Chronic Subjective Dizziness-CSD
21 months ago I suddenly started experiencing a dizzy/imbalance feeling that does not qo away. It starts from the time I wake up and varies in intensity through out the day. I’ve had all the tests from A to Z at Mayo clinic. My diagnosis is what they call Chronic Subjective Dizziness. Therapy hasn’t worked, but taking anxiety medication daily has helped lessen the feeling. After all this time I’ve gotten used to feeling this way and don’t panic nearly as much on the bad days. I think anxiety is the main culprit which is probably why the medication helps some. I’m still hoping it goes away as suddenly as it started, and soon.
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I feel your pain brother. I was at Mayo last nov.,and diagnosed with CSD. Mine started 27 mos. ago. I too had numerous tests and scans by a variety of specialists before heading to Mayo. They believe it first started out with migraines over a period of years. Then in March of 2010, I came down with what my pcp thought was an ear infection. I struggled the next few wks with intermitant dizziness but was still able to work. Then came the boatloads of anxiety. It came in unpredictable waves so strong that I could not drive or be driven for several mos. For the next year and a half, I was put on 10 or 12 different meds. including anti-depressants and anti-seizure types. Not one helped and often made me feel worse. I too use a small daily regimin of anxiety med (benzodiazapine). This does not cure or eradicate the symptoms, but rather settles them a little. Aside from the personal and professional ramifications, the hardest thing is to get the local doc’s to take an interest in understanding this illness and the possibility of emerging treatment. Sorry to be longwinded, I was just curious if your situation was the same. Would love to hear from you or anyone else similar experience’s. Best of luck.
At this point I don’t think the doctor’s know what to do with me other than take the anxiety medication. Fortunately I have been able to drive alright, sitting is definately better than walking. Weather also seems to make a difference. It gets worse on days when weather fronts are moving in, probably the barometric pressure affecting the inner ear is my guess. There sure seem to be a lot of variables to this problem.
Of the anxiety medication, which one and the dosage are you taking. Just wonder if I should inquire about a longer lasting one instead of the alprazolam ?
I was taking Ativan until January of this year (2012), but it didn’t last very long. I now take Clonazepam 0.5mg which lasts longer. I split the tablet in half and take .25mg when I get up in the morning and again eight hours later. I take the smaller amounts to reduce the sleepiness it causes.
Your note really hits home with me…as I suffer from CSD as well. The weather changes wreak havoc on me!
p.s. I have chronic sinus issues too…..like you said…LOTS of variables!
I too have sinus problems which probably makes this worse and may even be the original culprit for this. I think a virus infection I had when this all started messed up my vestibular system. I’ve been for the last couple years using a nasal saline rinse once a day which has helped with some of the sinus issues.
Chester it could be vertigo in which the room spins and you are unable to walk? I have post concussion and vertigo which is part of an inner ear problem that effects balance. I went to a ear nose and throat specialist, however mine was caused by the concussion.
Does the clonazepam work and are u able to take to every day? My dizziness is unbearable especially with the change in weather. Ive dealt with this for years and im desperate! I take ativan right now, is clon better for allevieting dizziness?
I went to mayo and had same diagnosis. Nome of my local docs get it and treat me like im nutz.