Coming to Mayo
For about 4 years I have had a lot of different health problems with no diagnosis of anything. I started by having numbness, tingling and burning in my hands and arms. Symptoms to follow were unsteadiness, forgetfulness, vision problems that would come and go. In Jan 2017 I was admitted to the hospital with what was to be thought a stroke. I couldn’t think right, my left side of my face drooped, swallowing was a little difficult. When given test to feel if I had sensation in legs and arms, I barely felt anything except pressure. I left with some mention of MS, but no test were done. Only heart tests. Instructions to follow up with my neurologist. When I went, he blew off the MS and said I was having migraines that were affected by my central nervous system. I was having headaches on a daily basis, but not what I had experienced before. Not the debilitating pain. He started doing Botox. Did it for 3 months but I didn’t feel much change. August 28, 2018 i fad a pain that started in my right foot. Since has spread to both feet and ankles. I have a pretty high pain tolerance, but this is absolutely the very worst pain. It has gotten so bad that I use a Cain to walk, very unsteady. Pain started as stabbing pain and now is constant pain in toes and ankles. I have had nerve conduction testing and small nerve testing—both were fine. I have had MRI and Cat Scans with no lesions. I absolutely cannot do any more of this. I have no life anymore. My Drs here just shake it off saying they have nothing more they can do. I made an apt at Mayo and go in Jan. I am excited that they will help me and nervous that they won’t find anything wrong.
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@cindy66 as I read your post from several years ago, it was as if my husband wrote it! He has a high pain tolerance so honestly before the path of seeing over 32 different doctors in a 2 year time span, 2 different full week stays at National Jewish (Dec 2021 & March 2022), a trip to Pittsburgh to the concussion institute, seeing cardiologists, pulmonologists, neurologists, endocrinologists, more Er visits than I can count, seizures, raging headaches, PT appts along with eye therapy, nerve testing indicating “polyneuropathy”, he’s to the point he has lost all hope. His new neurologist does not believe in persistent post concussion syndrome nor does he believe in CTE? He play high school and college football, Crack helmets from then along with snowmobile helmets, in a car accident from 20 years ago that made all of his hair fall out in the back of his head.
I know your post from a long time ago, but I would like to know how it went and what determinations they made? It’s time we get help from somebody who may be able to help him if they were able to help you. Instead of one more doctor, that is gonna just throw another medication at him, 13 prescriptions in all currently!
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1 ReactionI’m just seeing your message about to have my first visit to Mayo in Neurology. Your symptoms and experience sound very much like mine. Having your symptoms dismissed is horrible especially when suffering and declining. If you get this, would you mind sharing if you were finally able to get the help you needed. Praying for you and your answer and recovery. 🙏🏻🦋