Chronic UTI's after Chlamydia from five years ago

Posted by strength18 @strength18, Dec 15, 2020

Hi Everyone,
I had contracted chlamydia back in May 2016. The day after I had sex with this partner, I had burning sensation when peeing. Worse pain of my life. I didn't know that was what happened, so I went to the doctor and denied STI testing. They tested for a UTI which came back positive, so they gave me Cipro. The pain subsided temporarily. It came back weeks later, went to the doctor and same thing. Finally my partner was honest that they weren't sure if they were clean or not so I got tested. I was told I had chlamydia in August 2016. I had taken the shot medicine for Chlamydia. I took this at Planned Parenthood. It is a foamy drink in a shot. The symptoms never went away. I went back two weeks later and tested positive again for Chlamydia - the doctor said this was normal. I did not have sex with anyone but my partner in that time frame. I took the shot again. My partner said they took a pill from Planned Parenthood.
Ever since this encounter, I have had sever bladder pain and bleeding. I was hospitalized multiple times for this. Every time the doctors don't believe my pain level is really a ten, but it is. I have been tested for STI every month since because doctors believe that might be the issue - It is not. I have not had a positive test since August 2016. I have had a positive UTI culture/dipstick test about 35 times since September 2016 (after being negative for Chlamydia). That's an infection a month for two years and the symptoms/pain subsided in 2019/early 2020 for a few months. But it's back which is why I'm writing this. During this time frame, I've had the infections get so bad because doctors didn't listen that I've had 3 kidney infections.

Now let's break down these past years with this chronic illness:
Symptoms:
Bladder pain while peeing and after words, bladder pain sometimes when the bladder is full, occasional blood in my urine, abdominal pain, nausea/vomiting, and flank pain.
These symptoms don't happen all the time, about 99.9% of my days have the bladder pain while peeing and after words. If the infection gets bad enough and the doctors won't let me come in for urine sample, the other symptoms start happening. I know when my body has an infection after these years. I cannot go to the urgent care because of my past with UTI's. I have to make an appointment with a regular doctor, which takes days to see them and makes the infection worse.

Medications i've tried:
Trimethoprim/sulfamethoxazole - I ended up being allergic to this. Prescribed once, the allergic reaction happened after second or third dose.
Nitrofurantoin - I've been given this for almost all the infections I've had. Also tried taking this twice for a year. I only made it to month three due to severe side effects.
Cephalexin - Been given three or four times, especially during the kidney infections. This worked fast but the infections came back.
Ciprofloxacin - The rest of the half of infections, I was given this. I feel my body is immune to this anti-botic now.

Procedures I've done:
I've had the camera inserted into my bladder three times. They never found anything alarming. No cysts or stones.
I've had an ultrasound twice for my bladder. They found nothing.
Like stated above, was diagnosed to take antibotics for a year but only made it to three months. The side effects were awful: intense stomach pains, diarrhea, and weight gain.
Tried altering my diet. Nothing changed the infections.
I've consulted a Urologist twice - They couldn't tell me what was wrong and just said I have chronic bladder pain and there is nothing to do.

My lifestyle:
I tried to see if sex was the cause. I didn't have sex for months and still had infections. In 2020, I realized the bad infections came after having sex with a new partner. Now it seems sex might be the issue but I'm unsure for that.
I don't have an unhealthy diet or anything like that. I drink plenty of water, sometimes drink cranberry juice. I don't have caffeine, chocolate, spicy foods. I do drink alcohol socially, I do notice my bladder doesn't like it so I don't drink too much.
My life is stressful. And during 2019, the happiest year of my life, the infections seemed to subside - only having three in the entire year.

The Bacteria:
The bacteria that is present in all my results is: Escherichia coli (E. coli) and Staphylococcus. Those are the only ones I've heard the doctors say over the years. The did the test, got the results, gave antibotics, and then never spoke of it until the next infection. No doctor has ever tried to figure out.

My Life Prior:
I had never had a UTI prior to all of this. I was sexually active as well. I was in a long term committed relationship for five years and then one other partner after that one. It all started after having Chlamydia.

