Stomach pain and throwing up repeatedly

Posted by pinkfaith1979 @pinkfaith1979, May 4, 2018

My 11 year old son has that had stomach pains and has been throwing up for a month and the doctors just want to keep giving him meds they've done CT scans x-rays MRIs and still no idea what is going on he throws at 4 to 6 times a day he hasn't lost weight and has no fever and I'm very frustrated that he has missed almost a month of school because of this cuz he can hardly move cuz it stomach hurts

Interested in more discussions like this? Go to the Digestive Health Support Group.

This is hitting close to home. I came here to find out information on my 12 year old, otherwise perfectly healthy son. He has been throwing up 5-15 times per day for almost 3 months. It's always clear, he is absorbing food. We've taken him to a pediatric GI specialist at Duke, have our 4th appointment today. He's done the gastric emptying can, upper GI, ultrasound on the stomach, x-rays... bloodwork and urine tests out the wazoo. All is clear! And yet it's only getting worse. We took him to an allergist and did discover that he is allergic to all trees, grasses, molds... basically the state of NC. He's getting two allergy shots per week and on allergy medications until those kick in in a few months. IDK what else to do. I get the honor of dropping my straight A student off at school while he bends over in pain and pukes out the window at least once on the 1.4 mile ride to school.
We are all at a breaking point. He has classic soccer tryouts this week, thank goodness his coaches know him and have been awesome about his health issues. Prior to all of this, he had a severe concussion for 9 weeks, the flu, stomach virus and strep for the first time. It's been a very tough road. He's NEVER had an antibiotic before this year, just hasn't needed them.
I am taking him to a homeopathic doctor as soon as the labs for that appointment get back. Just another $400, no big deal... and I can't work full time at this point and haven't been able to for MONTHS because of his health issues.
I don't know why this isn't being taken more seriously. Just because a pill can't be prescribed doesn't mean they shouldn't work faster to find solutions. NO reason for this to linger on for months and months. I find this unacceptable as I write out thousands of dollars of checks to DUKE, WAKE MED... allergists, homeopaths. I feel like NOTHING is being done or taken seriously.
It took me 4 years and 5 doctors and one homeopath to figure out I actually have hashimotos and celiac... THANKS! We are desperate.

REPLY
Profile picture for lhelbling @lhelbling

This is hitting close to home. I came here to find out information on my 12 year old, otherwise perfectly healthy son. He has been throwing up 5-15 times per day for almost 3 months. It's always clear, he is absorbing food. We've taken him to a pediatric GI specialist at Duke, have our 4th appointment today. He's done the gastric emptying can, upper GI, ultrasound on the stomach, x-rays... bloodwork and urine tests out the wazoo. All is clear! And yet it's only getting worse. We took him to an allergist and did discover that he is allergic to all trees, grasses, molds... basically the state of NC. He's getting two allergy shots per week and on allergy medications until those kick in in a few months. IDK what else to do. I get the honor of dropping my straight A student off at school while he bends over in pain and pukes out the window at least once on the 1.4 mile ride to school.
We are all at a breaking point. He has classic soccer tryouts this week, thank goodness his coaches know him and have been awesome about his health issues. Prior to all of this, he had a severe concussion for 9 weeks, the flu, stomach virus and strep for the first time. It's been a very tough road. He's NEVER had an antibiotic before this year, just hasn't needed them.
I am taking him to a homeopathic doctor as soon as the labs for that appointment get back. Just another $400, no big deal... and I can't work full time at this point and haven't been able to for MONTHS because of his health issues.
I don't know why this isn't being taken more seriously. Just because a pill can't be prescribed doesn't mean they shouldn't work faster to find solutions. NO reason for this to linger on for months and months. I find this unacceptable as I write out thousands of dollars of checks to DUKE, WAKE MED... allergists, homeopaths. I feel like NOTHING is being done or taken seriously.
It took me 4 years and 5 doctors and one homeopath to figure out I actually have hashimotos and celiac... THANKS! We are desperate.

