jeg @shamrock5jeg, May 4, 2021

New to this forum. Actually, never tried any type of forum so I really don't know what I'm doing. Anyhow, after reading some of the posts I guess I am not so bad off. I have lung cancer in my right lung, pulmonary fibrosis, peripheral neuropathy, chronic pancreatitis and just developed shingles last week. Am treating skin cancer on my forehead with fluorouracil cream. Need more radiation for Basel cell on my neck. Left lung cancer was treated with SBRT and is "cured".Right lung is not being treated due to the fibrosis. Still function pretty good, Only take 4 meds. Walking is the biggest problem. Want to dance again, walk, climb stairs, drive a stick shift. Want my legs Back! Sorry I rambled on. My heart goes out the others I read about. Wish they could solve all the problems, it hurts to me to read their stories and makes mine so trivial.

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Is there any trials for BRAF colon cancer metasized to the liver ?

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Also they gave me three options the other day 1) do the Y 90 beads but really have not had success with them
2) do illostphy because I keep getting. Diverticulitis . 3) go into to hospice . My cancer has grew because I cannot stay in drugs for colon cancer because of this . Please help with any comment

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In reply to @migizii "😔❤️" + (show)
@migizii

😔❤️

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You are very brave and your feelings are. Very loved . I can tell the love you had for both of them .?Goid Luck and take care 😞❤️🙏🏼🙏🏼❤️🙏🏼❤️🙏🏼❤️

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@duckduck2020

Is there any trials for BRAF colon cancer metasized to the liver ?

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Good morning Duckduck, it's nice to meet you. You've had a rough time. This is what I found:
https://www.cancer.gov/search/results?swKeyword=BRAF+colon+cancer+metasized+to+the+liver+
https://www.cancer.gov/about-cancer/treatment/clinical-trials/disease/colon-cancer/treatment
https://www.cancer.gov/about-cancer/treatment/clinical-trials/disease/liver-cancer
Perhaps others can fill in other sites that will offer other options for you.

Have you asked your doctor for recommendations?
Can I help with anything else?

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@merpreb

Good morning Duckduck, it's nice to meet you. You've had a rough time. This is what I found:
https://www.cancer.gov/search/results?swKeyword=BRAF+colon+cancer+metasized+to+the+liver+
https://www.cancer.gov/about-cancer/treatment/clinical-trials/disease/colon-cancer/treatment
https://www.cancer.gov/about-cancer/treatment/clinical-trials/disease/liver-cancer
Perhaps others can fill in other sites that will offer other options for you.

Have you asked your doctor for recommendations?
Can I help with anything else?

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Yes I have and he thinks that I should have a illosophy and then go on fullfury and advastin after I have been on full fury . So I had diverticulitis and am on antibiotics right now will be off in 5 days . So my surgery is scheduled for the 19! Th of May then it will be another 2 weeks before I can have chemo . I am allready turning a bit yellow . I have no idea what to do

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@duckduck2020

Yes I have and he thinks that I should have a illosophy and then go on fullfury and advastin after I have been on full fury . So I had diverticulitis and am on antibiotics right now will be off in 5 days . So my surgery is scheduled for the 19! Th of May then it will be another 2 weeks before I can have chemo . I am allready turning a bit yellow . I have no idea what to do

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@duckduck2020– Is this your oncologist's recommendations? Will you do chemo without a trial?

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Yes it is the oncologists recommendation

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@duckduck2020

Yes it is the oncologists recommendation

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Then I would follow his directions. Are you worried that cancer will overtake everything else and that it should be done first?

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@merpreb

Then I would follow his directions. Are you worried that cancer will overtake everything else and that it should be done first?

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Yes I am worried the cancer is going to take over fast because it is BRAF type , without any chemo for 2 months it has been hard .

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@duckduck2020

Yes I am worried the cancer is going to take over fast because it is BRAF type , without any chemo for 2 months it has been hard .

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Where are there clinical trials around here .? I live in Appleton WI

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