Chronic inguinal pain

Posted by Keri @keri, Oct 17, 2011

I am 38 years old & have suffered an injury to my ilioinguinal/hypogastric nerves after a gynological surgery. My nerve pain is in my right groin & right pubic area, occasional travels down my inner thigh. I am on Gabitril (antineuroleptic), methadone, tramadol & Zoloft for pain control. I had a peripheral nerve stimulator implanted in my abdomen, but it needed to be removed a yr later due to a chronic infection @ my incision site. It relieved about 30% of my pain but could have helped more if it didn’t get the infection. My life has completley changed. The pain has limited me on doing things I used to do.
I have an appt. next month in Rochester, Mayo w/ Dr Mathew Pingree, @ the pain clinic.
Has anyone suffered this type of pain? Has anyone had pulse RF or RF ablation done? I’m scared to have an ablation or a chemical ablation due to the risk of developing an neuritis that could make my pain worse.

Liked by Karri

@prissysharon

I have right side groin pain for about 15 years. Don’t know what caused it. It has progressively gotten worse. 2 years ago I had 3 nerve cut. Can’t remember right off which ones but doc said they were inflamed. I felt better for bout six months but now it’s back in full force.it’s horrible. Sometimes I get a break for couple days. I kept journal of pain but there was nothing to pinpoint what stopped pain or what started it up again. Moved to a new state recently and hav an appt coming up with a nerve doc in nd. Hopefully he has more insight but I’m starting to lose faith.

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How are you doin?

Liked by Karri

@fmassad

Hi I’m from Brazil and I have pain in my rgith groin and right pubc area and it started just after a laparoscopy for severe endometriosis. My pain started 3 years ago but it is getting worse.
I went into many doctors and some of them have told me that it proably is some damage in ilioinguinal nerve and hypogastric nerve.
My pain stars into my abdome and goes down to my pubs and my leg.
They tried to block these nerves which provide some temporary relief to my pain in first, second and third tried but in my fourth try it didn’t work and my pain got worse.
I’m now doing a treatment in the best brazilian public hospital – Hospital das Clinicas.
i’m taking tramadol every 6 hours and Lyrica twice a day but this is not able to stop my pain. i’m also doing physiotherapy( trigger point massage) which provides me some relief.
This pain has changed my life because of this I’m using a walking stick, I can’t drive because the movement to accelerate and dent the car make my pain insupportable.
I don’t believe it is going to get better.
Do you know which test can diagnose for sure these nerves problem? Do you know different treatments rather toses that I already took?
Do you have problems to walk or drive?
Please help me because I have a little girl with 4 thar needs me and I’m not able to haldle daily tasks.
Thanks

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The pelvis is full of nerves. What nerves where injected? Have u had a MRN? Not a MRI. Google it:). I will be having a MRN in June followed by inj but will be traveling from North Dakota to Maryland just to accomplish this. I’m @ the point in my life that I will do anything besides surgery to see if it helps. It gets so expensive, even w insurance to have a chronic illness, especially when one has to travel. I thank God every day for my spouse, kids, immediate family & girlfriends for all their support. I’m not sure if I could physically or mentally function w/o their support.
Have you been tested for pudendal neuralgia? I can’t sit. If I do it increase the constant pain I have to an unbearable state. Driving does hurt but for me it’s cuz I’m sittin. Walking is hard too! Generally my mornings are the best & progressively worsen as the day goes on. My activity is very limited but I still have a hard time slowing my daily expectations I have for myself & rarely relax. Cuz if I do my mind focuses just on my pain & not relaxing. Keep in touch.

Liked by Karri

@fmassad

Hi I’m from Brazil and I have pain in my rgith groin and right pubc area and it started just after a laparoscopy for severe endometriosis. My pain started 3 years ago but it is getting worse.
I went into many doctors and some of them have told me that it proably is some damage in ilioinguinal nerve and hypogastric nerve.
My pain stars into my abdome and goes down to my pubs and my leg.
They tried to block these nerves which provide some temporary relief to my pain in first, second and third tried but in my fourth try it didn’t work and my pain got worse.
I’m now doing a treatment in the best brazilian public hospital – Hospital das Clinicas.
i’m taking tramadol every 6 hours and Lyrica twice a day but this is not able to stop my pain. i’m also doing physiotherapy( trigger point massage) which provides me some relief.
This pain has changed my life because of this I’m using a walking stick, I can’t drive because the movement to accelerate and dent the car make my pain insupportable.
I don’t believe it is going to get better.
Do you know which test can diagnose for sure these nerves problem? Do you know different treatments rather toses that I already took?
Do you have problems to walk or drive?
Please help me because I have a little girl with 4 thar needs me and I’m not able to haldle daily tasks.
Thanks

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I have chronic pain groin pain. Was considering surgery by Dr. Ducic in Washington DC for nerve removal. Like many I travelled across country to look for a pain solution. Instead I attended a 3 week pain rehabilitation program at Mayo Clinic. They helped me get off the pain meds and learn techniques to help manage the pain. I highly recommend the program.  While I still have pain it no longer is the driver but the passenger. 