Jump to this post

Poor guy!
You mention recent concussion, which makes me think of another cause of vomiting- brain abnormality secondary to brain injury.

REPLY
Profile picture for lhelbling @lhelbling

This is hitting close to home. I came here to find out information on my 12 year old, otherwise perfectly healthy son. He has been throwing up 5-15 times per day for almost 3 months. It's always clear, he is absorbing food. We've taken him to a pediatric GI specialist at Duke, have our 4th appointment today. He's done the gastric emptying can, upper GI, ultrasound on the stomach, x-rays... bloodwork and urine tests out the wazoo. All is clear! And yet it's only getting worse. We took him to an allergist and did discover that he is allergic to all trees, grasses, molds... basically the state of NC. He's getting two allergy shots per week and on allergy medications until those kick in in a few months. IDK what else to do. I get the honor of dropping my straight A student off at school while he bends over in pain and pukes out the window at least once on the 1.4 mile ride to school.
We are all at a breaking point. He has classic soccer tryouts this week, thank goodness his coaches know him and have been awesome about his health issues. Prior to all of this, he had a severe concussion for 9 weeks, the flu, stomach virus and strep for the first time. It's been a very tough road. He's NEVER had an antibiotic before this year, just hasn't needed them.
I am taking him to a homeopathic doctor as soon as the labs for that appointment get back. Just another $400, no big deal... and I can't work full time at this point and haven't been able to for MONTHS because of his health issues.
I don't know why this isn't being taken more seriously. Just because a pill can't be prescribed doesn't mean they shouldn't work faster to find solutions. NO reason for this to linger on for months and months. I find this unacceptable as I write out thousands of dollars of checks to DUKE, WAKE MED... allergists, homeopaths. I feel like NOTHING is being done or taken seriously.
It took me 4 years and 5 doctors and one homeopath to figure out I actually have hashimotos and celiac... THANKS! We are desperate.

Jump to this post

@lhelbling You mentioned concussion. I am still trying to recover from one myself. I bumped the bridge of my nose on the first of April. I iced it.. went on with life. No broken bone and nothing but a small knot and a greenish bruise. I kept having a nagging headache, I got worse upon rising and I started to tire sooner on walks. I also became more nauseous than usual. It took me 4 week to remember I hit my nose. I still do not remember exactly how I did it. I did go to my family doctor. With his exam he said had a concussion and ordered a ct scan to rule out any sinus or brain damage. I have had to move slowly and not concentrate on anything for long. Just close my eyes sometimes to shut the world out. My point is he may still be having effects from the concussion.. it can last for months not just a few weeks. I am a little past the 6 weeks and can tell it is going to take a month or so morre to recover. I am older, but your son is at an age where he has to do more.. his school work for one. My son had a concussion when he was 16 or so and it was about impossible to keep him from pushing it. School.. work and interacting with friends. Finally threatened to tie him down and finally he was on his way to healing and he had stomach problems too.... long before they had many of the stomach medications they have now. The flu can take a long time to bounce back from.

Instead of the normal barium swallow test you might ask for one that involves food. There are two.. one involves one containing barium which usually is eggs and bacon and in the South maybe grits or toast. The other is swallowing different consistency foods. Just because what he vomits is clear does not mean he is getting the nutrients. I vomit clear mucus and sometimes it just comes up.. not really vomitting... they say it is stomach mucosa.. mucus containing acid. A type of reflux. I have achalasia, Barrett's esophagus and gastroparesis. All which should show in a barium swallow test and or endoscopy or what they call a bravo test..

