Chronic pain on the left side

Posted by melinnea @melinnea, Jun 25 3:49am

Hi,
since the doctors in my country are helpless I would like to ask you about what the reason of my problem is. Apart from having celiac disease, rheumatism and chronic bladder UTI, I had almost 3 years ago an “accident”. As I tried to pleasure myself down there, only from outside, it came to the point I reached orgasm and pushed. Right after that I felt terrible burning pain on the left side deep in my women parts, near labia and butt hole, but not outside, it was deep inside. Since then the pain never stopped. Everyday I feel burning, cutting, aching, even buzzing there. I can sit, but the pain goes worse after sitting on bike, during car ride, when the car goes through potholes, after urinating or when I feel I need to go to toilet to do number 2. I completely can’t have intercourse not only for that but also for vaginal pain and infections, which were last time negative during swab exam. Vaginal ultrasound and bladder ultrasound didn’t show anything bad. Im really helpless, I would be happy if you could help, maybe give an opinion what it could be. Thank you in advance.

Hello @melinnea and welcome to Mayo Clinic Connect. I am sure this is a very troublesome problem for you as it affects so many aspects of your daily life. As you may know, Mayo Connect is a patient-to-patient support group. Therefore, we are not medical professionals and cannot diagnose health problems. We can, however, offer support and encouragement from our own experiences.

I hope that one of our Connect members will post a helpful suggestion to you about this problem. While we wait for that, I wonder if you would be comfortable sharing a bit more. You said that this problem started three years ago. Has it gotten worse or stayed the same? Any other new health problems such as diabetes? Have you begun any new medications or supplements?

In addition to the ultrasounds, have you had a CT scan or a colonoscopy? I suggest this because sometimes colon problems can cause pain in the pelvic area.

I'd like to invite @astaingegerdm @baxtersmom @gardeningjunkie and @artscaping, to this conversation to see if they can add any insight.

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Good afternooon @hopeful33250 Well, my sysmptoms are more like it hurts on the left side when my bladder is also full, then after urination I feel like something draws back(maybe my bladder sphincter) and at that time it hurts the most. Then I feel the abnormal pain when I feel turned on or so, so I better dont think about it too much. It hurts me everyday, the pain got worse since the December when I had lots of bacteria inside my vagina, then it got even worse in January and its literally escalating the past two weeks I just cant even walk, nor sit, or ride a bike. I havent had the CT nor colonoscopy done, but Iam going to had the magnetic resonance done on 5 of July – it is spinal cord and backbone. I feel it also more when pressing between the bones near labia majora (red spot on picture), also when the gynecologist was examinating me or when the urologist put the hyaluronic acid straight into my bladder I felt the biggest pain. Im no expert but Im kind of worried its pudendal nerve entrapment or inflammation, but noone has ever heard of it in my country (Slovakia), nor can I find anyone who specialises on this topic. Classic neurologists have never heard of these symptoms I have.

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@melinnea

Good afternooon @hopeful33250 Well, my sysmptoms are more like it hurts on the left side when my bladder is also full, then after urination I feel like something draws back(maybe my bladder sphincter) and at that time it hurts the most. Then I feel the abnormal pain when I feel turned on or so, so I better dont think about it too much. It hurts me everyday, the pain got worse since the December when I had lots of bacteria inside my vagina, then it got even worse in January and its literally escalating the past two weeks I just cant even walk, nor sit, or ride a bike. I havent had the CT nor colonoscopy done, but Iam going to had the magnetic resonance done on 5 of July – it is spinal cord and backbone. I feel it also more when pressing between the bones near labia majora (red spot on picture), also when the gynecologist was examinating me or when the urologist put the hyaluronic acid straight into my bladder I felt the biggest pain. Im no expert but Im kind of worried its pudendal nerve entrapment or inflammation, but noone has ever heard of it in my country (Slovakia), nor can I find anyone who specialises on this topic. Classic neurologists have never heard of these symptoms I have.

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@melinnea

As you are in a country where there isn't good medical care for your symptoms, is it at all possible for you to travel to get more sophisticated medical care? Mayo Clinic has a location in London, or if you can come to the U.S. there are three Mayo locations.

If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

I hope you are able to find some help. Will you post again and let me know how you are doing seeking help?

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