@prissysharon

I have right side groin pain for about 15 years. Don’t know what caused it. It has progressively gotten worse. 2 years ago I had 3 nerve cut. Can’t remember right off which ones but doc said they were inflamed. I felt better for bout six months but now it’s back in full force.it’s horrible. Sometimes I get a break for couple days. I kept journal of pain but there was nothing to pinpoint what stopped pain or what started it up again. Moved to a new state recently and hav an appt coming up with a nerve doc in nd. Hopefully he has more insight but I’m starting to lose faith.

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I just wanted to say thank you for your very detailed and informative comment. I write this as I’ve been awakened from pelvic pain. It can be such a lonely journey at times. I am so grateful to have found this website. Thanks to all of you for being brave enough to post your personal info and I hope we all find relief soon!!!

@prissysharon

I have right side groin pain for about 15 years. Don’t know what caused it. It has progressively gotten worse. 2 years ago I had 3 nerve cut. Can’t remember right off which ones but doc said they were inflamed. I felt better for bout six months but now it’s back in full force.it’s horrible. Sometimes I get a break for couple days. I kept journal of pain but there was nothing to pinpoint what stopped pain or what started it up again. Moved to a new state recently and hav an appt coming up with a nerve doc in nd. Hopefully he has more insight but I’m starting to lose faith.

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Not sure what all your pevic pain issues are. But research pelvic neuro-muscular disorders, paying particular attention to pudendal nerves.

Liked by Karri

@keri

I am going to try a spinal cord stimulator early next year, Jan. 2012. Keepin my fingesr crossed & praying that this will help me. I didn’t have much luck with the peripheral nerve stimulator.

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@majel
How are you doing? Wondering if you are experiencing pain relief? Since your last post on this site have you tried other treatments?

Liked by Karri

Hi there, I am not sure you will see this as this is an old post but I am going through similar circumstances and I wanted to reach out to seek some help/advice.

Quick update on mine: 4/2015 had RT inguinal hernia repair. Three weeks later went in to have the RT inguinal nerve removed (denervation). This didn’t resolve shit. A few weeks afterwards they went in to remove the RT testie (sorry if that is TMI). Since then I have been treating with a pain management MD that has tried 10+nerve blocks, steroid injections, multiple different nerve medicines, pain medicines, etc.
I am closing in on a spine cord stimulator (possibly in the next few weeks). At this point it is starting to affect daily functions, work, and everything else about being a father and husband

Any advice or opinions?

Welcome @ando. I moved this thread into the Chronic Pain group to bring this conversation to the attention of the currently active members. As you noted this thread is older, but I’m hopeful that the members who were participating in this discussion will return to Connect, which is now an active community again. @keri @tomb1 @telvaker @katrinaramquistwesson and anyone else reading this, if you have any problems logging in or joining the conversation, please send me a quick note using this form https://connect.mayoclinic.org/contact-a-community-moderator/

Ando, I can understand the fear of getting treatment that could potentially make the pain worse. Many in this group understand that apprehension.

Does anyone know about an endoscopic surgical intervention to oblate the nerve or for that matter any procedure to oblate the genitofemoral nerve or the other nerves involved with night mare we share?

@ando

Hi there, I am not sure you will see this as this is an old post but I am going through similar circumstances and I wanted to reach out to seek some help/advice.

Quick update on mine: 4/2015 had RT inguinal hernia repair. Three weeks later went in to have the RT inguinal nerve removed (denervation). This didn’t resolve shit. A few weeks afterwards they went in to remove the RT testie (sorry if that is TMI). Since then I have been treating with a pain management MD that has tried 10+nerve blocks, steroid injections, multiple different nerve medicines, pain medicines, etc.
I am closing in on a spine cord stimulator (possibly in the next few weeks). At this point it is starting to affect daily functions, work, and everything else about being a father and husband

Any advice or opinions?

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i did a trial with the new St Jude stimulator it was a very bad experience and didn’t work

@keri


Well, I had my visit w/ the pain doc regarding my neuritis. A high definition MRI was performed, Almost like a neurography scan, but the results where negative. I wanted it to show something so I can confirm my diagnosis & possibly treat or relieve some of my on-going pain. Dr. Pingee performed ultra-sounded guided pulse radio frequency to my injured nerves but this procedure did absoultely nothing to relieve my pain. I am so disappointed. What do I do next????

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hi @tomb1 I suffer since 5 years ago a pudendal nerve chonic pain. I heard about this Mayo Clinic program to relieve pain and as I live in argentina is very expensive for me make treatments in the US or in Europe, but this program sound good if people recommend it. because is not invasive and for sure has no side effects. how much would yyou recomend it?