REPLY

I have been dealing with upper stomach pain and nausea for 4 years. Started two years after gallbladder removal. On 12/27/18 I had a Nevro H10 nerve block device implanted. Within a couple of months, the device was working well, probably 80% improvement (which I'd take now!). I was back to working out, biking, felt like I got my life back! Then after about 4-5 months, the symptoms started coming back. It's been 14 months now and Nevro still can't capture the working setting again. In the meantIme, the problem has worsened in the past 4-6 months. I wake every day with pain in the middle of my stomach, just below rib cage. It's more of an "upset stomach/nausea" pain and usually let's up a little about an hour after waking up. Sometimes it can also make me feel "fluish" and overall crappy, especially if I exert myself at all. If I start working on a project at home, I wIll start to feel lousy and have to rest. It will also sometimes be accompanied by extreme sweating. I cannot even play a simple round of golf. I've had EVERY Gastroenterology test and all is normal. Even a camera pill. I also had a series of heart tests done and everything is fine. Blood tests had shown a very low Iron levels, but we did iron IV's to get that back up. In addition to the stomach, my feet started going numb and getting pain with pins and needles, especially when I sleep. Yesterday, I was diagnosed with Neuropathy and some nerve damage in my feet. On Monday I'm having tests to determine what is causing it. I do not have diabetes. I am also having a glucose tolerance test Monday. Neurologist said "it's possible" that what's causing my feet Neuropathy "could" be causing my stomach issue. I personally don't believe that. Started seeing a Chiropractor again too. He feels the stomach pain could be gas/air bubbles that are getting trapped in my esophagus area. He's working the area to stimulate the nerves and loosen the gas pockets.I also use a CPAP machine for sleep apnea, which alarms him because it forces constant air into my stomach all night long. I'm switching to a bi-pap machine to see if it helps. My MD tried a steroid pack last week, but it didn't help. In 6 months I've had just ONE day (actually 3/4 of day) of no pain and normal energy. It's very hard and I cannot live like this anymore. Since I can't travel to the Mayo Clinic due to the Pandemic, I am having my MD refer me to a local Diagnostic clinic/hospital. The closest one to me is UT Southwestern in the Dallas area. Hopefully they can figure out what is causing this. All Liver and Pancreas tests are also fine. I've had a HIDA scan to make sure the "plumbing" where my Gallbladder was removed is not causing it (it's in that area). This problem can vary day to day and even hour to hour in intensity and can go from "ok" to bad and back again. The ONLY thing that takes the pain away is Hydrocodone. I had to take anywhere from "zero" to 1.5 pills to control it for the last 5 years. Now over the past 4 months, I have had to take 2 to 3 pills per day to control the pain and nausea (I also take nausea prescription, but it doesn't work well anymore. I am very concerned about addiction so working with my Doctor and making sure I take no more than three in a day. As far a prescriptions, I take Trintellix and Adderall (one pill each) in the morning along with a new blood pressure med I just started taking a month ago. I have not been able to sleep for years so I take Clonazepam for sleep. No food allergies or gastrointestinal problems. If anyone has a guess or if any of this sounds familiar, I'm open to ANYTHING! I also do Cryotherapy once in a while and the cold does help, but it doesn't last. I'm asking my pain Dr about a SPLANCHNIC pain shot to see if he thinks it will hep until we can figure this out or get my NEVRO device to work. THANK YOU!!!Chris