Important:
The same man who gave me Chlamydia ended up not actually taking the medication for it. Ended up passing it on to someone I knew and she is going through this exact same issue today. She contracted it in 2017.

If anyone out there knows anything, or has any advice, please help me. This pain and suffering has been hard to endure. This happened when I was 19 and I am 24 years old now. I feel I have lost all hope and lost my entire twenties (as of now) to being ill. I had to drop out of college due to appointments and pain. I have lost jobs due to missing work because of the pain. Wearing tight pants or skinny jeans, make my bladder irritated and I end up having pain. My mental health has suffered due to this as well, I am depressed after going through this. I want my life back. I am trying to remain hopeful but over the years, it gets harder to. I will gladly answer any questions!

(Please note my mental health is under control now, but there was a dark time in my life due to this issue.)

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

Hi @strength18, welcome to Mayo Clinic Connect. You've written a very thorough description of your medical history and experience with chlamydia trachomatis and urinary tract infections (UTIs). The persistent, recurrent nature of the UTIs is obviously having a significant negative impact on your life. I'd like to also bring @da_best into this discussion.

Strength, have any of the doctors you've seen mentioned Pelvic inflammatory disease (PID)? Here's some information about it:
https://www.mayoclinic.org/diseases-conditions/pelvic-inflammatory-disease/symptoms-causes/syc-20352594

You mentioned that you abstained from sex to see if that may have contributed to the cause. It usually recommended to avoid sexual intercourse until treatment is completed and symptoms have resolved. Did your abstinence coïncide with the treatment?

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Hello,

I am just following up to see if you have any update. My wife is suffering from the same things and went through what you did (however she doesn't have a staph or e-coli infection). Did you get treated for PID? Any updates?

REPLY

Hi,
Ive also had chlamydia in may last year and still feeling some symptoms, but not so hard. my main symptom is vaginal discharge which I have ever since I was cured from chlamydia. I’ve tested all STD’s negative, and also Candida, gardanela, streptococcus…
Because of disbalanced vaginal flora for one year I’m very susceptible to new infection. One year they couldn’t find me any bacteria but the last time they found enterococcus and they ordained me Cipro also. Now I need to go retest on it. But in meantime I was reading a lot on that topic (I don’t have symptoms except vaginal discharge) and found out that Lactbacili - good bacteria - are killing these coccus bacteria in vaginal flora and in urinary tract. You can try if you are not already, to use a lot of supplements with lactobacillus as yogurt and oral probiotics, and also maybe some vaginal products. I’ve heard a lot of positive effects of lactobacillus to these bacteria.
I’m now waiting to retest again, hope that I will be negative…

Good luck!

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And for God sake why these doctors think they know everything. It’s obvious that chlamydia isn’t researched very well and that there is plenty of people who have some kind of symptoms after treating it and they still doesn’t want to take any action to solve this problem for all of us, they only know how to prescribe antibiotics! I’m so angry at medical system.

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Just joined the UTI group through Mayo's. Wondering if you still have problems. I didn't have Clamydia but similar uti recurrence and dismay l Same donno's from doctors. Went to yet another minute clinic for quick test and the young male nurse suggested I try D=Mannose capsules daily from now on. I had told him the only help I got as for insight from the pros was recently a young doctor told me I had a spastic bladder. The nurse said I likely had a tendency towards tiny lesions in the bladder which get inflamed and let anything attack it. We all have a certain amount of E. Coli in our systems and mine, like yours, seems to easily pick up on it and let the bacteria in the bladder lining causing an instant infection. NOT from outside the body from poor toilet and bathing techniques. I tried it and have not had a uti for over a year except when I had surgery and was limited on how much water I could have for two days. My dosage was huge initially, 3 of the 2600 mg large capsules each morning. I drank only coffed for a while with water in large amounts as usual. Over a week I added decaf and diet soda. I quit drinking except for a sip to taste after I eat a large meal.

I'd say the young nurse gave me a huge blessing, and this stuff is merely a supplement. It is a type of sugar that is not the sweet kind, but coats the walls of the bladder. I now take one morning, one evening dinner time.