@fmassad

Hi I’m from Brazil and I have pain in my rgith groin and right pubc area and it started just after a laparoscopy for severe endometriosis. My pain started 3 years ago but it is getting worse.
I went into many doctors and some of them have told me that it proably is some damage in ilioinguinal nerve and hypogastric nerve.
My pain stars into my abdome and goes down to my pubs and my leg.
They tried to block these nerves which provide some temporary relief to my pain in first, second and third tried but in my fourth try it didn’t work and my pain got worse.
I’m now doing a treatment in the best brazilian public hospital – Hospital das Clinicas.
i’m taking tramadol every 6 hours and Lyrica twice a day but this is not able to stop my pain. i’m also doing physiotherapy( trigger point massage) which provides me some relief.
This pain has changed my life because of this I’m using a walking stick, I can’t drive because the movement to accelerate and dent the car make my pain insupportable.
I don’t believe it is going to get better.
Do you know which test can diagnose for sure these nerves problem? Do you know different treatments rather toses that I already took?
Do you have problems to walk or drive?
Please help me because I have a little girl with 4 thar needs me and I’m not able to haldle daily tasks.
Thanks

Jump to this post

can you tell me how to refer this treatment in the Mayo Clinic? I can find it in their web and whant to know more about it. I live in argentina so if I go to US I have to have all the information, can you help me?

@fmassad

Hi I’m from Brazil and I have pain in my rgith groin and right pubc area and it started just after a laparoscopy for severe endometriosis. My pain started 3 years ago but it is getting worse.
I went into many doctors and some of them have told me that it proably is some damage in ilioinguinal nerve and hypogastric nerve.
My pain stars into my abdome and goes down to my pubs and my leg.
They tried to block these nerves which provide some temporary relief to my pain in first, second and third tried but in my fourth try it didn’t work and my pain got worse.
I’m now doing a treatment in the best brazilian public hospital – Hospital das Clinicas.
i’m taking tramadol every 6 hours and Lyrica twice a day but this is not able to stop my pain. i’m also doing physiotherapy( trigger point massage) which provides me some relief.
This pain has changed my life because of this I’m using a walking stick, I can’t drive because the movement to accelerate and dent the car make my pain insupportable.
I don’t believe it is going to get better.
Do you know which test can diagnose for sure these nerves problem? Do you know different treatments rather toses that I already took?
Do you have problems to walk or drive?
Please help me because I have a little girl with 4 thar needs me and I’m not able to haldle daily tasks.
Thanks

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Hi Alicia. Here is further information about the Pain Rehabilitation Clinic at Mayo Clinic’s 3 campuses: Florida, Arizona and Minnesota http://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/overview

You can call to find out more information and to consider scheduling an appointment http://mayocl.in/1mtmR63.

@fmassad

Hi I’m from Brazil and I have pain in my rgith groin and right pubc area and it started just after a laparoscopy for severe endometriosis. My pain started 3 years ago but it is getting worse.
I went into many doctors and some of them have told me that it proably is some damage in ilioinguinal nerve and hypogastric nerve.
My pain stars into my abdome and goes down to my pubs and my leg.
They tried to block these nerves which provide some temporary relief to my pain in first, second and third tried but in my fourth try it didn’t work and my pain got worse.
I’m now doing a treatment in the best brazilian public hospital – Hospital das Clinicas.
i’m taking tramadol every 6 hours and Lyrica twice a day but this is not able to stop my pain. i’m also doing physiotherapy( trigger point massage) which provides me some relief.
This pain has changed my life because of this I’m using a walking stick, I can’t drive because the movement to accelerate and dent the car make my pain insupportable.
I don’t believe it is going to get better.
Do you know which test can diagnose for sure these nerves problem? Do you know different treatments rather toses that I already took?
Do you have problems to walk or drive?
Please help me because I have a little girl with 4 thar needs me and I’m not able to haldle daily tasks.
Thanks

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thanks coleen! Y spoke with them by telephone and are waiting for another call in orther to have more information

@fmassad

Hi I’m from Brazil and I have pain in my rgith groin and right pubc area and it started just after a laparoscopy for severe endometriosis. My pain started 3 years ago but it is getting worse.
I went into many doctors and some of them have told me that it proably is some damage in ilioinguinal nerve and hypogastric nerve.
My pain stars into my abdome and goes down to my pubs and my leg.
They tried to block these nerves which provide some temporary relief to my pain in first, second and third tried but in my fourth try it didn’t work and my pain got worse.
I’m now doing a treatment in the best brazilian public hospital – Hospital das Clinicas.
i’m taking tramadol every 6 hours and Lyrica twice a day but this is not able to stop my pain. i’m also doing physiotherapy( trigger point massage) which provides me some relief.
This pain has changed my life because of this I’m using a walking stick, I can’t drive because the movement to accelerate and dent the car make my pain insupportable.
I don’t believe it is going to get better.
Do you know which test can diagnose for sure these nerves problem? Do you know different treatments rather toses that I already took?
Do you have problems to walk or drive?
Please help me because I have a little girl with 4 thar needs me and I’m not able to haldle daily tasks.
Thanks

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Fabulous. Do keep us posted on when you start and how it goes.

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