Chronic Back Pain for Years

Posted by jlfisher56 @jlfisher56, May 2, 2017

6 back surgeries (extensive cervical and lumbar fusions) with neurological complications. Left with chronic pain. Accident happened in Nursing career 1992 and worked with first fusions until 1999 (failed fusions). At my age, and as a former nurse educator, I never wanted to had to rely on medication/s for the severe pain. Having thoroughly exhausted exploring sites using non-pharmaceutical methods, using psychological methods, biofeedback, trying to accept my limitations, i.e., I still believe somewhere…out there…is hope. The strong medicine has caused gastroparesis, further complicating my health problems. They are too numerous to write and I will not focus on them. I am looking for “help” and guidance. If I can be of assistance to anyone throughout their trials, (perhaps similar to some of what I have gone through), I will.

I'm having pain in my neck, radiating down my left arm. I did not connect it with neuropathy until I just read your post. I think I should see an orthopedist. Or talk to my neurologist. I'll do both. I'm tired of not-feeling-well. I'm not eager to see any more doctors or do any more tests or take any more medicines, (I would prefer physical therapy) but I accept that I might have to. It's time to do something. Thank you for sharing your experience with us. Peggy

REPLY
@pfbacon

I'm having pain in my neck, radiating down my left arm. I did not connect it with neuropathy until I just read your post. I think I should see an orthopedist. Or talk to my neurologist. I'll do both. I'm tired of not-feeling-well. I'm not eager to see any more doctors or do any more tests or take any more medicines, (I would prefer physical therapy) but I accept that I might have to. It's time to do something. Thank you for sharing your experience with us. Peggy

Jump to this post

pfbacon,
I noticed you had written you wanted to see an orthopedist. I actually see an Osteopath as my current PCP and she knows both the neurological signs as well as the bones and joints. She was the one who actually sent me to the PT after she examined me with moving my arm around and I guess I winced at all the right places. They also are trained in the medical physician role and I can go to her with medical problems as well. I switched to her after I was 65 as many of my joints have arthritis in them and felt she would have more knowledge about caring for my aches and pains and does so.

REPLY
@pfbacon

I'm having pain in my neck, radiating down my left arm. I did not connect it with neuropathy until I just read your post. I think I should see an orthopedist. Or talk to my neurologist. I'll do both. I'm tired of not-feeling-well. I'm not eager to see any more doctors or do any more tests or take any more medicines, (I would prefer physical therapy) but I accept that I might have to. It's time to do something. Thank you for sharing your experience with us. Peggy

Jump to this post

I used to have that problem. Pain down my neck and arm. I had three vertebrae fused in my neck which took care of it. It was the most successful surgery that I've ever had.

REPLY
@eileena

@iteachgate, welcome to this chat. I am wondering if you have, but think you must have along the way, had much in the way of therapy for stretching you muscles. The last guy I worked with helped with the Radiculopathy I suffered with. It radiated from C=7/C-8 down my right arm and made me very sick to my stomach. The PT stretched my neck over a period of 6 visits and finally my back muscles were freed up. I had done all I knew and asked for PT and he sure was good at what he did. Have had zero return of that particular problem.

BTW…I can't spell big words unless I verify them, so please just use Phonics to pronounce that big word that means a compressed nerve with radiating pain down the arm.

Jump to this post

You might also want to ask the PT about cranial facial release. If you can find someone who really knows what they're doing it can be a very successful process.

REPLY
@wsh66

You might also want to ask the PT about cranial facial release. If you can find someone who really knows what they're doing it can be a very successful process.

Jump to this post

The medical persons who practice cranial sacral release are trained osteopaths. I've encountered one once in my entire life.

REPLY
@eileena

The medical persons who practice cranial sacral release are trained osteopaths. I've encountered one once in my entire life.

Jump to this post

Cranial sacral release. Thank you. Any trained person can do it. It is taught at an institute run by the guy that developed it. It might be the Levington Institute. I can check the name with my PT. He decided it was so important that he didn't patent it but rather choose to make his money teaching it. I just called her and got the answering machine so I'll post the name when I get it.

REPLY
@eileena

The medical persons who practice cranial sacral release are trained osteopaths. I've encountered one once in my entire life.

Jump to this post

Did you have it done and if so, what did you think?

