Complex partial seizures and small fiber neuropathy

Does anyone with neuropathy have seizures? If so how do you sleep and cope with the pain along with the stress? I have discovered when I do not sleep because of the pain and stress my seizures get worse. I end up injuring myself due to falling. Which happens quite often.
I wake up at 2am every night and can’t get back to sleep. Sometimes I get up and drink hot chocolate and can go back to sleep.

@artemis1886 meet @julbpat, who also posted about seizures and neuropathy here:
- Complex partial seizures and small fiber neuropathy: https://connect.mayoclinic.org/discussion/complex-partial-seizures-and-small-fiber-neuropathy/

I've moved your posts into one discussion so you can connect.

Also I am allergic to all seizure meds.

I sometimes have a hard time deciding if it’s balance issues or seizures. So does my neurologist. They have shown up once on a brain scan but not on an eeg.
My migraines show up on my brain scan every time I get one. My speech slurs with my migraines. I ended up with severe migraines when I got bacterial spinal meningitis.

Thank You it’s frustrating since I am allergic to all seizure meds.
I can’t get myself back to sleep.
The temperature one week is in the 60’s in Texas and then back near 80’s. The heat during the summer is unbearable. 120 degrees we are looking to move somewhere else. It’s weird my feet and hands freeze the rest of my body sweats at night. My husband puts his hands on me and he says it’s like sticking them in a fire place.

Dear @artemis1886
I can very well understand your feelings since I have also not adapted to AEDs (epilepsy meds). They have done more harm than benefits to me. My current epileptologist says that I have refractory epilepsy (that is very difficult to treat with conventional meds for epilepsy) and hits around 1/3 of people with epilepsy (and even more those who have temporal lobe epilepsy like me).
So, I and my doctors have looked for alternatives. I treat myself today with medical cannabis which has been a great med. Unfortunately, not many neurologists and epileptologists are acquainted with it and there is still much prejudice. Perhaps this could also help you with your seizures?
I have also been following a strict gluten-free diet, which has reduced my seizures by more than 60%. Taking gluten out of my diet has been much easier than I thought.
It is well-known that little sleep and stress are triggers to seizures. When I was having many problems with my sleep, I started to practice yoga nidra, which has been very helpful. For example, this morning I felt I did not sleep well and after my daily exercise, I practiced my yoga nidra. 20 to 30 minutes of yoga nidra can correspond to up to 2 hours of deep sleep. I practice yoga nidra daily, usually after lunch. But today I felt tired already when getting up. Here is a link with some information on yoga nidra, explaining what it is.
https://health.clevelandclinic.org/what-is-yoga-nidra/
All the best to you!
Chris (or Santosha)

I live in Texas. Non medical marijuana state. I am curious about the medical marijuana. We are stationed in Germany currently which is a medical marijuana country. We have discussed me going off my pain medications onto the medical marijuana. Then there is the question remains what happens when I come home to visit. What type are you on? When we come back we are looking at living in Colorado Springs. Can you tell me more on how it works? I have tried indica when I have visited Colorado and California. I got the best sleep ever and stayed asleep. It took over 10 mgs which surprised me. I did edibles being asthmatic.

Thank You for replying

@artemis1886 Good Morning
Germany is a country that is very open to integrative medicine and homeopathy, explore it while you are there. The German health system works very well. And they have also great products, such as Weleda. I know it myself as I have lived in Germany for a while. My mother is German, knowing well this country. In which part of Germany are you living?
I take pure CBD 200 mg from medical cannabis, but I intend to see a medical cannabis specialist and go back to full-spectrum (with a bit of THC). I was even better with full-spectrum medical marijuana than just CBD. I feel my epileptologist has some restrictions to full-spectrum medical cannabis as he does not have deep knowledge of medical cannabis.
How does it work? I take the oil of CBD, 0,3 ml in the morning and 0,4 ml in the evening that I dose with a syringe. Yesterday, for example, I went early in the morning walking in the park and took my syringe with me. It is very easy to transport.
Up to now, I have taken my medications without any problems on my trips to Europe and Latin America with just a declaration from my epileptologist. However, I have not been to the US since I am taking this medication (2021). I live currently in São Paulo City, Brazil. This is something I need to check when going to the States to visit a family member and friends. Could you perhaps tell me if medical marijuana is authorized in Florida and Washington DC, please? I intend to travel to the States next year.
Meine beste Wünschen und Alles Gute!
Liebe Grüsse,
Chris (or Santosha)

Florida has only medical marijuana
Washington DC has recreational and medical marijuana legalized.
Only hemp oil is legal anything else can send you to jail because on the federal level it’s not legal.
Across the United States. hemp oil which is 0.03 percent thc unlimited cbd. I just know when I did 10 mgs thc and 10 cbd I slept and did not wake up with my feet hurting at 2 am. We spent two years in Hohenfels down in Bavaria. Currently, biggest town to us is nicknamed K-Town which is really Kaiserslautern