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They say I have CMML but bone marrow not there: What to do?
Blood Cancers & Disorders | Last Active: Dec 20, 2025 | Replies (6)Comment receiving replies
My monocytes were elevated for over 2 yrs as well as abnormal hemoglobin, RBC, hematocrit. My family dr kept putting me off saying that it must be 'internal bleeding' although there was no evidence of this nor could she tell me where the bleeding was. I finally requested a referral to a hematologist as I was feeling very tired and cold all of the time. Had an appt in the Cancer Centre within weeks and got the diagnosis after further testing. Watch and wait, no treatment required as of yet. Did get a new family dr though.
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Hi @trijacks and welcome to Mayo Connect. Good grief, so your family doctor kept putting off your symptoms, saying it must be internal bleeding???!!! And yet not having that investigated? 🤦🏽♀️. Well, I’m glad you took the initiative to get a hematology referral…and a new family doctor!
I had a similar story, resulting in a new doctor as well.
As often the case with CMML, you’re in an active surveillance period because it tends to progress very slowly. That doesn’t change some of your symptoms but at least you now have answers and a specialist on your team! How often are your follow-up appointments and labs?