Please let me know if this helps, or if you solved the problem another way. Nothing worse than getting 'that feeling' and knowing you'll be in the ER or clinic asap. Same with long drives on holiday. Bad thing to do with our type bladder. I recently flew to Asia and had no problems there either. I carry a uti test strip all the time, sometimes I feel a twinge and it's not positive for uti, just an irritation from a drink or not enough water. VT

REPLY
@grim

Hello,

I am just following up to see if you have any update. My wife is suffering from the same things and went through what you did (however she doesn't have a staph or e-coli infection). Did you get treated for PID? Any updates?

Jump to this post

I just wrote her myself about the post clamydia trouble. I didn't have std, but same severe and one after the other infections. I solved it with a nurse's help. If you can't see my post let me know and I will tell you what I do. It involves taking D-Mannose, 2600 mg twice a day, just a sugar supplement that coats the bladder. Harmless. Now free for over a years of uti's which had me going to er or clinic about every 3 weeks.

REPLY
@dominos123

Hi,
Ive also had chlamydia in may last year and still feeling some symptoms, but not so hard. my main symptom is vaginal discharge which I have ever since I was cured from chlamydia. I’ve tested all STD’s negative, and also Candida, gardanela, streptococcus…
Because of disbalanced vaginal flora for one year I’m very susceptible to new infection. One year they couldn’t find me any bacteria but the last time they found enterococcus and they ordained me Cipro also. Now I need to go retest on it. But in meantime I was reading a lot on that topic (I don’t have symptoms except vaginal discharge) and found out that Lactbacili - good bacteria - are killing these coccus bacteria in vaginal flora and in urinary tract. You can try if you are not already, to use a lot of supplements with lactobacillus as yogurt and oral probiotics, and also maybe some vaginal products. I’ve heard a lot of positive effects of lactobacillus to these bacteria.
I’m now waiting to retest again, hope that I will be negative…

Good luck!

Jump to this post

I had similar issue, ER or clinic every 3 weeks or so. Finally a young male nurse (the new ones hear all the new treatments it seems) and he suggested I try D-Mannose supplement. Now uti free for over a years. It's a sugar that coast the bladder lining and prevents irritants from causing 'lesions' in the lining, which then let in any bacteria there. E coli and others are in our body all the time at small amounts which in a normal person don't cause issues. Turns out I was told I have a spastic bladder, irritated by alcohol, chai latte, pop and to a lesser degree coffee. I cut out all but the coffee and some decaf diet cola. Otherwise, I drink lots of water, pee very often, don't take a long car trip unless the driver agrees to let me dictate when we stop. It is a blessing to not know the ER staff by name and have them roll their eyes when I open the door... Good luck..

My daughter did have clamydia early, and had a lesion between her vagina and anus that took about 3 years to heal. That infection is really a doozy it seems, leaving most all with post infection symptoms lasting for years.

REPLY

I take d-mannose and cranberry vitamin c capsules twice a day. So far 2 years ok.

REPLY
@vlbondon

I had similar issue, ER or clinic every 3 weeks or so. Finally a young male nurse (the new ones hear all the new treatments it seems) and he suggested I try D-Mannose supplement. Now uti free for over a years. It's a sugar that coast the bladder lining and prevents irritants from causing 'lesions' in the lining, which then let in any bacteria there. E coli and others are in our body all the time at small amounts which in a normal person don't cause issues. Turns out I was told I have a spastic bladder, irritated by alcohol, chai latte, pop and to a lesser degree coffee. I cut out all but the coffee and some decaf diet cola. Otherwise, I drink lots of water, pee very often, don't take a long car trip unless the driver agrees to let me dictate when we stop. It is a blessing to not know the ER staff by name and have them roll their eyes when I open the door... Good luck..

My daughter did have clamydia early, and had a lesion between her vagina and anus that took about 3 years to heal. That infection is really a doozy it seems, leaving most all with post infection symptoms lasting for years.

Jump to this post

I did not have ciamydia but frequent uti they wanted me to go on intermittent caths but I refused. Went on d-mannose over 3 years now. So far so good

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@1942marilyne

I take d-mannose and cranberry vitamin c capsules twice a day. So far 2 years ok.

Jump to this post

Correction 3 years

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