REPLY
Profile picture for trip17 @trip17

I have been dealing with upper stomach pain and nausea for 4 years. Started two years after gallbladder removal. On 12/27/18 I had a Nevro H10 nerve block device implanted. Within a couple of months, the device was working well, probably 80% improvement (which I'd take now!). I was back to working out, biking, felt like I got my life back! Then after about 4-5 months, the symptoms started coming back. It's been 14 months now and Nevro still can't capture the working setting again. In the meantIme, the problem has worsened in the past 4-6 months. I wake every day with pain in the middle of my stomach, just below rib cage. It's more of an "upset stomach/nausea" pain and usually let's up a little about an hour after waking up. Sometimes it can also make me feel "fluish" and overall crappy, especially if I exert myself at all. If I start working on a project at home, I wIll start to feel lousy and have to rest. It will also sometimes be accompanied by extreme sweating. I cannot even play a simple round of golf. I've had EVERY Gastroenterology test and all is normal. Even a camera pill. I also had a series of heart tests done and everything is fine. Blood tests had shown a very low Iron levels, but we did iron IV's to get that back up. In addition to the stomach, my feet started going numb and getting pain with pins and needles, especially when I sleep. Yesterday, I was diagnosed with Neuropathy and some nerve damage in my feet. On Monday I'm having tests to determine what is causing it. I do not have diabetes. I am also having a glucose tolerance test Monday. Neurologist said "it's possible" that what's causing my feet Neuropathy "could" be causing my stomach issue. I personally don't believe that. Started seeing a Chiropractor again too. He feels the stomach pain could be gas/air bubbles that are getting trapped in my esophagus area. He's working the area to stimulate the nerves and loosen the gas pockets.I also use a CPAP machine for sleep apnea, which alarms him because it forces constant air into my stomach all night long. I'm switching to a bi-pap machine to see if it helps. My MD tried a steroid pack last week, but it didn't help. In 6 months I've had just ONE day (actually 3/4 of day) of no pain and normal energy. It's very hard and I cannot live like this anymore. Since I can't travel to the Mayo Clinic due to the Pandemic, I am having my MD refer me to a local Diagnostic clinic/hospital. The closest one to me is UT Southwestern in the Dallas area. Hopefully they can figure out what is causing this. All Liver and Pancreas tests are also fine. I've had a HIDA scan to make sure the "plumbing" where my Gallbladder was removed is not causing it (it's in that area). This problem can vary day to day and even hour to hour in intensity and can go from "ok" to bad and back again. The ONLY thing that takes the pain away is Hydrocodone. I had to take anywhere from "zero" to 1.5 pills to control it for the last 5 years. Now over the past 4 months, I have had to take 2 to 3 pills per day to control the pain and nausea (I also take nausea prescription, but it doesn't work well anymore. I am very concerned about addiction so working with my Doctor and making sure I take no more than three in a day. As far a prescriptions, I take Trintellix and Adderall (one pill each) in the morning along with a new blood pressure med I just started taking a month ago. I have not been able to sleep for years so I take Clonazepam for sleep. No food allergies or gastrointestinal problems. If anyone has a guess or if any of this sounds familiar, I'm open to ANYTHING! I also do Cryotherapy once in a while and the cold does help, but it doesn't last. I'm asking my pain Dr about a SPLANCHNIC pain shot to see if he thinks it will hep until we can figure this out or get my NEVRO device to work. THANK YOU!!!Chris

Jump to this post

Hi @trip17 and welcome to Mayo Clinic Connect. That's quite the history and journey you've laid out. I've added your post to the Digestive Health group as well (https://connect.mayoclinic.org/group/digestive-gastrointestinal-problems/). You might be interested in participating is some of these related discussions:

- Chronic Abdominal Wall Pain: https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/newsfeed-post/chronic-abdominal-wall-pain/
- Has anyone been diagnosed with Abdominal Wall Pain: https://connect.mayoclinic.org/discussion/has-anyone-been-diagnosed-with-abdominal-wall-pain/
- Complications/symptoms after Gallbladder laparoscopic Surgery https://connect.mayoclinic.org/discussion/nausea-pain-and-headaches-after-gallbladder-laparoscopic-surgery/
- Comparison of Spinal Cord Stimulators from Boston Sci., Nevro https://connect.mayoclinic.org/discussion/comparison-of-spinal-cord-stimulators-from-boston-sci-nevro/

You may also be interested in following the discussions in these groups:
- Digestive Health https://connect.mayoclinic.org/group/digestive-gastrointestinal-problems/
- Neuropathy https://connect.mayoclinic.org/group/neuropathy/
- Sleep Health https://connect.mayoclinic.org/group/sleep-health/

I hope some of these discussions help with your search for answers and that UT Southwestern can help. FYI, Mayo Clinic is seeing patients during the pandemic, but I can understand getting a consult closer to home during these times.