REPLY
@hosta

Hosta here. I would like to join this conversation. My name is Eve. I to have been thru so much with my spine. I had surgery when I was just 19 years old for a herniated lumbar disc. My back problem continued. Another surgery for herniated lumbar disc when I was 32. Then I had kyphoplasty for compression fracture at T7. I had a pain stimulator put in (didn’t help at all) Later I fell was told I had internal contusions and would take time to heal. I got to where I couldn’t breath. Then had a chest x-ray and found out I had three compression fractures at T3,4,5. By the time I got the referral to see the surgeon, I had to have the stimulator removed (hadn’t used for over 2 years) before I had a MRI. Then was told the fractures had healed wrong and that there was nothing could be done, and was also told I had fractures in the lumbar area also. I have had so many injections I have lost count. Now I am scheduled for the Medial Branch Nerve Blocks. One will be done on 7/3 and another on 8/18 in the cervical area. I have so much pain in the upper back and neck when I use my arms. I just don’t know any more. I just want some relief from the pain. I have been on pain medications that don’t help that much with the pain, just make me sleepy. I have things I want to do and don’t want to sleep all the time. Help!!

Jump to this post

Have you looked into having a implanted pain pump installed? If you expect to be in pain for the rest of your life it is the ultimate solution.

REPLY
@wsh66

Have you looked into having a implanted pain pump installed? If you expect to be in pain for the rest of your life it is the ultimate solution.

Jump to this post

@wsh66. hi Stephen! Been thinking of you and wondering how you are! My cellulitis and lymphedema were seen by a nurse, 2 phys therapists. Those plus a social worker and OT all agreed I should be in hospital, I went and the wound had progressed to such a point that when the wound care specialist tried to change it, I hit him with a menu! Never experienced such pain in my life! I’m better now but still in the hospital.
I hope you are doing well!

REPLY
@karen00

@wsh66. hi Stephen! Been thinking of you and wondering how you are! My cellulitis and lymphedema were seen by a nurse, 2 phys therapists. Those plus a social worker and OT all agreed I should be in hospital, I went and the wound had progressed to such a point that when the wound care specialist tried to change it, I hit him with a menu! Never experienced such pain in my life! I’m better now but still in the hospital.
I hope you are doing well!

Jump to this post

I'm doing well and I'm very glad to hear that you're having your lymphedema taken care of. I was afraid that what happened would happen. I'm glad to know you're getting the care that someone in your position needs. Love and blessings.

REPLY
@eileena

The medical persons who practice cranial sacral release are trained osteopaths. I've encountered one once in my entire life.

Jump to this post

When I had cranial sacral release performed on me it was done by a Physical Therapist who had worked on me for years. She was trained in that practice at the Upledger Institute. Upledger is the name of the man who developed that technique and thought it was so valuable that he didn't patent it but rather choose to open an Institute to teach it to any and all medical practitioners who wanted to use it. I would ask anyone wanting to do that to me if they indeed had been to the Upledger Institute or had learned from someone else. If they hadn't been there I would decline the service. You say you had it done, what did you think of it? I thought it was great.

REPLY
@mikee

Sorry to hear a story so similar to mine. While doing an internship in Chemical Dependence at a hospital, I also worked as a nursing assistant. I was making a hospital corner on a bed, sneezed and blew out a disc in my back. Surgery for repair at L5-S1 was the start. That was 1975. Since then there have had 17 back and neck surgeries. My lady says that I have the longest butt crack in the world.

I developed fibromyalgia in the 80’s and autonomic peripheral neuropathy in the 00’s. I’ve been in chronic pain for many years. Since the DEA put pressure on the FDA to make it more difficult for us to get opiods, I have had problems getting the one drug, morphine, that works for me. As a former Chemical Dependence counselor and inpatient and outpatient treatment director, I’m very aware of the dangers of misuse of medications. I’ve never overused any drugs.

If you take meds as prescribed, you won’t get into problems. Naturopathic medications have not been effective, for me. The government doesn’t tell that the number of suicides has increased among chronic pain suffers who can’t get their medications. It’s the people who abuse illegal substances that are addicted. Please don’t disparage or denigrate your need for such medications. Use as needed.

Jump to this post

I absolutely agree with you about the medications. I had fentanyl patches for about 15 years until a couple months ago and I wasn't addicted to it. I've never abused any medications, I've never done any drugs, and I don't even drink. You're right, if taken as prescribed you normally don't have any issues. I agree that drugs are out of control and that opioids are one of those drugs. Doctors are just weaning people off these drugs and leaving them in excruciating pain. As a patient, one of your rights is to be treated for your pain. What is this doing to treat anyone's pain? You are just left out there to decide whether you want to turn into a drug addict and find the street version of the pain relieving drugs or if you want to try to endure the pain until it either kills you or you choose suicide. How is that humane!! It's nearly impossible to even find another doctor that will treat you. I know because I went through several before finding one that would work with me. You are treated like a drug addict looking for drugs! The government is so quick to use the stereotype that if you take opioids then you ARE addicted to them. Also, when they whip out the number of drug related deaths they conveniently forget to mention that most of them are caused by the street version of the drugs. Just wait to see how much the suicide rate rises! I'm sure they won't be so quick to admit or will probably never admit that it's because they left legitimate pain patients to die!

