Chronic upper stomach Pain/Nausea going on 4 yrs. ALL TESTS NEGATIVE

Posted by trip17 @trip17, Jul 31, 2020

I have been dealing with upper stomach pain and nausea for 4 years. Started two years after gallbladder removal. On 12/27/18 I had a Nevro H10 nerve block device implanted. Within a couple of months, the device was working well, probably 80% improvement (which I’d take now!). I was back to working out, biking, felt like I got my life back! Then after about 4-5 months, the symptoms started coming back. It’s been 14 months now and Nevro still can’t capture the working setting again. In the meantIme, the problem has worsened in the past 4-6 months. I wake every day with pain in the middle of my stomach, just below rib cage. It’s more of an “upset stomach/nausea” pain and usually let’s up a little about an hour after waking up. Sometimes it can also make me feel “fluish” and overall crappy, especially if I exert myself at all. If I start working on a project at home, I wIll start to feel lousy and have to rest. It will also sometimes be accompanied by extreme sweating. I cannot even play a simple round of golf. I’ve had EVERY Gastroenterology test and all is normal. Even a camera pill. I also had a series of heart tests done and everything is fine. Blood tests had shown a very low Iron levels, but we did iron IV’s to get that back up. In addition to the stomach, my feet started going numb and getting pain with pins and needles, especially when I sleep. Yesterday, I was diagnosed with Neuropathy and some nerve damage in my feet. On Monday I’m having tests to determine what is causing it. I do not have diabetes. I am also having a glucose tolerance test Monday. Neurologist said “it’s possible” that what’s causing my feet Neuropathy “could” be causing my stomach issue. I personally don’t believe that. Started seeing a Chiropractor again too. He feels the stomach pain could be gas/air bubbles that are getting trapped in my esophagus area. He’s working the area to stimulate the nerves and loosen the gas pockets.I also use a CPAP machine for sleep apnea, which alarms him because it forces constant air into my stomach all night long. I’m switching to a bi-pap machine to see if it helps. My MD tried a steroid pack last week, but it didn’t help. In 6 months I’ve had just ONE day (actually 3/4 of day) of no pain and normal energy. It’s very hard and I cannot live like this anymore. Since I can’t travel to the Mayo Clinic due to the Pandemic, I am having my MD refer me to a local Diagnostic clinic/hospital. The closest one to me is UT Southwestern in the Dallas area. Hopefully they can figure out what is causing this. All Liver and Pancreas tests are also fine. I’ve had a HIDA scan to make sure the “plumbing” where my Gallbladder was removed is not causing it (it’s in that area). This problem can vary day to day and even hour to hour in intensity and can go from “ok” to bad and back again. The ONLY thing that takes the pain away is Hydrocodone. I had to take anywhere from “zero” to 1.5 pills to control it for the last 5 years. Now over the past 4 months, I have had to take 2 to 3 pills per day to control the pain and nausea (I also take nausea prescription, but it doesn’t work well anymore. I am very concerned about addiction so working with my Doctor and making sure I take no more than three in a day. As far a prescriptions, I take Trintellix and Adderall (one pill each) in the morning along with a new blood pressure med I just started taking a month ago. I have not been able to sleep for years so I take Clonazepam for sleep. No food allergies or gastrointestinal problems. If anyone has a guess or if any of this sounds familiar, I’m open to ANYTHING! I also do Cryotherapy once in a while and the cold does help, but it doesn’t last. I’m asking my pain Dr about a SPLANCHNIC pain shot to see if he thinks it will hep until we can figure this out or get my NEVRO device to work. THANK YOU!!!
Chris

@ukyank

Hello everyone. I have been scrolling down this thread, reading along excitedly and taking notes… and if this thread were a novel, it would be a cliffhanger! I am desperate to know if any progress has been made with the original poster’s condition.

My daughter is now 16 and over the last 5 years her health has been in steady decline. It started out slowly. Maybe just episodes every few weeks… then every couple of weeks … then every week…until now there is no time ever when she is feeling good. This last year has been the worst. We have had to let her be homeschooled (which has turned out to be *no-schooled*) because she is just too ill every day, all the time. Her chronic nausea and stomach pain is so debilitating; at times she is doubled over, cannot be touched, and sobbing her little heart out. We have had the cameras, the endoscopies, the blood tests, the ultrasounds, the MRIs… all clear. We are desperate. We feel so utterly helpless. We live in London (I have just found out there is a Mayo Clinic here!) – but we would travel home to the USA at an instant if Jacksonville is the place we need to be).

You all are all so knowledgeable and it is a comfort to me that there are still unexplored avenues and untapped resources to get out of this seeming dead-end and save my daughter.

I will comb whatever threads I can find here.

Jump to this post

Oh… and I should add, we are currently pinning our hopes on a HIDA scan but the there is a shortage of the radioactive dye here apparently. Hopefully we will have the scan (that I have been begging for for 3 years!) within the next month.

REPLY

Hello @ukyank and welcome to Mayo Clinic Connect, where members come to get and give support. You mention being interested in hearing an update from the member who originally posted this discussion. In order to flag them of your interest, you can use the @mention. For example, to flag that member specifically, you would use @trip17 to let them know of your interest to hear from them.

Let me know if I can help provide contact information to request an appointment at a Mayo Clinic location.

In the meantime, what have the diagnoses been from the doctors you've been working with to date to explain her symptoms?

REPLY
@robinl

Hi
I had the same thing. In and out of different doctors and all my tests were negative. Went to see a natural Patric and she figured out and helped me by telling me remedies. I started taking licorice root for a month 3 times a day. Please follow instructions if you take. Then I was weaned off the medication my doctor gave me. I went to see a gastro and he said when there is negative results it’s dyspepsia and you need to watch what you eat. I’m feeling so much better with no flare ups and watching what I eat. I do cheat once in a while but that’s ok.
I hope you feel better and this information helps you.
Robin.

Jump to this post

I had the same diagnosis. Functional dispepsia . I have to be careful what I eat, very careful. I got a tip from some one on this site to take propanol it helps relax muscles and nerves. I took FD guard and it helped a lot for a year and then not so much. I am trying zebra muscle oil now. We will see!

REPLY

I am learning that whenever their pain inside my body. This is a warning sign for me. The majority of our body problems deals with what types of food are we putting into bodies. Question is do you really know. Check out website fork over knife lots of answer their.

REPLY
@opaltrade

I am learning that whenever their pain inside my body. This is a warning sign for me. The majority of our body problems deals with what types of food are we putting into bodies. Question is do you really know. Check out website fork over knife lots of answer their.

Jump to this post

@opaltrade Welcome to Mayo Clinic Connect, a place to give and get support.

It sounds like you have made some new changes regarding diet and nutrition. May I ask if there is any particular reason?

REPLY
Please sign in or register to post a reply.