REPLY
Profile picture for trip17 @trip17

I have been dealing with upper stomach pain and nausea for 4 years. Started two years after gallbladder removal. On 12/27/18 I had a Nevro H10 nerve block device implanted. Within a couple of months, the device was working well, probably 80% improvement (which I'd take now!). I was back to working out, biking, felt like I got my life back! Then after about 4-5 months, the symptoms started coming back. It's been 14 months now and Nevro still can't capture the working setting again. In the meantIme, the problem has worsened in the past 4-6 months. I wake every day with pain in the middle of my stomach, just below rib cage. It's more of an "upset stomach/nausea" pain and usually let's up a little about an hour after waking up. Sometimes it can also make me feel "fluish" and overall crappy, especially if I exert myself at all. If I start working on a project at home, I wIll start to feel lousy and have to rest. It will also sometimes be accompanied by extreme sweating. I cannot even play a simple round of golf. I've had EVERY Gastroenterology test and all is normal. Even a camera pill. I also had a series of heart tests done and everything is fine. Blood tests had shown a very low Iron levels, but we did iron IV's to get that back up. In addition to the stomach, my feet started going numb and getting pain with pins and needles, especially when I sleep. Yesterday, I was diagnosed with Neuropathy and some nerve damage in my feet. On Monday I'm having tests to determine what is causing it. I do not have diabetes. I am also having a glucose tolerance test Monday. Neurologist said "it's possible" that what's causing my feet Neuropathy "could" be causing my stomach issue. I personally don't believe that. Started seeing a Chiropractor again too. He feels the stomach pain could be gas/air bubbles that are getting trapped in my esophagus area. He's working the area to stimulate the nerves and loosen the gas pockets.I also use a CPAP machine for sleep apnea, which alarms him because it forces constant air into my stomach all night long. I'm switching to a bi-pap machine to see if it helps. My MD tried a steroid pack last week, but it didn't help. In 6 months I've had just ONE day (actually 3/4 of day) of no pain and normal energy. It's very hard and I cannot live like this anymore. Since I can't travel to the Mayo Clinic due to the Pandemic, I am having my MD refer me to a local Diagnostic clinic/hospital. The closest one to me is UT Southwestern in the Dallas area. Hopefully they can figure out what is causing this. All Liver and Pancreas tests are also fine. I've had a HIDA scan to make sure the "plumbing" where my Gallbladder was removed is not causing it (it's in that area). This problem can vary day to day and even hour to hour in intensity and can go from "ok" to bad and back again. The ONLY thing that takes the pain away is Hydrocodone. I had to take anywhere from "zero" to 1.5 pills to control it for the last 5 years. Now over the past 4 months, I have had to take 2 to 3 pills per day to control the pain and nausea (I also take nausea prescription, but it doesn't work well anymore. I am very concerned about addiction so working with my Doctor and making sure I take no more than three in a day. As far a prescriptions, I take Trintellix and Adderall (one pill each) in the morning along with a new blood pressure med I just started taking a month ago. I have not been able to sleep for years so I take Clonazepam for sleep. No food allergies or gastrointestinal problems. If anyone has a guess or if any of this sounds familiar, I'm open to ANYTHING! I also do Cryotherapy once in a while and the cold does help, but it doesn't last. I'm asking my pain Dr about a SPLANCHNIC pain shot to see if he thinks it will hep until we can figure this out or get my NEVRO device to work. THANK YOU!!!Chris

Jump to this post

Hi @trip17, I extend my welcome to you as well. I can identify with about 98% of your story and frustration. The only difference is I did not have a nerve block device implanted.

I had my gallbladder removed in 2007 and didn't find relief until 2010 when I traveled to Mayo Clinic in Rochester to be a part of their Chronic Pain Rehabilitation Program. Up until then I, like you, had every test done that they could think of, all that came back as negative or normal. I was on hydrocodone for pain, Lunesta for sleep, phenergan for nausea, 2 blood pressure medications, and an antidepressant. After spending 3 weeks in Rochester, we learned what was going on. It was hard for me to understand at first because I had trusted that the only way I was getting relief was through the medication I was taking. My doctors explained that it was Opioid-Induced Hyperalgesia. Certain people, depending on their genetics, develop a "tolerence" to pain medicine, while other people can develop Opioid-Induced Hyperalgesia. They are not the same thing. After your body has been on a pain medicine for an extended amount of time opioids can produce the opposite reaction in the nervous system causing hyperactivation, which leads to an increase in the pain a person feels.

