Chronic pelvic pain syndrome treatment

Posted by rstollery @rstollery, Mar 4 10:42am

I’m going to a physical therapist weekly for this condition, and she feels the muscles surrounding my anus are too tight. She recommended reading “A Headache in the Pelvis” by Dr. David Wise, which I am doing now, and also doing some relaxive work to see if the muscles will loosen up. Is anybody else experiencing this type of constant pain?

Hello @rstollery. You may notice your discussion was moved to the Chronic Pain group where you have participated in other discussions as well. I would like to invite @nickyfriskel, @leigho55, @airey2, @bobbie1, and @keshia99 who have mentioned and discussed pelvic pain for varying reasons on Connect.

@rstollery, are you noticing any early returns with your relaxation exercises? Were any plans discussed if PT and relaxation are ineffective?

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@JustinMcClanahan

Hello @rstollery. You may notice your discussion was moved to the Chronic Pain group where you have participated in other discussions as well. I would like to invite @nickyfriskel, @leigho55, @airey2, @bobbie1, and @keshia99 who have mentioned and discussed pelvic pain for varying reasons on Connect.

@rstollery, are you noticing any early returns with your relaxation exercises? Were any plans discussed if PT and relaxation are ineffective?

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Nothing yet, although it's early on.

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@rstollery

Nothing yet, although it's early on.

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To @rstollery, I feel your discomfort even though mine is a bit different. I did have months of pelvic floor therapy that did nothing to help but to only aggravate my situation and then almost a year later end up going for bio feedback therapy that was awful and a Tens unit zapping machine that only made my pain worse. Doctors assumed I had a muscle spasm and never did further checking to find out what the real problem was. I was in tears constantly but no one listened to me all my muscles in my rectum and pelvic area are strophic. My pudendal nerve was nicked and not properly handled properly for almost 2+ yrs so I have lost all muscle strength and nutrients to the ligaments. I am not a surgical candidate to have my vagina vault prolapse fixed. Nothing strong enough to attach my bladder and uterus up with. Anal tightness I don’t know what you do for that. Nice warm baths, muscle relaxers, every Doctor has something different to say. How long have you had this problem? Min started 41/2 yrs ago was just fine until a nerve was affected. Happened immediately. Dr’s office never even called to check up on me. My life is forever changed as a very negative person now unfortunately. I hope you get the right help. I have to take Metamucil Dailey And drink prune juice and eat a few pries and some days apple juice so I don't get constipated. Hope that was not to boring. Good luck. I understand

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@leigho55

To @rstollery, I feel your discomfort even though mine is a bit different. I did have months of pelvic floor therapy that did nothing to help but to only aggravate my situation and then almost a year later end up going for bio feedback therapy that was awful and a Tens unit zapping machine that only made my pain worse. Doctors assumed I had a muscle spasm and never did further checking to find out what the real problem was. I was in tears constantly but no one listened to me all my muscles in my rectum and pelvic area are strophic. My pudendal nerve was nicked and not properly handled properly for almost 2+ yrs so I have lost all muscle strength and nutrients to the ligaments. I am not a surgical candidate to have my vagina vault prolapse fixed. Nothing strong enough to attach my bladder and uterus up with. Anal tightness I don’t know what you do for that. Nice warm baths, muscle relaxers, every Doctor has something different to say. How long have you had this problem? Min started 41/2 yrs ago was just fine until a nerve was affected. Happened immediately. Dr’s office never even called to check up on me. My life is forever changed as a very negative person now unfortunately. I hope you get the right help. I have to take Metamucil Dailey And drink prune juice and eat a few pries and some days apple juice so I don't get constipated. Hope that was not to boring. Good luck. I understand

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Thanks for your input! I have had this condition for more than 38 years now. I'm trying relaxation and anal strengthening and relaxing in hopes of loosening up the flaps surrounding the anus. I also use the hot tub jets to ease the pain in that area. All this is helping a little to date, but still in constant pain.

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@leigho55

To @rstollery, I feel your discomfort even though mine is a bit different. I did have months of pelvic floor therapy that did nothing to help but to only aggravate my situation and then almost a year later end up going for bio feedback therapy that was awful and a Tens unit zapping machine that only made my pain worse. Doctors assumed I had a muscle spasm and never did further checking to find out what the real problem was. I was in tears constantly but no one listened to me all my muscles in my rectum and pelvic area are strophic. My pudendal nerve was nicked and not properly handled properly for almost 2+ yrs so I have lost all muscle strength and nutrients to the ligaments. I am not a surgical candidate to have my vagina vault prolapse fixed. Nothing strong enough to attach my bladder and uterus up with. Anal tightness I don’t know what you do for that. Nice warm baths, muscle relaxers, every Doctor has something different to say. How long have you had this problem? Min started 41/2 yrs ago was just fine until a nerve was affected. Happened immediately. Dr’s office never even called to check up on me. My life is forever changed as a very negative person now unfortunately. I hope you get the right help. I have to take Metamucil Dailey And drink prune juice and eat a few pries and some days apple juice so I don't get constipated. Hope that was not to boring. Good luck. I understand

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Not boring. It could happen to any of us.

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