Concerned about my dad’s new Mac diagnosis
Hi everyone, I’ve been reading discussions in this group on behalf of my father. This past month he was diagnosed with MAC during hospitalization due to low oxygen levels and difficulty breathing. He had a cough before that didn’t seem to bother him much until one day he suddenly couldn’t catch his breath. He was put on oxygen and was treated with several antibiotics while they awaited results from sputum cultures. He also had a bronchoscopy that resulted in a pneumothorax and was treated for an air leak for about a week before it finally resolved. Now he is on specific antibiotics since his cultures confirmed mac and they sent him home with an oxygen tank and told him to follow up with the pulmonologist and infectious disease Dr in 1-2 weeks. My mom and I brought him home with us as he normally lives alone. He is barely functioning. His cough attacks are terrible and sometimes he vomits during them. We can’t leave him alone and am surprised that the hospital was willing to send him home to fend for himself in this condition.
I’m posting this because it seems that most people who are dealing with MAC are not suffering to the extent that my father is. The hospital specialists basically told us we just have to wait to see if the meds work. We feel he has declined in the past week since we brought him home. We have follow up appts tomorrow but I am now searching for a pulmonologist who specializes in MAC and am not even sure where to start. It’s quite discouraging how little is known about this infection. He seems completely exhausted and depressed and the cough attacks are very scary. Is there anyone out there who has it this bad??
Thanks in advance🙏🏽