They were able to taper me down and eventually off of the medication and several others that I took because of my pain, like my sleep medicine. I added a link about what this is. It may not be what is happening with you, but when I read your post it sounded all too familiar. Have they tried you on any other type of medications for the pain or only the Hydrocodone?
https://www.hss.edu/conditions_opioid-induced-hyperalgesia.asp

REPLY
Profile picture for Amanda Burnett @amandaa

Hi @trip17, I extend my welcome to you as well. I can identify with about 98% of your story and frustration. The only difference is I did not have a nerve block device implanted.

I had my gallbladder removed in 2007 and didn't find relief until 2010 when I traveled to Mayo Clinic in Rochester to be a part of their Chronic Pain Rehabilitation Program. Up until then I, like you, had every test done that they could think of, all that came back as negative or normal. I was on hydrocodone for pain, Lunesta for sleep, phenergan for nausea, 2 blood pressure medications, and an antidepressant. After spending 3 weeks in Rochester, we learned what was going on. It was hard for me to understand at first because I had trusted that the only way I was getting relief was through the medication I was taking. My doctors explained that it was Opioid-Induced Hyperalgesia. Certain people, depending on their genetics, develop a "tolerence" to pain medicine, while other people can develop Opioid-Induced Hyperalgesia. They are not the same thing. After your body has been on a pain medicine for an extended amount of time opioids can produce the opposite reaction in the nervous system causing hyperactivation, which leads to an increase in the pain a person feels.

They were able to taper me down and eventually off of the medication and several others that I took because of my pain, like my sleep medicine. I added a link about what this is. It may not be what is happening with you, but when I read your post it sounded all too familiar. Have they tried you on any other type of medications for the pain or only the Hydrocodone?
https://www.hss.edu/conditions_opioid-induced-hyperalgesia.asp

Jump to this post

Wow, thanks. I'll read the link. I guess my question would be what started the pain in the first place if I wasn't on hydrocodone at the time? Also, I'm open to trying anything, but I cannot go to work if I can't take the pain medication. I feel like I have the flu and would have to sit in a chair in my room until we found out if it helps, but THANK YOU SO MUCH for the information Amanda!

REPLY
Profile picture for trip17 @trip17

I have been dealing with upper stomach pain and nausea for 4 years. Started two years after gallbladder removal. On 12/27/18 I had a Nevro H10 nerve block device implanted. Within a couple of months, the device was working well, probably 80% improvement (which I'd take now!). I was back to working out, biking, felt like I got my life back! Then after about 4-5 months, the symptoms started coming back. It's been 14 months now and Nevro still can't capture the working setting again. In the meantIme, the problem has worsened in the past 4-6 months. I wake every day with pain in the middle of my stomach, just below rib cage. It's more of an "upset stomach/nausea" pain and usually let's up a little about an hour after waking up. Sometimes it can also make me feel "fluish" and overall crappy, especially if I exert myself at all. If I start working on a project at home, I wIll start to feel lousy and have to rest. It will also sometimes be accompanied by extreme sweating. I cannot even play a simple round of golf. I've had EVERY Gastroenterology test and all is normal. Even a camera pill. I also had a series of heart tests done and everything is fine. Blood tests had shown a very low Iron levels, but we did iron IV's to get that back up. In addition to the stomach, my feet started going numb and getting pain with pins and needles, especially when I sleep. Yesterday, I was diagnosed with Neuropathy and some nerve damage in my feet. On Monday I'm having tests to determine what is causing it. I do not have diabetes. I am also having a glucose tolerance test Monday. Neurologist said "it's possible" that what's causing my feet Neuropathy "could" be causing my stomach issue. I personally don't believe that. Started seeing a Chiropractor again too. He feels the stomach pain could be gas/air bubbles that are getting trapped in my esophagus area. He's working the area to stimulate the nerves and loosen the gas pockets.I also use a CPAP machine for sleep apnea, which alarms him because it forces constant air into my stomach all night long. I'm switching to a bi-pap machine to see if it helps. My MD tried a steroid pack last week, but it didn't help. In 6 months I've had just ONE day (actually 3/4 of day) of no pain and normal energy. It's very hard and I cannot live like this anymore. Since I can't travel to the Mayo Clinic due to the Pandemic, I am having my MD refer me to a local Diagnostic clinic/hospital. The closest one to me is UT Southwestern in the Dallas area. Hopefully they can figure out what is causing this. All Liver and Pancreas tests are also fine. I've had a HIDA scan to make sure the "plumbing" where my Gallbladder was removed is not causing it (it's in that area). This problem can vary day to day and even hour to hour in intensity and can go from "ok" to bad and back again. The ONLY thing that takes the pain away is Hydrocodone. I had to take anywhere from "zero" to 1.5 pills to control it for the last 5 years. Now over the past 4 months, I have had to take 2 to 3 pills per day to control the pain and nausea (I also take nausea prescription, but it doesn't work well anymore. I am very concerned about addiction so working with my Doctor and making sure I take no more than three in a day. As far a prescriptions, I take Trintellix and Adderall (one pill each) in the morning along with a new blood pressure med I just started taking a month ago. I have not been able to sleep for years so I take Clonazepam for sleep. No food allergies or gastrointestinal problems. If anyone has a guess or if any of this sounds familiar, I'm open to ANYTHING! I also do Cryotherapy once in a while and the cold does help, but it doesn't last. I'm asking my pain Dr about a SPLANCHNIC pain shot to see if he thinks it will hep until we can figure this out or get my NEVRO device to work. THANK YOU!!!Chris