I would recommend to you, since you haven't found any other medications that work, to try an integrative pain specialist. They prescribe both homeopathic and regular pain medications. My doctor prescribes Oxytocin and Ketamine troches. They dissolve under your tongue. Somehow they work together and they work great for your pain. The pain relief is just as good, if not better, than any of the opioids they gave me over the years. I strongly urge you to try a new doctor and mention these medications. If you do get to try them please let me know how they work for you. Good luck to you and take care!

REPLY
@qball2019

I absolutely agree with you about the medications. I had fentanyl patches for about 15 years until a couple months ago and I wasn't addicted to it. I've never abused any medications, I've never done any drugs, and I don't even drink. You're right, if taken as prescribed you normally don't have any issues. I agree that drugs are out of control and that opioids are one of those drugs. Doctors are just weaning people off these drugs and leaving them in excruciating pain. As a patient, one of your rights is to be treated for your pain. What is this doing to treat anyone's pain? You are just left out there to decide whether you want to turn into a drug addict and find the street version of the pain relieving drugs or if you want to try to endure the pain until it either kills you or you choose suicide. How is that humane!! It's nearly impossible to even find another doctor that will treat you. I know because I went through several before finding one that would work with me. You are treated like a drug addict looking for drugs! The government is so quick to use the stereotype that if you take opioids then you ARE addicted to them. Also, when they whip out the number of drug related deaths they conveniently forget to mention that most of them are caused by the street version of the drugs. Just wait to see how much the suicide rate rises! I'm sure they won't be so quick to admit or will probably never admit that it's because they left legitimate pain patients to die!

I would recommend to you, since you haven't found any other medications that work, to try an integrative pain specialist. They prescribe both homeopathic and regular pain medications. My doctor prescribes Oxytocin and Ketamine troches. They dissolve under your tongue. Somehow they work together and they work great for your pain. The pain relief is just as good, if not better, than any of the opioids they gave me over the years. I strongly urge you to try a new doctor and mention these medications. If you do get to try them please let me know how they work for you. Good luck to you and take care!

Jump to this post

You have said it all my friend. I'm working on a letter to the editor about opioids right now. Maybe I'll post a copy if they printed

Liked by Vickie, qball2019

REPLY
@eileena

The medical persons who practice cranial sacral release are trained osteopaths. I've encountered one once in my entire life.

Jump to this post

I have also had some wonderful massage therapists who are trained in cranial sacral release.

REPLY
@qball2019

I absolutely agree with you about the medications. I had fentanyl patches for about 15 years until a couple months ago and I wasn't addicted to it. I've never abused any medications, I've never done any drugs, and I don't even drink. You're right, if taken as prescribed you normally don't have any issues. I agree that drugs are out of control and that opioids are one of those drugs. Doctors are just weaning people off these drugs and leaving them in excruciating pain. As a patient, one of your rights is to be treated for your pain. What is this doing to treat anyone's pain? You are just left out there to decide whether you want to turn into a drug addict and find the street version of the pain relieving drugs or if you want to try to endure the pain until it either kills you or you choose suicide. How is that humane!! It's nearly impossible to even find another doctor that will treat you. I know because I went through several before finding one that would work with me. You are treated like a drug addict looking for drugs! The government is so quick to use the stereotype that if you take opioids then you ARE addicted to them. Also, when they whip out the number of drug related deaths they conveniently forget to mention that most of them are caused by the street version of the drugs. Just wait to see how much the suicide rate rises! I'm sure they won't be so quick to admit or will probably never admit that it's because they left legitimate pain patients to die!

I would recommend to you, since you haven't found any other medications that work, to try an integrative pain specialist. They prescribe both homeopathic and regular pain medications. My doctor prescribes Oxytocin and Ketamine troches. They dissolve under your tongue. Somehow they work together and they work great for your pain. The pain relief is just as good, if not better, than any of the opioids they gave me over the years. I strongly urge you to try a new doctor and mention these medications. If you do get to try them please let me know how they work for you. Good luck to you and take care!

Jump to this post

Where are the Integrative Pain Specialists? Does Mayo employ them in their Pain Department?

REPLY
Please login or register to post a reply.