Chronic diarrhea

Posted by taonamission @taonamission, May 2 5:00pm

I've had chronic diarrhea for a year and 2 months. I've been seeing a gastroenterologist since December 2020. I've been tested for celiac, c diff, crohn's, diverticulitis, colitis, and pancreatitis. I had a colonoscopy in January with nothing showing, and biopsy not revealing micro inflammation.

I sought gastroenterology help after imodium quit working. I've been on Cholestyramine, xifaxin, Creon, and Lomotil, all with no effect.

I'm going to get a second opinion at a different clinic soon. I feel like the current gastroenterologist is just throwing pills at me to see if anything works. I really want to get to the bottom of why this is happening, not just band aid pills. It's been suggested that this is all because of stress. I'm seeing a counselor to help with that, but so far no relief. Actually my condition is stressful in itself. I have to bathroom map, and it's affecting my relationship with my husband. I'm desperate for answers. Anyone else have this with the absence of all the regular gastro/digestive diseases?

Hi @taonamission, chronic diarrhea can definitely take a toll on your entire body and having one test after another with no relief can leave you desperate for any answer.
It can be hard to track down a diagnosis when you are only having one symptom. Are you having any other symptoms that my help physicians hone in on what's going on? I read in one of your posts that you are spiking fevers, is that still going on?

REPLY
@amandaburnett

Hi @taonamission, chronic diarrhea can definitely take a toll on your entire body and having one test after another with no relief can leave you desperate for any answer.
It can be hard to track down a diagnosis when you are only having one symptom. Are you having any other symptoms that my help physicians hone in on what's going on? I read in one of your posts that you are spiking fevers, is that still going on?

Jump to this post

Yes, I still have periodic fever spikes. I've noticed I am also having trouble with short term memory. And, of course, the stress of all this may have something to do with some of my symptoms.

REPLY
@amandaburnett

Hi @taonamission, chronic diarrhea can definitely take a toll on your entire body and having one test after another with no relief can leave you desperate for any answer.
It can be hard to track down a diagnosis when you are only having one symptom. Are you having any other symptoms that my help physicians hone in on what's going on? I read in one of your posts that you are spiking fevers, is that still going on?

Jump to this post

Hi taonamission, I had diarrhea that long too. I found a powder called cholestraymine along with probiotic called flora urgent care 50 billion….I took a box of cholestraymine and boom diarrhea gone. My gastro guy said it wouldn’t work but he gave me the prescription and it worked, never came back yet. He also had me write down the name. My colonoscopy was clear too. Try it can’t hurt.

REPLY
@nancykeenan

Hi taonamission, I had diarrhea that long too. I found a powder called cholestraymine along with probiotic called flora urgent care 50 billion….I took a box of cholestraymine and boom diarrhea gone. My gastro guy said it wouldn’t work but he gave me the prescription and it worked, never came back yet. He also had me write down the name. My colonoscopy was clear too. Try it can’t hurt.

Jump to this post

I am on Cholestyramine but it's not helping. I've decided to get a second opinion here soon.

REPLY

I’ve had diarrhea for at least 10 years. It was episodic until 2 years ago when it became almost common. Someone suggested lactose intolerance kept a record of what I ate and found the link. I’ve been a huge milk drinker so this floored me. I now take a lactase pill before dairy of any kind and switched to lactose free products whenever I can find them. The key with me is to make sure I take a lactase tablet before I consume any sanity. I don’t know if there’s a medical test for this, if so, it would be worth looking into.

REPLY
@catstx

I’ve had diarrhea for at least 10 years. It was episodic until 2 years ago when it became almost common. Someone suggested lactose intolerance kept a record of what I ate and found the link. I’ve been a huge milk drinker so this floored me. I now take a lactase pill before dairy of any kind and switched to lactose free products whenever I can find them. The key with me is to make sure I take a lactase tablet before I consume any sanity. I don’t know if there’s a medical test for this, if so, it would be worth looking into.

Jump to this post

@catstx Welcome to Mayo Clinic Connect!
As you can see when reading the posts here, we are quite a few having diarrhea from different causes.
It seems that you have lactose intolerance.
We are lucky that there are lactase products to take before eating something with lactose. I remember many years ago when there would be lactase drops to add to milk and then lactose free milk itself.
Have you seen a gastroenterologist yet? There are tests available.
In the meantime, take your Lactase pills before eating or drinking anything with milk in it.
I even started to take it when eating pizza.

REPLY

@taonamission Has your doctor ever suggested a Fodmap eating plan? In some cases, it can help with diarrhea. Here is some information about the eating plan by a registered dietician at Mayo Clinic,

Here is a link to information about non-medicine treatments for digestive disorders.
https://www.mayoclinic.org/medical-professionals/news/nonpharmacological-approaches-to-management-of-functional-gastrointestinal-disorders-where-are-we-now/mac-20454654
Finally, here is a link to a discussion on Connect regarding the Fodmap diet plan,
https://connect.mayoclinic.org/discussion/fodmap-eating-plan/
I hope that you are able to find a good second opinion and get some relief. I'd enjoy hearing from you again.

Will you post and let me know your progress in finding answers to this debilitating problem?

REPLY
Please sign in or register to post a reply.