Jump to this post

I can definitely understand that. I could not do it on my own, which is why I had to seek medical intervention. My pain started from what they called "phantom gallstone" pain and scar tissue that built up around the surgical site where the gallbladder was removed. They did an exploratory surgery, but they had already started me on the medication. Every time I would ease off of the medication I would get flu like symptoms with intense sweating which was my body going through physical withdrawal even though mentally I was not addicted to them. Your mentality can say I don't need these, but your body has the potential to withdrawal on any medication that you have taken for a long period of time, especially pain medicine. I do wish you the best and hope either what I have provided or what Colleen has provided can help!

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Profile picture for trip17 @trip17

I have been dealing with upper stomach pain and nausea for 4 years. Started two years after gallbladder removal. On 12/27/18 I had a Nevro H10 nerve block device implanted. Within a couple of months, the device was working well, probably 80% improvement (which I'd take now!). I was back to working out, biking, felt like I got my life back! Then after about 4-5 months, the symptoms started coming back. It's been 14 months now and Nevro still can't capture the working setting again. In the meantIme, the problem has worsened in the past 4-6 months. I wake every day with pain in the middle of my stomach, just below rib cage. It's more of an "upset stomach/nausea" pain and usually let's up a little about an hour after waking up. Sometimes it can also make me feel "fluish" and overall crappy, especially if I exert myself at all. If I start working on a project at home, I wIll start to feel lousy and have to rest. It will also sometimes be accompanied by extreme sweating. I cannot even play a simple round of golf. I've had EVERY Gastroenterology test and all is normal. Even a camera pill. I also had a series of heart tests done and everything is fine. Blood tests had shown a very low Iron levels, but we did iron IV's to get that back up. In addition to the stomach, my feet started going numb and getting pain with pins and needles, especially when I sleep. Yesterday, I was diagnosed with Neuropathy and some nerve damage in my feet. On Monday I'm having tests to determine what is causing it. I do not have diabetes. I am also having a glucose tolerance test Monday. Neurologist said "it's possible" that what's causing my feet Neuropathy "could" be causing my stomach issue. I personally don't believe that. Started seeing a Chiropractor again too. He feels the stomach pain could be gas/air bubbles that are getting trapped in my esophagus area. He's working the area to stimulate the nerves and loosen the gas pockets.I also use a CPAP machine for sleep apnea, which alarms him because it forces constant air into my stomach all night long. I'm switching to a bi-pap machine to see if it helps. My MD tried a steroid pack last week, but it didn't help. In 6 months I've had just ONE day (actually 3/4 of day) of no pain and normal energy. It's very hard and I cannot live like this anymore. Since I can't travel to the Mayo Clinic due to the Pandemic, I am having my MD refer me to a local Diagnostic clinic/hospital. The closest one to me is UT Southwestern in the Dallas area. Hopefully they can figure out what is causing this. All Liver and Pancreas tests are also fine. I've had a HIDA scan to make sure the "plumbing" where my Gallbladder was removed is not causing it (it's in that area). This problem can vary day to day and even hour to hour in intensity and can go from "ok" to bad and back again. The ONLY thing that takes the pain away is Hydrocodone. I had to take anywhere from "zero" to 1.5 pills to control it for the last 5 years. Now over the past 4 months, I have had to take 2 to 3 pills per day to control the pain and nausea (I also take nausea prescription, but it doesn't work well anymore. I am very concerned about addiction so working with my Doctor and making sure I take no more than three in a day. As far a prescriptions, I take Trintellix and Adderall (one pill each) in the morning along with a new blood pressure med I just started taking a month ago. I have not been able to sleep for years so I take Clonazepam for sleep. No food allergies or gastrointestinal problems. If anyone has a guess or if any of this sounds familiar, I'm open to ANYTHING! I also do Cryotherapy once in a while and the cold does help, but it doesn't last. I'm asking my pain Dr about a SPLANCHNIC pain shot to see if he thinks it will hep until we can figure this out or get my NEVRO device to work. THANK YOU!!!Chris

