They say I have CMML but bone marrow not there: What to do?

Welcome to Connect, @lmoser325 Chronic Myelomonocytic Leukemia (CMML) is a type of leukemia disrupts the formation and activity of blood cells in the bone marrow. There are different levels of this disease which can determine the type of treatment plan going forward. I’m providing a link to an article that does a good job of explaining this blood disease.

From healthline.com
https://www.healthline.com/health/leukemia/chronic-myelomonocytic-leukemia
If you don’t mind sharing, would you mind telling me how you were diagnosed. Did you have a bone marrow biopsy?
It isn’t unusual with chemotherapy for all blood numbers to drop midway during a chemo cycle and then they climb again as the blood cells are reproduced. The goal with chemo is to knock down the cancer cells. From what you’re telling me you started chemotherapy or was it another drug?

Yes it was then they move treatment from 4 weeks to 8 weeks that when I started having problems

My monocytes were elevated for over 2 yrs as well as abnormal hemoglobin, RBC, hematocrit. My family dr kept putting me off saying that it must be 'internal bleeding' although there was no evidence of this nor could she tell me where the bleeding was. I finally requested a referral to a hematologist as I was feeling very tired and cold all of the time. Had an appt in the Cancer Centre within weeks and got the diagnosis after further testing. Watch and wait, no treatment required as of yet. Did get a new family dr though.

Hi @trijacks and welcome to Mayo Connect. Good grief, so your family doctor kept putting off your symptoms, saying it must be internal bleeding???!!! And yet not having that investigated? 🤦🏽‍♀️. Well, I’m glad you took the initiative to get a hematology referral…and a new family doctor!
I had a similar story, resulting in a new doctor as well.

As often the case with CMML, you’re in an active surveillance period because it tends to progress very slowly. That doesn’t change some of your symptoms but at least you now have answers and a specialist on your team! How often are your follow-up appointments and labs?

It's great that you got a new PC and are now receiving care at a Cancer Center.
A few thoughts:
CMML can progress slowly as is probably your case since you are on watch & wait. How slowly or how rapidly progression occurs can be very different from one person to another. CMML typically has associated gene mutations which can aid a physician in determining a prognosis.
Should you at some point want to investigate the possibility of a clinical trial, that's something Blood Cancer United (BCU) aka LLS can help identify for you.
BCU can also connect you with a CMML diagnosed volunteer for a one-on-one conversation.
Exercise will help with stress and fitness for treatment.
Wishing you the best on your CMML journey.

@loribmt i see the hematologist.oncologist every 3 months for now.