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that's exactly what happens! Flu like symptoms, pain and nausea in upper stomach and intense sweating.

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Profile picture for Amanda Burnett @amandaa

I can definitely understand that. I could not do it on my own, which is why I had to seek medical intervention. My pain started from what they called "phantom gallstone" pain and scar tissue that built up around the surgical site where the gallbladder was removed. They did an exploratory surgery, but they had already started me on the medication. Every time I would ease off of the medication I would get flu like symptoms with intense sweating which was my body going through physical withdrawal even though mentally I was not addicted to them. Your mentality can say I don't need these, but your body has the potential to withdrawal on any medication that you have taken for a long period of time, especially pain medicine. I do wish you the best and hope either what I have provided or what Colleen has provided can help!

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@amandaburnett and @trip17 I'm sorry for both of your pain journeys. Pain can be very complex which is why I took interest in your conversation regarding OIH (opiod induced hyperalgesia). I've been on 5mg of hydrocodone/acetaminophen 3 years for Migraine, Cervical Spondylosis, Occipital Neuralgia and Small Fiber Peripheral Polyneuropathy. As my pain is not always controlled well enough by 5mg, and I dont want to increase the opiod mg, I use medical marijuana to pick up the slack. I'm frustrated because in a rare instance when I'm feeling like I dont need a pain pill, I cant seem to go too long without feeling flu like symptoms of body aches, sweats, headaches. The problem is, as much as I want off opiods, they help my neuropathy sensations and pains. I feel it's a catch 22 because, could they be causing additional pain while trying to help? Great question. I will be going to Mayo Jacksonville this October and am fully prepared for them to wean me off safely. I know this is the only way to get to the bottom of whether I experience OIH. I do fear, however, how my pain will be effectively handled. I know Mayo will do everything in their power to provide me a new way. I'm game and hope they dispell all of my thoughts and concerns going forward. I fear my pain will need opiods for the rest of my life and hope they prove me wrong. Thanks for bringing up this topic Amanda. It was good to read your experience with Mayo and I am interested in your after Mayo life. Did all your pain disappear? Was it only caused by phantom gallstone
or did you have other painful conditions? What do you take for pain now and how easy has it been to not use opiods again? Chris, I will be interested in your outcome if you attempt to wean off hydrocodone and/or if any other diagnosis presents to solve your pain puzzle.. I wish you both the very best. Thanks for your time.
Rachel

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